Recent content by Leoglobe

@Ed209 the toxic people are those that are happy with the statu quo and there are heaps of them. A quick example: I am on another group and one of the admins is appreciated because he has good manners, excellent grammar and the kind of leader personality that people like. What surprised me with...

@Jason37 scary the risk of substantial hearing loss and it is what they are supposed to fix. I am so confused.

@Ed209 I think that is a good question but we don't know exactly how it will work. In the 24min video that I think you watched, they say that they can regrow the cells with the right shape and right spot which is crucial in the cochlea. PCA sounds much better than gene therapy for this by the...

If you have a family member that could give quite a lot of money for a cure I think as well that you could get in touch with the admins of this great forum, @Markku and @Steve, that Autumnly mentioned previously. @JohnAdams input is also very interesting and so I would like to put him in the...

@JohnAdams So FX-322 is not going to regenerate the vestibular cells right? Those don't regenerate by themselves either? FX-322 will only repopulate the cochlea with inner and outer hair cells and synapses right? I think that acoustic trauma can damage vestibular cells as well so that would...

I wonder if botox near/ in the ear would help with ear pain and spasms. Any feedback/ ideas?

What is pt? And who prescribed you with the gabapentin?

We are more than ready ;) One thing that is still unclear to me: if you have no hearing loss within the normal range, but for example on at 14 kHz you have profound hearing loss like minus 80 or 90 decibels and that's where you have your tinnitus, Frequency Therapeutics won't be able to create...

Hey @dpdx as you have some hearing loss in the current audiograms, you actually could volunteer for Frequency Therapeutics for the next round, which takes place in 2019. It gives you a sort of thing on your schedule instead of getting super depressed each day. In 2019 either you feel better...

The thing that I don't like with gene therapy is that it activates a gene but this doesn’t take into account all the other genes of the inner ear as knowing all the genes of the cochlea would take forever. If you activate a gene that produce hair cells, it will produce hair cells all the time...

That you can get more empathy and kindness from people on a forum than from your family members.