crescentsky
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crescentsky

Member, from US

Since T, I been getting severe, massive brain fog. Is this a side effect? Dec 2, 2023 at 1:14 AM

    1. crescentsky
      crescentsky
      Since T, I been getting severe, massive brain fog. Is this a side effect?
      1. gameover likes this.
      2. AfroSnowman
        AfroSnowman
        Yes. Having a loud noise in your head takes a bit of a toll on cognition. That piece does improve with time though
        Dec 2, 2023 at 3:31 AM
        kingsfan, gameover and SarahMLFlemmer like this.
    2. crescentsky
      crescentsky
      Canada next week...long and probably loud car ride, loud restaurants, loud places...I guess I'll see how it goes...=/
      1. cyberspace
        cyberspace
        It’s not worth it, try to wear earplugs at least especially if you have custom made ones by any chance
        Dec 1, 2023 at 6:12 AM
      2. BrOKeN_1
        BrOKeN_1
        I don't generally push any sort of product but I've been using those Flare Calmers in public settings and they do seem to help with the higher frequencies. Keep some foam plugs on hand just in case. You know what your threshold is. Have fun and be safe. :)
        Dec 1, 2023 at 3:38 PM
        crescentsky likes this.
    3. crescentsky
      crescentsky
      Ugh this f-ing fax machine line tone!! The two former tenants that had direct caused to this, I hope you both f-ing burn in hell.
      1. View previous comments...
      2. Juliane
        Juliane
        What did the tenants do?
        Nov 29, 2023 at 7:40 PM
      3. crescentsky
        crescentsky
        @Juliane they partied every night until early morning and caused a lot of problems. Very traumatizing and I was going through other things, but they caused me to loose a month of sleep and anxiety. I think it was them triggered all of this T to come on suddenly. No more rentals. I'll just work more and save more. Do anything to go back in time.
        Nov 29, 2023 at 8:03 PM
        tpj and Juliane like this.
      4. Juliane
        Juliane
        That is horrible :-( I know how traumatizing that can be. I experienced one night of neighbors partying, then figthing and screaming for the entire night and I was non-functional for days after.... Those things should have severe penalties
        Nov 29, 2023 at 8:27 PM
        crescentsky and tpj like this.
    4. crescentsky
      crescentsky
      Feel like while I can still semi function to get a 2nd job&save money in case I become a vegetable due to T. Sad to think I have to do this
      1. gameover likes this.
      2. cyberspace
        cyberspace
        How are you able to work right now? My T spikes due to anything so I’m bedridden
        Nov 28, 2023 at 8:19 PM
        gameover likes this.
      3. crescentsky
        crescentsky
        @cyberspace I took about 4 weeks off before returning back to work. I work only a couple of hours onsite and mostly remote. I been forcing myself to work. Was hoping work would kill me faster.
        Nov 28, 2023 at 11:22 PM
        gameover likes this.
    5. crescentsky
      crescentsky
      I accept that I can't have everything and I don't ask for much, but I can't even have silence.
      1. SarahMLFlemmer
        SarahMLFlemmer
        I just said almost these exact words about ten minutes ago.
        Nov 29, 2023 at 6:01 AM
    6. crescentsky
      crescentsky
      Going into 20 months now. Absolutely no f-ing improvements. Started 1 ear and turned in 2 ears after a few weeks. Just pure f-ing hell.
      1. gameover likes this.
      2. SarahMLFlemmer
        SarahMLFlemmer
        =(

        12 months in, no change.
        Nov 28, 2023 at 6:24 AM
      3. crescentsky
        Dec 1, 2023 at 3:25 AM
        SarahMLFlemmer likes this.
      4. SarahMLFlemmer
        SarahMLFlemmer
        *big hug back*
        Dec 1, 2023 at 5:22 AM
        crescentsky likes this.
    7. crescentsky
      crescentsky
      everyday I dream about how I can die without making it seem intentional. universe, when will you let me go.
      1. gameover likes this.
      2. L along the way
        L along the way
        Sorry to hear... sometimes i feel the same way. I felt so many times.. just let it all end please... pfff... Hope & faith that this condition can get better over time is what helps me the most. Trying to go easy on yourself
        Nov 26, 2023 at 11:06 PM
      3. Juliane
        Juliane
        I wonder if Jeff Buckley's death was intentional... So many lyrics of his are about drowning, the water, etc.
        Nov 29, 2023 at 7:43 PM
    8. crescentsky
      crescentsky
      10 years ago, got T for a couple of days from a concert. never again. 10 years later, woke up in the middle of the night with T. wtf?!
      1. SarahMLFlemmer
        SarahMLFlemmer
        That's crazy.
        Nov 29, 2023 at 6:02 AM
    9. crescentsky
      crescentsky
      First time in years as I get closer to my birthday, the more I wish I was dead. Just dead inside.
      1. gameover likes this.
      2. 4Grace
        4Grace
        I feel this. So sorry we have to suffer like this.
        Nov 16, 2023
        SarahMLFlemmer and crescentsky like this.
      3. SarahMLFlemmer
        Nov 29, 2023 at 6:02 AM
    10. crescentsky
      crescentsky
      All I want for my birthday from now on is for this shit tinnitus to go away permanently and forever banished from my life.
      1. SarahMLFlemmer
        SarahMLFlemmer
        Christmas wish!
        Nov 28, 2023 at 6:25 AM
    11. crescentsky
      crescentsky
      FML thought I would avoid the crowd by taking the stairs, instead triggered an alarm. Then, I was assaulted by ambulance.WTF IS THIS?!
      1. gameover and Sammy0225 like this.
      2. Tryn2BHopeful
        Tryn2BHopeful
        Even without T that is quite the serious of events.
        Nov 6, 2023
      3. 4Grace
        4Grace
        @crescentsky - Honest to God my T worsens at every turn. How can one go 30 or 40 years with no noise Traumas. I’ll miss 10 parties then have a large glass bowl drop out of my hands.
        Nov 12, 2023
        SarahMLFlemmer likes this.
    12. SharonBell
      SharonBell
      I can’t find anywhere here that does the OAE test, except in Raleigh NC and that is so far from us: The audiologist in new Bern does the test where they stick something down in your ear to make sure ear drum is working right.
      1. View previous comments...
      2. SharonBell
        SharonBell
        Yeah that’s a lot of money. Was yours in the high frequency like mine or just a standard test up to 8,000 or is that how they do a OAE or some other way? I’m not sure. Alls I know is they did my high frequency test and said, I had sensory tinnitus.
        Nov 6, 2023
      3. crescentsky
        crescentsky
        @SharonBell I did two test. A hearing test which is up to 8k. Normal. A hair cell test which returned abnormal. Not sure what sound they tested up to. I didn't hear anything.
        Nov 6, 2023
        SharonBell likes this.
      4. crescentsky
        crescentsky
        The hair cell test shows my brain did not hear almost half the sounds. They didn't really explain it well. Sounds like they don't even know. They couldn't even answer any of my questions. Complete joke.
        Nov 6, 2023
        SharonBell likes this.
    13. crescentsky
      crescentsky
      I thought this shit was supposed to stabilized after a year. 18 months and why am I getting a new sound on top of existing?! WTF!
      1. gameover likes this.
    14. crescentsky
      crescentsky
      Been wishing I can transfer the remainder of my years to someone that needs it or take all my organs in exchange for peaceful death.
      1. gameover, Sammy0225, 4Grace and 3 others like this.
    15. crescentsky
      crescentsky
      18 months later & still mourning. I no longer give an f about everyone&their-non-tinnitus problem.they can go f themselves for all i care.
      1. ashcash, SharonBell, 4Grace and 3 others like this.
      2. BB23
        BB23
        I see people on subway talking about relationship problems as if it is the end of the world. My entire view on the world has changed ever since I got hit with this BS.
        Oct 21, 2023
        SharonBell and Juliane like this.
      3. crescentsky
        crescentsky
        @BB23 I would take relationship problems over tinnitus any day. give me even a toxic one, I'll take that over this shit tinnitus.
        Oct 21, 2023
      4. MadeleineHope
        MadeleineHope
        I feel you. Especially having severe H along with it.
        Oct 23, 2023
    16. crescentsky
      crescentsky
      None of my other chronic health issues cause so much grief. Feels like a prisoner in my own body with absolute zero control over my life.
      1. 4Grace
        4Grace
        So true. Unfortunately I can relate to everything you say. If it was not progressing I’d be much, much, much better.
        Oct 17, 2023
        Juliane and crescentsky like this.
      2. Juliane
        Juliane
        That is exactly how it is.
        Oct 22, 2023
    17. crescentsky
      crescentsky
      There are moments where I wish I can smash my brain, smash my cochlear, it's so exhausting to constantly have to worry about this ear shit.
    18. crescentsky
      crescentsky
      Don't know what possessed me today to agree & stayed 2 hours for an oktoberfest themed event w/o ear plugs. Hope it'll be ok. Exhausted.
      1. Juliane, 4Grace and gameover like this.
      2. SarahMLFlemmer
        Nov 28, 2023 at 6:28 AM
    19. crescentsky
      crescentsky
      universe, i believe you owe me a powerball winning as compensation.
      1. View previous comments...
      2. crescentsky
        crescentsky
        sigh I wish, not in CA. CA already won twice in a row. Tho if the choice was lottery vs tinnitus-free...I would choose to be tinnistus-free. nothing is worth this torture and sound.
        Oct 12, 2023
        4Grace and gameover like this.
      3. SarahMLFlemmer
        SarahMLFlemmer
        Oct 13, 2023
        4Grace and cjbhab like this.
      4. gameover
        gameover
        @crescentsky 100%. I would give up all the money in the world to be T free.
        Oct 13, 2023
    20. crescentsky
      crescentsky
      Never really thought aging. Now I'm terrified at the thought that I would be forced to live till 100. That's f-ing 60+years. wtf
      1. Juliane
        Juliane
        I feel exactly the same.
        Oct 7, 2023
        crescentsky likes this.
    21. crescentsky
      crescentsky
      if there is a choice to be completely deaf/no sounds&ringing vs tinnitus & nondeaf, I choose to be completely f-ing deaf! Hear nothing!
      1. 4Grace, gameover, Charburchar and 3 others like this.
      2. View previous comments...
      3. Juliane
        Juliane
        Oct 7, 2023
      4. gameover
        gameover
        Does not work. Some people tried and ended up with much worse T. You don't want that.
        Oct 12, 2023
        4Grace and Juliane like this.
      5. Juliane
        Juliane
        @gameover I know. But we were imagining that being a possibility (deaf with no T)
        Oct 16, 2023
        crescentsky likes this.
    22. crescentsky
      crescentsky
      17.5 months. will this magically go away in 18 months?
      1. SamRosemary
        SamRosemary
        Hope so. I’m at 17 months
        Sep 26, 2023
        4Grace and Juliane like this.
      2. 4Grace
        4Grace
        Sadly there so much hope in the first 2 years. For me as it sinks in that this will probably be for ever, it hurts.
        Oct 5, 2023
        gameover likes this.
    23. crescentsky
      crescentsky
      why is it that every time I step out, all the ambulances come out? is this a sign? should I just continue to hide under by bed?
      1. Gabriel5050
        Gabriel5050
        The world is loud as fuck but when you will NEED to go out, you will. At least that is my experience.
        Sep 15, 2023
      2. Juliane
        Juliane
        This! It's like we are haunted by sound.
        Oct 2, 2023
        crescentsky likes this.
      3. 4Grace
        4Grace
        So true!!! If I knew there was a limit to how loud this can get I would be so much happier. Problem is it’s so different for everyone.
        Oct 5, 2023
    24. crescentsky
      crescentsky
      Already 521 days of this curse. Just a never ending cycle.
      1. 4Grace, PennyCat, SilverFox and 2 others like this.
    25. crescentsky
      crescentsky
      has anyone tried shamanic healing? should i try this for tinnitus?
      1. 4Grace and gameover like this.
      2. Juliane
        Juliane
        Why not
        Sep 6, 2023
        4Grace likes this.
    26. crescentsky
      crescentsky
      Can't decide if this work trip is worth it - 5 hrs flight x 2 (to/from), 4 days, covid risk, see all these people, loud restaurants, sigh.
      1. 4Grace and gameover like this.
      2. View previous comments...
      3. Juliane
        Juliane
        My take on it: don't go. I went on such a trip in the beginning of my worsening and it may have ruined me.
        Aug 31, 2023
        gameover likes this.
      4. crescentsky
        crescentsky
        yeah, that's what I am going to do. I took a couple of days off to collect myself together. I'll tell my manager next week I will not join the team offsite in-person. If it impacts my overall evaluations for performance, well I guess, I'll just have to take it. This is not the first one I missed when this f-ing nightmare started last year.
        Aug 31, 2023
        gameover and Juliane like this.
      5. gameover
        gameover
        Yeah, probably better not to go. I dared to fly for vacation in July, enjoyed it all things considered, but I continue to slowly worsen so I wonder if that contributed. Well, I justified going by doing something nice with my wife maybe for the last time. Work assignment does not sound like it is worth the risk, unless your livelihood depends on it. And even then who knows.
        Sep 7, 2023
    27. crescentsky
      crescentsky
      people(incl therapists) so eager to recom/prescribe antidepressants. I'M NOT DEPRESSED. YOU BITCHES TRY HAVING TINNITUS 24/7&365+counting.
      1. View previous comments...
      2. crescentsky
        crescentsky
        yeah I am not taking it, not worth the risk as it comes with other problems and can potentially make the nightmare worse.
        Aug 31, 2023
        Juliane and gameover like this.
      3. Juliane
        Juliane
        Yeah just had that happening to me. My doctor asked: "So it's just the tinnitus keeping you awake?"

        Then suggested Mirtazapine.

        Why even bother with these incompetent people
        Aug 31, 2023
      4. crescentsky
        crescentsky
        yeah I give up going to these doctors. a friend told me to try another doctor and im like LOL. You think it's that easy?! Even a well known tinnitus psychologist told me, there are worse things that could happen to you at your age! and basically implied at least I am alive and not dead. well, I rather be dead than barely alive at this moment in time.
        Aug 31, 2023
        4Grace and Juliane like this.
    28. crescentsky
      crescentsky
      how long do i have to live if i stop exercising, eat all processed food, do not eat anything healthy? will i be lucky & die by end of year?
      1. gameover and SilverFox like this.
      2. L along the way
        L along the way
        Better option seems to live healthy lifestyle... maybe that can help improve t over time... self destructive lifestyle is not right way out... but i can feel ya... im also so done with this condition, but i just hope that with healthy lifestyle & time things may slowly recover hopefully... pffft... people dont understand what a crzy condition tinnitus is.. i just joined this forum.. and feel same way...
        Aug 26, 2023
        gameover likes this.
      3. kingsfan
        kingsfan
        you'll probably just end up with high blood pressure and then your tinnitus might get worse.
        Aug 26, 2023
        Juliane and L along the way like this.
      4. crescentsky
        crescentsky
        i feel like i have exhausted everything already. prior to this, my life consisted of exercising everyday, eating healthy, green smoothies/juice. i was almost 70% plant based.
        Aug 29, 2023
        gameover likes this.
    29. crescentsky
      crescentsky
      on a waitlist for death except the wait is 50-60 years. maybe i'll be lucky and it's tomorrow.
    30. crescentsky
      crescentsky
      i don't know which is worse - unable to die or unable to live. both equally miserable.
      1. 4Grace, Juliane, gameover and 2 others like this.
      2. hopefuldede
        hopefuldede
        Choose your hard.
        Aug 1, 2023
        Mo8409 likes this.
      3. L along the way
        L along the way
        man... i can relate... pffft... dunno what to say, but can definitely relate & hoping that time may heal all things
        Aug 26, 2023
        4Grace likes this.
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  • About

    Location:
    US
    Tinnitus Since:
    05/2022
    Cause of Tinnitus:
    no idea, shit luck
    waiting for death since May 2022.