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Autumnly
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Autumnly

Member, Female

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Would you like to share your t story & feature on the Plug’em website to help raise awareness? If so get in touch via emily@tinnitus.org.uk Oct 7, 2018

    1. Autumnly
      Autumnly
      Would you like to share your t story & feature on the Plug’em website to help raise awareness? If so get in touch via emily@tinnitus.org.uk
      Oct 7, 2018
      1. Contrast and MBH like this.
    2. Autumnly
      Autumnly
      I’ll try to take a break until 2019, there’s not going to be a treatment by then anyway.
      Sep 23, 2018
      1. Artazanasss, 1000 and Contrast like this.
      2. Autumnly
        Autumnly
        I don’t believe that the ‘vast majority’ of people with tinnitus is fine. I get so many messages by people on twitter telling me how desperate they are for relief. Especially by men, many say they just keep a happy facade for their families... just because they’re not all homebound or dead doesn’t mean they aren’t suffering.
        Sep 23, 2018
      3. Autumnly
        Autumnly
        Should probably come back in 3-5 years to be closer to a treatment lol
        Sep 23, 2018
      4. Autumnly
        Autumnly
        Alright, last post, see you all in 2019!
        Sep 23, 2018
        Contrast and PDodge like this.
    3. Autumnly
      Autumnly
      "It’s terrifying to see so many people with this degree of suffering without any sense of alarm from the wider world."
      Sep 13, 2018
      1. Artazanasss, Menachem, dpdx and 2 others like this.
      2. Autumnly
        Autumnly
        by @GinaMcGalliard on twitter
        Sep 13, 2018
    4. Autumnly
      Autumnly
      "They forget that the mental struggle is really what keeps T intrusive and loud." - everyone should be appalled by this
      Aug 21, 2018
      1. Jazzer, threefirefour, Menachem and 5 others like this.
      2. View previous comments...
      3. Autumnly
        Autumnly
        "Besides, even if it stays, your perception of it will change for the better over time, as your brain gets more used to it." - Except if your tinnitus gets worse :)))
        Sep 7, 2018
        Jazzer likes this.
      4. Autumnly
        Autumnly
        "Tinnitus is not that bad compared to many other physical conditions. I know. My tinnitus super loud, it's not fun, but it's not like cancer." Thanks, I'm cured. Maybe having severe hyperacusis that leaves you bed-ridden or developing 5-7 new tones would change your mind :)))
        Sep 9, 2018
        Jazzer and Menachem like this.
      5. Autumnly
        Autumnly
        "CBT, TRT, mindfulness etc. will help us manage or reduce T for some folks" Only for some? Didn't you proudly proclaim that CBT & TRT reduce tinnitus for everyone and that everyone can learn not to perceive their tinnitus anymore?
        Sep 10, 2018
    5. Autumnly
      Autumnly
      I'm moving to the countryside in a month and I can't wait!
      Jul 22, 2018
      1. threefirefour, Gman, cspc and 7 others like this.
    6. Autumnly
      Autumnly
      Could we stop throwing longterm t/h sufferers under the bus?
      May 22, 2018
      1. Menachem, Jazzer, Gman and 3 others like this.
      2. Autumnly
        Autumnly
        These "horror stories" are real. Yes, they can be scary, but you probably won't "end up like these people".

        Some people still struggle after years because these conditions can be debilitating, their suffering is not optional.
        May 22, 2018
      3. Autumnly
        Autumnly
        I wouldn't advice new sufferers to read those stories but I think people should be allowed to share and talk about how brutal t/h can be. How else are they supposed to make other people understand and take them seriously?
        May 22, 2018
        Jazzer, Gman, treelee and 3 others like this.
    7. Autumnly
      Autumnly
      The more I read on here the more I think "my tinnitus shouldn't have gotten this bad" lol
      May 17, 2018
      1. Gman, threefirefour, Daniel95 and 2 others like this.
      2. Autumnly
        Autumnly
        "I go to parties and don't wear earplugs and my tinnitus doesn't get worse!" - maybe you're just lucky, my friend.
        May 17, 2018
        Menachem, threefirefour and Holly1987 like this.
    8. Autumnly
      Autumnly
      Could Affichem start their phase 1 for AF243 this year please?
      Mar 30, 2018
      1. MBH, aptenodytes, Contrast and 5 others like this.
      2. Autumnly
        Autumnly
        „phase I will be completed after 2 years, phase II will go on for another 2-3 years and then we hope that the molecule will be available for everyone“ yes, hi, hello there, I’m all for it, start phase I nowwwww
        Mar 30, 2018
        Jazzer, Contrast, Gman and 1 other person like this.
    9. Autumnly
      Autumnly
      According to Paul Breckell (CEO of ActionOnHearingLoss) “The next five years are going to see such major advances in hearing research.”
      Mar 24, 2018
      1. Menachem, Jazzer, cspc and 7 others like this.
      2. Autumnly
        Autumnly
        Really hoping that those upcoming five years are going to be different (and actually make a difference) compared to those 5-year phases we had before.
        Mar 24, 2018
        Jazzer, Menachem, Imshael and 4 others like this.
    10. Autumnly
      Autumnly
      My brain hasn't "filtered out" my tinnitus in over 4 years because I'm not trying hard enough, yeah, sure.
      Mar 1, 2018
      1. Menachem, Jazzer, Contrast and 5 others like this.
      2. Autumnly
        Autumnly
        *5 years by now :))
        Jul 15, 2018
        Jazzer likes this.
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  • About

    Gender:
    Female
    Tinnitus Since:
    July/August 2013
    Cause of Tinnitus:
    Noise induced
    1. Mild tinnitus, no hyperacusis since July/August 2013 (2 tones)
    2. Moderate tinnitus since March 2014
    3. Severe tinnitus since 2015/16
    4. Moderate hyperacusis since 2016/17
    5. Severe hyperacusis since August 2017, home-bound since
    6. Now 9 tones in total: left ear - 4 tones, right ear - 5 tones

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