Recent content by ErikaS

@Zigs I would try it! Trileptal is basically the same just less side affect profile and I was told I don't have to get blood draws to check sodium levels or something. So you could start with the oxcarbazepine and If no relief, try the carbamazepine and go from there?

@grate_biff so I am doing some research now and may delay the Trileptal to give the Nurtec a try this weekend. @Nick47 what are your thoughts on this? Do you think it’s worth giving Nurtec a try?

@grate_biff anyway, after telling him about the Dr Hamid migraine protocol, he wants me to try a sample of Nurtec this weekend, which is a CGRP inhibitor. He knows both nortriptyline and Topamax and was wary about the use of them, especially together, just as my psych was..

@grate_biff interesting thing happened today though.. I had an ENT appointment and, thankfully, I have an ENT who is very sympathetic toward my condition and wants to try to help in any way, he even did intradermal lidocaine shots in my ear canal after I sent him studies..

@grate_biff i am actually taking 300mg at night and scheduled to be on this for 3 weeks then reassess! It’s safe to try- it did not worsen me when I took it before and things like Augmentin and Doxy spike me, even gabapentin spiked me I feel like..

I felt better about trying this anti-convulsant again at higher levels and for longer period due to very low side effect profile as compared to the two mentioned above. Will update as I take it.

I summarized the migraine protocol for him. Although he liked to comprehensive approach, he was wary about Nortriptyline and Topamax with their said success in the trials due to “these drugs being so frequently prescribed and used, if they really helped with these auditory symptoms, you would...

@Zigs those with facial pain and/or Hyperacusis as well as TTTS, and typewriter/morse code have had varying benefits. Wanted to mention that to you.

@Zigs I spoke with my psych today and I am going to try Trileptal again (oxcarbazepine). I only took it for very short time and at such low dose, and after reviewing it with my psych and looking it up I definitely want to try again..

@Zigs my most intrusive and severe sound came after wearing ear protection. Basic musician ear plugs that look like little screws. Well they “screwed” me with occlusion effect and too much for my nerves in my ears. I had this sound before and it went away, but it’s even more prominent now. Not...

Ugh sorry it’s being so inconsistent @Zigs ! It can do that though, the brain and its shifts day by day can cause the smallest shifts in what we hear sometimes, especially if our T is in a spike or unstable state.

@MindOverMatter If I could stop working tomorrow and tend to this for at least 2 months with mental and auditory rest, reset, and restore, I feel it could improve. From your spike experiences, do you think this still has a chance to calm down if I can make adjustments soon?

@MindOverMatter I am struggling. I have been in my current spike for 7 weeks now, and I am starting to fear that the longer it stays, and if I keep going to work every day and endure the stresses and sounds, the more likely this will become my new baseline...