I just thought I'd jump in and say that is interesting that Neuromod have US approval for Lenire now. I have been away from the thread for a few years. I was one of the early users who went from the US to get it in Europe.
I got the device and then was unable to return to Ireland for the...
That's interesting. When I picked up my device they told me the tongue tip was good for about 240 hours. Before I went there, I had read about the 180 hours here. I got right about six months out of the tip and then it quit working, so right around the 180 hour mark. I haven't really bothered...
I just thought I'd share this video from my local TV station here in the Minneapolis/St. Paul market. As most of you know Dr. Hubert Lim is an Associate Professor at the University of Minnesota as well as the Chief Scientific Officer at Neuromod.
He makes it sound more like a habituation...
Well it looks like I am taking a break from Lenire for a while. My tongue tip has died. I now wish I would have gotten a second one when I picked up the device, but I was going to purchase a spare on my first follow-up visit which is now indefinitely delay due to COVID-19. I am in the United...
Honestly, I think you have a chance. It seems that people with no hearing loss and hyperacusis respond better to the treatment. Thus far it hasn't done anything for me, but I have mild hearing loss and no hyperacusis. The only way you are going to really know if you try it since everyone...
I haven't posted for awhile, but thought I would do a quick update. I have been using Lenire for about 26 weeks now. I have been pretty much compliant for the entire time. I only missed four days a few weeks back while on a vacation. I was curious if taking a break would help, but it really...
I would say I'm in a different boat. I have been using PS1 for five months and haven't had any luck with it. I am hoping someday I can get it changed over to PS2 and have some results, though I hope for no worsening as I have heard from several here.
That is true. Neuromod uses the tongue, Minnesota uses the ear (though Lim in his research mentions the tongue as a good pathway as well), and Michigan uses the jaw and neck based on where you can modulate your tinnitus.
That is my understanding. They were pretty much ready to release when Neuromod brought on Lim. He mostly did presentations at various hearing/audiology events. I know Neuromod used some of Lim's earlier research to develop their device, but he wasn't involved at all. Maybe in Lenire 2.0. Of...
I haven't heard much from the Minnesota team for some time. I am on their mailing list for a possible next phase study, but I haven't heard much of anything since Hubert Lim started working with Neuromod. Last update around here was that they were looking for engineers to create a wearable...
Thanks @Autumnly, @PeterPan, @Markku, and @Hazel for all your hard work on this. I hope my data was helpful!
I was wondering if I could possibly see my TFI scores? I guess I would just be curious for myself where those scores were at at each milestone even though Lenire thus far hasn't...
That is what they found in the trials. Most people with hyperacusis were "super responders". Interestingly enough they told a few users they aren't seeing that correlation as much with the release now.
Thanks @PeterPan for all your work on this. You are truly and asset here at Tinnitus Talk. I can't wait to see the results and see how they correlate to Neuromod's numbers.
I am starting to think that there really is a placebo effect with their numbers and that is why perhaps we haven't seen...
It looks like he is still there.
LinkedIn
Chief Scientific Officer
Neuromod Devices
Sep 2017 – Present 2 years 9 months
Dublin, Ireland
But of interest it looks like he is also the Chief Scientific Officer at a Minneapolis company called Second Wave which states "SecondWave Systems is...