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Autumnly

Member, Female, from Germany

Podcast Patron Benefactor Ambassador Hall of Fame Advocate

Starting today, all new Canadian Medical Association Journal content is now freely available online :) Jan 14, 2020

1. Autumnly
  Starting today, all new Canadian Medical Association Journal content is now freely available online :)
  
  Jan 14, 2020
  1. Labyrinthine and Jack Straw like this.
2. Autumnly
  BTA: Tell us about your experience of tinnitus and how it impacts your life by completing our survey: https://surveymonkey.co.uk/r/surveybta
  
  Jan 10, 2020
  1. Gman, Deamon22, OnceUponaTime and 3 others like this.
  2. Autumnly
    Survey by the BTA (= British Tinnitus Association)
    
    Jan 10, 2020
3. Autumnly
  The FDA has granted FX-322 Fast Track designation. :) https://tinyurl.com/yye629en
  
  Oct 10, 2019
  1. egowisp, Stu1983, Nathan and 6 others like this.
4. Autumnly
  Hyperacusis patients in Florida: See about testing out the new hybrid hyperacusis device https://tinyurl.com/y2rgvb59
  
  Oct 3, 2019
  1. ChrisBoyMonkey, Jackjohnson183, TheDanishGirl and 1 other person like this.
5. Autumnly
  New Study Opportunity: Investigation of executive functioning in adults with and without tinnitus - volunteers required
  
  Sep 21, 2019
  2. Autumnly
    https://tinyurl.com/y6bdd3ov
    
    Sep 21, 2019
6. Autumnly
  Got dental work done, tinnitus is spiking, hurry up Neuromod
  
  Sep 6, 2019
  1. Gman, Contrast, Stu1983 and 1 other person like this.
7. Autumnly
  Anyone else dreaming of being rich so that they can donate a lot of money to research?
  
  Jul 12, 2019
  1. Phendran, Gman, ChrisBoyMonkey and 12 others like this.
8. Autumnly
  BTA Survey: How thoughts and behaviours affect sleep in people with and without tinnitus https://tinyurl.com/yybanxsx
  
  Jun 19, 2019
  1. threefirefour, Artazanasss, GSC and 1 other person like this.
9. Autumnly
  Share how tinnitus affects you: https://twitter.com/Plug_em/status/1139144819299749888
  
  Jun 13, 2019
  1. Artazanasss, GSC, threefirefour and 1 other person like this.
10. Autumnly
  Neuromod is now advancing towards initial commercialisation of Lenire in Ireland and Germany :) https://bit.ly/2PRAjBo
  
  May 8, 2019
  1. threefirefour, Agrajag364, Manny and 12 others like this.
11. Autumnly
  "Even if the ear noises remain after the acute phase (chronic tinnitus), those affected can learn very well to ignore them." Thanks GTL
  
  May 4, 2019
  1. Gman, hurtingdream, Striveon and 2 others like this.
  2. Autumnly
    "There are many ways to transform distressing tinnitus through habituation into absolutely bearable tinnitus." - Don't donate to the German Tinnitus League.
    
    May 4, 2019
    
    friend74, Marslum, Melinite and 5 others like this.
12. Autumnly
  really happy to see more TinnitusTalk members on twitter talking about tinnitus :)
  
  Apr 3, 2019
  1. Manny, Artazanasss, Deamon22 and 4 others like this.
13. Autumnly
  "Key topics: Adverse childhood experiences and tinnitus“ - Oh, come on.
  
  Mar 31, 2019
  1. Contrast and TheDanishGirl like this.
14. Autumnly
  New Drug Application for Novel Migraine Treatment Ubrogepant Accepted for FDA Review
  
  Mar 30, 2019
  1. Holly1987, threefirefour, Deamon22 and 2 others like this.
  2. Autumnly
    Ubrogepant is a highly potent oral CGRP receptor antagonist. This is an oral medication, and first of it's kind, Allergan reports.
    
    Mar 30, 2019
    
    threefirefour, GSC and Contrast like this.
  3. Autumnly
    https://www.clinicalpainadvisor.com/home/topics/migraine-headache/nda-for-novel-migraine-treatment-ubrogepant-accepted-for-fda-review/?utm_source=newsletter&utm_medium=email&utm_campaign=cpa-update-20190325&cpn=pain_all,pcp_nppa,pcp_all&hmSubId=1I032o0zcxQ1&hmEmail=wpPVmO5DnSO3vU-EPlPw2fiAWyDGhZct0&NID=&mpweb=1323-43285-675760
    
    Mar 30, 2019
15. Autumnly
  I wished the news coverage of tinnitus was similar to visual snow.
  
  Mar 23, 2019
  1. Artazanasss, threefirefour, Kain and 6 others like this.
  2. Autumnly
    They call it a severely debilitating condition, they want a cure, they say there are no treatments because they don't count CBT and mindfulness, no one says "no matter how bad it gets you can tune it out".
    
    Mar 23, 2019
    
    threefirefour, Manny, Deamon22 and 3 others like this.
16. Autumnly
  Promising news posted by The Visual Snow Initiative! :) Expected launch date summer 2019.
  
  Mar 18, 2019
  1. sleepingsiren, Holly1987, Striveon and 4 others like this.
17. Autumnly
  "It’s terrifying to see so many people with this degree of suffering without any sense of alarm from the wider world."
  
  Sep 13, 2018
  1. Marslum, threefirefour, Gman and 5 others like this.
  2. Autumnly
    by @GinaMcGalliard on twitter
    
    Sep 13, 2018
    
    threefirefour, Artazanasss, dpdx and 2 others like this.
18. Autumnly
  "They forget that the mental struggle is really what keeps T intrusive and loud." - everyone should be appalled by this
  
  Aug 21, 2018
  1. Artazanasss, Drone Draper, Jazzer and 7 others like this.
  2. View previous comments...
  3. Autumnly
    "Besides, even if it stays, your perception of it will change for the better over time, as your brain gets more used to it." - Except if your tinnitus gets worse :)))
    
    Sep 7, 2018
    
    Artazanasss, Gman, Contrast and 1 other person like this.
  4. Autumnly
    "Tinnitus is not that bad compared to many other physical conditions. I know. My tinnitus super loud, it's not fun, but it's not like cancer." Thanks, I'm cured. Maybe having severe hyperacusis that leaves you bed-ridden or developing 5-7 new tones would change your mind :)))
    
    Sep 9, 2018
    
    Gman, Contrast, Jazzer and 1 other person like this.
  5. Autumnly
    "CBT, TRT, mindfulness etc. will help us manage or reduce T for some folks" Only for some? Didn't you proudly proclaim that CBT & TRT reduce tinnitus for everyone and that everyone can learn not to perceive their tinnitus anymore?
    
    Sep 10, 2018
    
    Gman and Contrast like this.
19. Autumnly
  Could we stop throwing longterm t/h sufferers under the bus?
  
  May 22, 2018
  1. Manny, Jazzer, Gman and 3 others like this.
  2. Autumnly
    These "horror stories" are real. Yes, they can be scary, but you probably won't "end up like these people".
    
    Some people still struggle after years because these conditions can be debilitating, their suffering is not optional.
    
    May 22, 2018
    
    Manny, Jazzer, Greg Sacramento and 3 others like this.
  3. Autumnly
    I wouldn't advice new sufferers to read those stories but I think people should be allowed to share and talk about how brutal t/h can be. How else are they supposed to make other people understand and take them seriously?
    
    May 22, 2018
    
    Jazzer, Gman, treelee and 3 others like this.
20. Autumnly
  The more I read on here the more I think "my tinnitus shouldn't have gotten this bad" lol
  
  May 17, 2018
  1. Gman, threefirefour, Daniel95 and 2 others like this.
  2. Autumnly
    "I go to parties and don't wear earplugs and my tinnitus doesn't get worse!" - maybe you're just lucky, my friend.
    
    May 17, 2018
    
    Manny, threefirefour and Holly1987 like this.
21. Autumnly
  Could Affichem start their phase 1 for AF243 this year please?
  
  Mar 30, 2018
  1. MBH, aptenodytes, Contrast and 5 others like this.
  2. Autumnly
    „phase I will be completed after 2 years, phase II will go on for another 2-3 years and then we hope that the molecule will be available for everyone“ yes, hi, hello there, I’m all for it, start phase I nowwwww
    
    Mar 30, 2018
    
    Leoglobe, Jazzer, Contrast and 2 others like this.
22. Autumnly
  According to Paul Breckell (CEO of ActionOnHearingLoss) “The next five years are going to see such major advances in hearing research.”
  
  Mar 24, 2018
  1. Leoglobe, Manny, Jazzer and 8 others like this.
  2. Autumnly
    Really hoping that those upcoming five years are going to be different (and actually make a difference) compared to those 5-year phases we had before.
    
    Mar 24, 2018
    
    Jazzer, Manny, Imshael and 4 others like this.
23. Autumnly
  My brain hasn't "filtered out" my tinnitus in over 4 years because I'm not trying hard enough, yeah, sure.
  
  Mar 1, 2018
  1. Manny, Jazzer, Contrast and 5 others like this.
  2. Autumnly
    *5 years by now :))
    
    Jul 15, 2018
    
    Jazzer likes this.
  3. Autumnly
    *nearly 6 years :)))))
    
    Jun 28, 2019
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About
Gender:

Female

Location:

Germany

Tinnitus Since:

July/August 2013

Cause of Tinnitus:

Noise induced
1. 2013, July/August: mild tinnitus, no hyperacusis (2 tones)
2. 2014, March: moderate tinnitus
3. Since 2015/2016: severe tinnitus
4. Since 2016/2017: moderate hyperacusis
5. Since 2017, August: severe hyperacusis, home-bound
6. November 2018: pain-hyperacusis has improved, can talk again without being in severe pain
7. April 2019: loudness hyperacusis mostly gone, can talk, watch tv, high frequencies still bother my ears
8. September 2019: pain-hyperacusis mild-moderate on average tinnitus still severe, still mostly homebound
- several tones in each ear, right ear is a lot worse
- Mild hearing loss in both ears (up to 15db), more in the lower frequencies, was only tested up to 8000 khz.
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