Wanted to provide an update on my TTTS/MEM vibrations in my right ear. After pretty much nonstop for 12ish weeks, they just stopped about a week ago. The ONLY change? I took 2-3 doses of Ubrelvy (CGRP inhibitor) that the Neurologst wanted me to try to see if it would help with tinnitus and...
After some tedious searching and making phone calls, I found a local doctor who is a board-certified neurologist with fellowship training in pain medicine and neurophysiology. He has a special interest in neurological disorders such as migraine, trigeminal neuralgia, and cluster headaches. He...
@Strife_84, hey there, I do not come on the forum as often as I used to, but I just read through your thread and felt I had to share what I and a few others have experienced with in-ear protection. I am almost certain we are a rare and small group, so what I describe may not apply to everyone or...
I had been looking into this for its potential use in treating PTSD, as it may help reset the nervous system and break the constant fight or flight cycle. After reviewing this study, I feel even more encouraged to pursue it. I am currently in the process of finding well-reviewed practitioners in...
@jack8092, thank you for sharing your story! This will definitely help someone along the way, and I am so happy for you that you finally found a doctor who was willing to think outside the box. Although, someone really should have thought to offer you an antidepressant well before the 18-month...
@MindOverMatter what also makes it tricky is if I’m around other ambient sound, it’s stops while the other sound is going on, so that gives me a nice mental break and boost. But after I stop talking, turn the car off, go into the quiet, go to bed, etc that’s where it really comes out and shows...
@MindOverMatter I then get upset and think "if I don't stop simple life things for a while, it will continue to be agitated and become permanent”. But also staying at home and limiting more simple things life has me fixated on it and increases depression because I’m isolating.
Thank you so much for the encouragement as always, @MindOverMatter ! This may be a rhetorical question, but did you find that progress over the 6 months was not linear? I find if I am stricter with staying home, in quiet, very much limiting “life” such as driving and noises it may start to calm...
@DimLeb My version of it is a pretty constant rumble/vibration in quiet, I can hear and physically feel it, like a car idling. It stops when another sound is heard, but comes back more aggravated once that sound goes away. Like if I talk, as I talk it stops, but once I stop talking it comes...
Six and a half weeks since my most severe bout of MEM/TTTS vibrations started in my right ear. It is so frustrating and mood crushing. Things that gave me relief or took it away in the past (chiropractor ear adjustments) don't seem to be working right now.
Hi @sandyknight so sorry I am only responding now. When it comes to distortions, they come and go, but don’t seem to stick around or bother me to the extent they used to. Something that I learned that really exacerbates my distortions was wearing in-ear protection, from foam to custom ear plugs...
Only seeing this now- so so happy for you Sammy! I myself have made QOL improvements I never thought I would. Still deal with flares here and there, but my mental game is so much better than when we were in the trenches over 2 years ago.
Thanks for the feedback as always @MindOverMatter .. To reframe it in my mind, I think of it like an eye twitch. I've gotten many of those over the years, haven't had one in a while but the worst being during stressful, run down times. Some cleared in a couple weeks, others a couple months. That...