Recent content by Joe159

  1. J

    Frustrated in My Search for Proper Medical Professional Help

    And just to clarify. Im not looking for a miracle cure. Im new to tinnitus and I know its extremely complex. I know a tinnitus forum is not the place to get true medical advice. Just reaching out to members who may possibly be dealing with the same issues I have. And any input they may have has...
  2. J

    Frustrated in My Search for Proper Medical Professional Help

    Yes I understand. Just trying to navigate through and get a better understanding of all this craziness.
  3. J

    Frustrated in My Search for Proper Medical Professional Help

    Ive had cat scans on my ears to verify my hearing bones havent started to erode as a result of my eardrum adhered to the bones. Just on visual observation they can see the severe retraction of my eardrum wrapped around the hearing bones. Tinnitus is not very high pitch. Kind of mid-level pitch
  4. J

    Frustrated in My Search for Proper Medical Professional Help

    Yes. I have a history. Hearing tests showed slight and mild hearing loss. I know any type of hearing loss slight or severe can cause tinnitus to surface. I just dont understand how I can stop it completely. I could be wrong. But I would think tinnitus brought out by hearing loss could be alteted...
  5. J

    Looking for Pulsatile Tinnitus Specialist in the DC, MD, VA Area

    They threw alot of information at you in a group setting. Alot of info I already knew. I suppose it was helpful. I believe sometimes stage 1 is enough help for people and they dont return for stage 2. I guess it all depends on how severe your tinnitus is. For some that education is enough. For...
  6. J

    Frustrated in My Search for Proper Medical Professional Help

    Also, just got ear tubes placed in my ear. Im told hoping it will strengthen my eardrum. Ringing after the procedure. I suck in through my nose. Ringing stops. Lastly, if I relax and place my arms and lay them on the top of my head. The light weight of my arms on top of my head pushing...
  7. J

    Frustrated in My Search for Proper Medical Professional Help

    My eardrums are retracted deep and wrapped around my hearing bones. Very weak eardrum. Eustachian tube problems. Johns Hopkins felt I had patulous ET. Treated for that and took meds to irritate and close my ET. Months later it appears my ET is not patulous but traditional ET disorder. Early on...
  8. J

    Frustrated in My Search for Proper Medical Professional Help

    Frustrated trying to find the proper professional to help with my tinnitus. Keeping it as short as possible. My tinnitus is constant. However, I can stop it completely moving parts of my neck, head and jaw. Not alter the sound. Stopping it completely. MRI showed the TMJ is disk fine. I've...
  9. J

    Looking for Pulsatile Tinnitus Specialist in the DC, MD, VA Area

    https://www.umms.org/ummc/health-services/hearing-balance/services/tinnitus/tinnitus-treatment Ive attached a link. I think they're unique in that they seem to treat tinnitus in a very comprehensive way. I havent found any clinics like that. At least in my area. Stage 2 for instance. The...
  10. J

    Looking for Pulsatile Tinnitus Specialist in the DC, MD, VA Area

    I've been with Johns Hopkins for years. The otology/neurotology ENT Ive been seeing informed me that the University of MD right next door has an excellent tinnitus program geared towards tinnitus sufferers. She indicated they were the true experts in the area. They have a 3 stage program. I did...
  11. J

    Ten Months of Misery

    I did have fluid in the ears when I had the infection. Im certain at least once. But, I was also told by doctors I had fluid in the ears only to be told later by ENT(s) no fluid and I was misdiagnosed. ENT claimed due to alot of scarring, and other visible issues with my eardrum the doctors...
  12. J

    Ten Months of Misery

    Don't know where to begin. In the beginning started out with mild ringing. Then came prolonged intense anxiety at the thought of having this forever. After seeing so many doctors and ENT(s), I was eventually told I may have a mild case of patulous eustachian tube dysfunction. And, other...