Recent content by ErikaS

  1. ErikaS

    New University of Michigan Tinnitus Discovery — Signal Timing

    I can empathize with all the emotions around this topic, as well as some of the facts that have been shared. This coming September will mark three years since my life was altered in a way that I still deeply grieve. I miss the life I had before it happened. While my mental health and resilience...
  2. ErikaS

    @Samy Anything you feel that seemed to help yours go away? How long did you have them before...

    @Samy Anything you feel that seemed to help yours go away? How long did you have them before they subsided? I remember having them off and on 1-2 years ago, but they eventually went away for good and would only pop up mildly if I got sick. I don't recall them ever being this intrusive and chronic.
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  3. ErikaS

    @Samy I have been dealing with the vibrations since late March after exposure to loud music in a...

    @Samy I have been dealing with the vibrations since late March after exposure to loud music in a gym that was not well insulated. I had a period in June where they subsided, but then came back, specifically after a trip away in July...
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  4. ErikaS

    @Samy I did do the Botox injections, I am a little bummed because they had to "strictly follow"...

    @Samy I did do the Botox injections, I am a little bummed because they had to "strictly follow" the FDA approved protocol for migraine for the first injection, so none went into my jaw muscles or in other muscles around the ear areas. She said the next one they may be able to "tweak" it and put...
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  5. ErikaS

    Suicidal Two Months After Tinnitus Onset from a Child's Scream

    Hi @Annina, so sorry to hear about your tinnitus onset and worsening. For many of us, the first few months are the hardest. This is not only a complete shock to your auditory system, but also to your limbic and nervous systems. Research has shown that the limbic system, which is involved in...
  6. ErikaS

    Ultrasound-Guided Stellate Ganglion Block for the Treatment of Tinnitus

    Hey @gracepixie, I am in the USA, specifically in southwest Pennsylvania. He is located about 20 minutes from my home, recently opened his own pain management clinic, and was willing to listen to my story and try to help. Just an update following my earlier post: unfortunately, the occipital...
  7. ErikaS

    Hi @gracepixie , so sorry I didn’t comment earlier ! The Ubrevly did not seem to do anything...

    Hi @gracepixie , so sorry I didn’t comment earlier ! The Ubrevly did not seem to do anything, good or bad, when it came to my tinnitus sounds and reactivity. It did seem to help calm down inner ear vibrations, but that’s been inconsistent too.
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  8. ErikaS

    Such good news @Samy ! I just got a call yesterday that my insurance will cover Botox...

    Such good news @Samy ! I just got a call yesterday that my insurance will cover Botox injections, so they want to do it next week. Never had Botox injections before so I am nervous, just don’t want to experience a worsening with my reactive tinnitus ! I'm hoping it may calm my jaw muscles that I...
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  9. ErikaS

    Elon Musk’s Neuralink Looking to Treat Tinnitus

    I just listened to the presentation and read the subtitles. Honestly, it sounds like something from a Marvel movie. I am not saying I agree with their goals related to creating superhuman abilities or increasing the average human brain’s capacity, but I fully support and admire their efforts to...
  10. ErikaS

    Introducing Tinnitus Quest

    Just saw the post with William Shatner on Instagram. What a great voice and a big name to help raise awareness for Tinnitus Quest! A huge thank you to our Tinnitus Quest board and team for all the work and effort you are tirelessly putting in behind the scenes. ☺️💪👏
  11. ErikaS

    Wanted to provide an update on my TTTS/MEM vibrations in my right ear. After pretty much nonstop...

    Wanted to provide an update on my TTTS/MEM vibrations in my right ear. After pretty much nonstop for 12ish weeks, they just stopped about a week ago. The ONLY change? I took 2-3 doses of Ubrelvy (CGRP inhibitor) that the Neurologst wanted me to try to see if it would help with tinnitus and...
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  12. ErikaS

    Ultrasound-Guided Stellate Ganglion Block for the Treatment of Tinnitus

    After some tedious searching and making phone calls, I found a local doctor who is a board-certified neurologist with fellowship training in pain medicine and neurophysiology. He has a special interest in neurological disorders such as migraine, trigeminal neuralgia, and cluster headaches. He...
  13. ErikaS

    One Night Out with Earplugs Triggered a Severe Tinnitus Spike After Years of Stability

    @Strife_84, hey there, I do not come on the forum as often as I used to, but I just read through your thread and felt I had to share what I and a few others have experienced with in-ear protection. I am almost certain we are a rare and small group, so what I describe may not apply to everyone or...
  14. ErikaS

    Ultrasound-Guided Stellate Ganglion Block for the Treatment of Tinnitus

    I had been looking into this for its potential use in treating PTSD, as it may help reset the nervous system and break the constant fight or flight cycle. After reviewing this study, I feel even more encouraged to pursue it. I am currently in the process of finding well-reviewed practitioners in...
  15. ErikaS

    Acoustic Shock → Misdiagnosis → PPPD: 18 Months of Pain and Finally a Way Out

    @jack8092, thank you for sharing your story! This will definitely help someone along the way, and I am so happy for you that you finally found a doctor who was willing to think outside the box. Although, someone really should have thought to offer you an antidepressant well before the 18-month...
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