Barry098
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Gender:
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Occupation:
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Barry098

Member, Male

Had an unusually low T month but then my ears were blasted this past Wednesday and I’m right back in T-hell. Apr 26, 2024 at 5:08 PM

    1. Barry098
      Barry098
      Sometimes I feel like an ant that had its antennas ripped off. Except an ant wouldn’t have to live with it for the next 30-50 years…
      1. Damocles
        Damocles
        Well, I suppose to level out that injustice, time was made relative; so to that ant, it's 5 years on earth without those antennae, probably feel the same as your 30-50 with tinnitus.
        Feb 10, 2022
        tpj, aura, Steph1710 and 4 others like this.
      2. aura
        aura
        Maybe we should try feeling more like a headless coackroach instead.Living for a couple of weeks after decapitation and not giving a single f*ck about it.
        Feb 10, 2022
        Barry098 likes this.
    2. Barry098
      Barry098
      Covid booster has really wiped me out...feels like having Covid all over again. Ears have been back to screaming level since Sunday evening
      1. aura and Wrfortiscue like this.
      2. View previous comments...
      3. Stacken77
        Stacken77
        @aura Old ones screaming, my "angle grinder" acting up, makes me sick, almost makes my legs numb in fear when its at its peak. Today has been a much more tolerable day, thankfully.

        It was a long time since I developed a new tone. I used to get new tones constantly a year ago.
        Feb 12, 2022
        Barry098 and Damocles like this.
      4. Barry098
        Barry098
        So to hear about the spike @Stacken77. I’m just now recovering from the COVID booster spike that I had since last Sunday. My T was out of control this past week. @DocTors_94 is right…this condition is inhumane. I’m sending you both and @aura hugs right now and hoping things settle down.
        Feb 13, 2022
        Stacken77 and aura like this.
      5. Stacken77
        Stacken77
        Feb 13, 2022
        Barry098 likes this.
    3. Barry098
      Barry098
      Tried explaining the concept of the limbic response to a friend who has very loud T but doesn’t find it distressing…he didn’t really get it…
      1. Stacken77, Phendran, NYCGuy and 2 others like this.
      2. View previous comments...
      3. Stacken77
        Stacken77
        Damn, @Barry098 I'm so sorry to hear that. I relate to all your struggles man. I hope you get some peace from this disease.
        Feb 13, 2022
        Barry098 likes this.
      4. kingsfan
        kingsfan
        I remember I played a show back in my early 20's that left me nearly deaf for about 5 days and I didn't really care too much.
        Feb 13, 2022
        Barry098 likes this.
      5. Barry098
        Barry098
        @kingsfan I never had any issues with anxiety in my twenties either…the naïveté of youth was a beautiful thing…wish I could re-channel its power!
        Feb 14, 2022
    4. Barry098
      Barry098
      Getting the COVID booster this afternoon because my job requires it…wish me luck!
      1. Phendran, Exit, JPGL and 8 others like this.
      2. Shelbylynn
        Shelbylynn
        good luck! if it makes you feel any better i had all 3 and didn't make my t change. <3
        Feb 7, 2022
        Barry098, aura and NYCGuy like this.
      3. Barry098
        Barry098
        Well, my ears were screaming today…very similar to when I actually had COVID but I just tried to ignore them as much as possible and went about my day business as usual. I feel really beat tonight though. Hope they calm down a bit tomorrow.
        Feb 8, 2022
        NYCGuy likes this.
    5. Barry098
      Barry098
      Had another really low T day…it was about a 2-3 out of 10 throughout the day…a bit louder this evening but still not too bad…good signs!
      1. JPGL, GoneAway, Steph1710 and 5 others like this.
    6. Barry098
      Barry098
      My general anxiety level has come down over the last few days…there were times today that I almost felt relaxed…what a foreign feeling!
      1. JPGL, IntotheBlue03, Damocles and 5 others like this.
    7. Barry098
      Barry098
      I don’t know if habituation is starting to happen again but I realized several times today that I wasn’t listening to my ears ringing.
    8. Barry098
      Barry098
      Had a pretty mellow T day today…almost felt normal!
      1. JPGL, Charburchar, DocTors_94 and 5 others like this.
    9. Barry098
      Barry098
      Stayed calm pretty much the whole day. Felt a little like walking a tightrope though...one misstep and I might coming crashing down.
      1. Phendran, JPGL, aura and 2 others like this.
      2. Stacken77
        Stacken77
        @Barry098 I know it doesn't mean much, but here's a hug. I sincerely wish you well buddy.
        Jan 22, 2022
        Barry098 likes this.
      3. Barry098
        Barry098
        @Stacken77 Thank you…I appreciate your sincere and thoughtful posts. I hope that one day we will both put this period behind us and move on to a normal quiet life without T and H.
        Jan 22, 2022
        Stacken77 likes this.
    10. Barry098
      Barry098
      Dreamt that I had a pet grizzly bear last night…I was a little afraid of him at first but then he licked my face and we were instant buddies
      1. JPGL, NYCGuy and Steph1710 like this.
      2. Steph1710
        Steph1710
        Aww. What a sweet dream. Shame that as he would grow to older, he would probably rip your face off haha.
        Jan 22, 2022
        Barry098 likes this.
      3. aura
        aura
        I think your brain is trying to tell you something. The grizzly bear is your tinnitus. Just make peace with it. :))
        Jan 22, 2022
        Barry098 likes this.
      4. Barry098
        Barry098
        Had the same thought @aura
        Jan 22, 2022
    11. Barry098
      Barry098
      I need a break from T…oh right, that’s not possible!
      1. Phendran, NYCGuy, tracyNYC and 5 others like this.
      2. View previous comments...
      3. Barry098
        Barry098
        @Stacken77 Tinnitus brought me to my knees today...Some days I just don't have the strength to handle it well.
        Jan 21, 2022
        Stacken77 likes this.
      4. Freerunner
        Freerunner
        Sorry to hear that @Barry098 . How is your hyperacusis?

        By the way how does your tinnitus sound like? Do you still have the COVID spike?
        Jan 21, 2022
      5. Barry098
        Barry098
        @Freerunner Thanks Freerunner, I haven’t had serious issues with hyperacusis this time around, just T. Can’t tell if the COVID spike is still there or if this is just my baseline. Either way, T is really loud and hissing sounding. Kind of opaque sounding, like a wall of sound. Yesterday really got me down but what can you do other than keep on keeping on…
        Jan 21, 2022
    12. Barry098
      Barry098
      Ah waking up…I used to love the feeling of slowly starting the day. Now the T makes me instantly tense as soon as conscious sets in.
      1. MartinPihl, NYCGuy and Dann_sheep like this.
    13. Barry098
      Barry098
      5.5% of people get cancer, 20% get tinnitus. American cancer society invested almost $150 million in research since 2019. T $ research = ?
      1. MartinPihl, AbeS, Stacken77 and 5 others like this.
      2. View previous comments...
      3. buttercake
        Jan 18, 2022
        Barry098 and Damocles like this.
      4. Barry098
        Barry098
        @Stacken77 well said. I think the image-problem lies in the fact that some people are able to easily habituate. This compartmentalized “success” is then used as a blanket expectation for anyone with T. The real truth though is that many of struggle with or possibly even find habituation impossible. That leaves us…well…I suppose where we are right now…
        Jan 18, 2022
        Exit, DocTors_94 and Stacken77 like this.
      5. Stacken77
        Stacken77
        Jan 18, 2022
        Barry098 likes this.
    14. DocTors_94
      DocTors_94
      Hi Barry, sorry to bother you, I saw a reply about your case of T years ago, were you worsening each day? Since I am and It is really impossible to habituate to daily worsenings... How did you manage It? I am really really desperate...
      1. View previous comments...
      2. DocTors_94
        DocTors_94
        @Barry098 thank you for your support, people tend to need 6 months or so to habituate to a spike... I am worsening through the days so you can imagine how hard It is and how hopeless and desperate I feel... I am 3 months in... If at least I had some good days ( the only thing is that mornings when I wake up the ugly tones aren't there...)
        Jan 19, 2022
      3. Barry098
        Barry098
        Less tones in the morning is a positive sign. That means it can change! You probably won’t have good days for a few more months…unfortunately that is normal with tinnitus :(
        Just give it time…and you’ll get to a better place.
        Jan 19, 2022
        DocTors_94 likes this.
      4. DocTors_94
        DocTors_94
        @Barry098 I am not sure if Its less tones or they are covered by others :( . I really pray each day to stop the worsening. I can live with this, even though It would be hard... But can't if It goes to crazy points... I am so disperate, crying and agitated... Thank you again for your support.
        Jan 19, 2022
    15. Barry098
      Barry098
      And the COVID spike continues…contemplating doing a short course of prednisone since this increase in sound is likely due to inflammation.
      1. twa, Steph1710 and NYCGuy like this.
      2. View previous comments...
      3. DocTors_94
        DocTors_94
        Are you better?
        Jan 19, 2022
        Wrfortiscue likes this.
      4. Exit
        Exit
        Have anyone really tried treating COVID with cortisone..?
        I saw a show once where blood poisoning as a last resort was treated with cortisone and vitamin C intravenous.
        It will be a new standard protocol in 10 years!
        Doctor didn’t think the patient would live the night.
        2 days later he was sent home with all limbs., and a pulse.
        Jan 19, 2022
        twa and Wrfortiscue like this.
      5. Barry098
        Barry098
        @DocTors_94 I’m just about through COVID. My ears calmed down a little. They are back in the category of this sucks but I can live with it.
        Jan 19, 2022
        ZFire, DocTors_94, Exit and 1 other person like this.
    16. Barry098
      Barry098
      Waking up is always hard. Once I get up and get going things typically improve but the initial jolt awake is really unpleasant. Suggestions?
      1. Nadia231 likes this.
    17. Barry098
      Barry098
      1. View previous comments...
      2. Steph1710
        Steph1710
        @Damocles someones comment on the video was - ‘always put your non-jerk hand in the box’ hahaha solid advice there!
        Jan 15, 2022
        aura and Damocles like this.
      3. Damocles
        Damocles
        Jan 16, 2022
        tpj likes this.
      4. Barry098
        Barry098
        @Steph1710 that’s hilarious…didn’t notice it before.
        Jan 16, 2022
        Damocles likes this.
    18. Barry098
      Barry098
      Does anyone else find their T to bed more tolerable with ear plugs in? Its like instant relief for me, I don’t do it often because of H.
      1. Wrfortiscue and Damocles like this.
      2. View previous comments...
      3. kingsfan
        kingsfan
        Jan 18, 2022
        Barry098 and Damocles like this.
      4. Barry098
        Barry098
        @Damocles thanks so much for all of the help…very kind of you
        Jan 19, 2022
        Damocles likes this.
      5. Barry098
        Barry098
        @kingsfan thanks for the info…much appreciated! BTW, on a slightly different note, I seem to remember reading one of your postings mentioning Nortriptyline. Has that drug changed your T in anyway for the better?
        Jan 19, 2022
        Damocles likes this.
    19. Barry098
      Barry098
      I need some encouragement…today was F***ing brutal. Sounds like a downed power line in my head…new electrical zaps and a new pure tone.
      1. View previous comments...
      2. Shelbylynn
        Shelbylynn
        I keep getting random tones coming and going. The inside of my head sounds like a complicated computer now, it’s the matrix
        Jan 15, 2022
        Wrfortiscue, Damocles and JPGL like this.
      3. Shelbylynn
        Shelbylynn
        Hopefully u find some relief soon!
        Jan 15, 2022
        Barry098, Wrfortiscue and Damocles like this.
      4. Barry098
        Barry098
        Thank you all for your support! Knowing that I am not alone in this sonic Hell is sometimes the only thing that gets me through the day. I appreciate you all!
        Jan 15, 2022
        Damocles, Shelbylynn and Stacken77 like this.
    20. Barry098
      Barry098
      Just got sick last night…probably COVID. Had crazy chills and fever…ears are ringing louder than ever. I seriously hope this is temporary…
      1. Stacken77, JPGL, NYCGuy and 1 other person like this.
      2. ZFire
        ZFire
        It was temporary for me. T spike lasted about 1 and half week for me. I was COVID positive .
        Jan 15, 2022
        JPGL, NYCGuy and Damocles like this.
      3. Barry098
        Barry098
        @ZFire thanks for the hope…this is truly ridiculous right now. Not sure I could habituate to this level. I will ride it out and hope for the best
        Jan 15, 2022
        Damocles, JPGL and ZFire like this.
      4. Stacken77
        Stacken77
        @Barry098 I had a really bad spike after a cold. It was most likely not covid though. The spike lasted roughly 2 weeks after the cold and sinuses had cleared. It was a scary time. Don't lose hope!
        Jan 15, 2022
        Damocles and ZFire like this.
    21. Barry098
      Barry098
      Absolutely screaming T today…hope things will tame down with a good nights sleep.
      1. JPGL, Steph1710 and Damocles like this.
      2. Damocles
        Damocles
        I'm sure they will.
        Jan 13, 2022
        tpj, JPGL, Steph1710 and 1 other person like this.
    22. Barry098
      Barry098
      Alcohol is a double edged sword…it sure helps ease the moment…but you pay the price dearly for it the next day!
      1. JPGL, ThomasF, Damocles and 1 other person like this.
      2. AbeS
        AbeS
        For sure.. last time I had more than a few beers my hyperacusis got horrible. Kind of glad it isn't the opposite acutally.
        Jan 12, 2022
        ThomasF likes this.
    23. Barry098
      Barry098
      Pretty mellow ear day until I played a VR zombie apocalypse game…ears have been screaming ever since, from the sheer terror of the zombies!
      1. JPGL, NYCGuy and Steph1710 like this.
    24. Barry098
      Barry098
      Living with severe tinnitus demonstrates that you that you are the kind of person that keeps getting up everyday and does not give up...
      1. JPGL, tracyNYC, NYCGuy and 6 others like this.
      2. Guywithapug
        Guywithapug
        Very much agreed.
        Jan 9, 2022
        JPGL, NYCGuy, Wrfortiscue and 2 others like this.
    25. Barry098
      Barry098
      Still getting jolted awake in the morning by the loud squeal…Once I can retrain myself to wake up peacefully, I will be in a very good place
    26. Barry098
      Barry098
      Wow, feels kind of like a switch got flipped after I told Tinnitus to fuck off and die. No change in volume, but suddenly no distress :)
      1. AbeS, Wrfortiscue, NYCGuy and 3 others like this.
      2. Shelbylynn
        Shelbylynn
        Please send mine a memo :-)
        Jan 8, 2022
        Steph1710 and Wrfortiscue like this.
      3. Barry098
        Barry098
        It’s a mystery to me how the brain learns to adapt. I would still rather have it gone though…If I win the lotto, all of the money will go towards a tinnitus cure.
        Jan 8, 2022
        JPGL and Shelbylynn like this.
    27. Barry098
      Barry098
      Not today Tinnitus…today I’m the boss :)
      1. Damocles
        Damocles
        That's right tinnitus!

        Tonight, @Barry098 is the daddy. (͠≖ ͜ʖ͠≖)
        Jan 6, 2022
        tpj and Barry098 like this.
      2. Barry098
        Barry098
        I made Tinnitus my bitch today...and that felt like a nice change :)
        Jan 7, 2022
        Damocles and Steph1710 like this.
    28. Barry098
      Barry098
      I’m going to have a positive attitude today, just to confuse my tinnitus
    29. Barry098
      Barry098
      Anyone else have their T get louder throughout the day? After a cup of coffee in the morning mine is typically super quiet.
      1. Wrfortiscue, NYCGuy and Harder Calm like this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        I second what @Damocles said. Mine is louder in the morning and becomes quieter throughout the day. However, caffeine has no effect on my T whatsoever.
        Jan 6, 2022
        Damocles, aura and Wrfortiscue like this.
      4. aura
        aura
        On my normal ( good) days the T is quieter in the morning and becomes louder through the day. On my bad days,it wakes me up in the middle of the night and then gets louder and louder in a chaotic way to the point that i need a sleeping pill/anti anxiety drug combo to keep it together.
        Jan 6, 2022
        Exit and Damocles like this.
      5. kingsfan
        kingsfan
        Mine is quieter in the mornings. Use to be just a soft hiss that would gradually turn into a ring around noon, then a fog horn by 3pm. I no longer get the soft hiss in the morning, I just wake up with ringing.
        Jan 6, 2022
        Damocles likes this.
    30. Barry098
      Barry098
      T was back screaming again yesterday…it just can’t quit me!
      1. Wrfortiscue, Steph1710 and Nadia231 like this.
      2. Steph1710
        Steph1710
        It loves you haha. Mine is all over the top place atm.
        Jan 4, 2022
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  • About

    Gender:
    Male
    Occupation:
    Musician
    Tinnitus Since:
    02/2017
    Cause of Tinnitus:
    Loud Music
    I'm a musician with some messed up ears...