Recent content by Lvc595

I have never heard of a prosthesis that uses titanium and can you tell me where you read that it had slipped? I would really like to know more about that. My prosthesis is made of my bone and plastic. How old was the other surgery? Do you know what doctor did that surgery? I appreciate any info...

Unfortunately you have to first find a doctor that will look for all of these reasons. It could be several different doctors. It's been a frustrating journey for me.

If you live in California please let me know what doctors you have screen that understand that a Pulsatile Tinnitus is not Tinnitus. If you are in Northern California it would be nice to connect.

I am looking for other Whooshers - people with Pulsatile Tinnitus who live in California- especially Northern California. Would love to know about which doctors you have seen and which tests you have taken. If you live in the Bay Area it would be nice to connect.

I had the dehiscience repaired in August and still hear the pulsating so it did not work for me as it did others

Karen, where do you live? Have you seen a neuro otologist or inertventional radiologist? I was told I needed one but am really to scared.

Mine is subjective. I wish they could find a cure for this. The docs I have been going to can't pin down the reason. What doctors did you see Karen and have you had the surgery yet?

Did you have it to find the cause of Pulsatile Tinnitus? Did they find anything? How were you during the procedure?

Do you know of a doctor that can help ? Please let me know. Most think I have Tinnitus but it's not. Would love to hear from you.

Hi Karen. I have PT. Do you mean that all PT is vascular? I can tell you after reading the Whooshers site not many are cured. Are you circulating your scans? I am trying to find other PT suffers in California. I'd like to know what doctors they have scene. Also can you tell me more about the...

By the way, I went to bed one night and started to hear the sounds. No illness, headaches, dizziness- nothing. I am having a difficult time. I feel like I was cursed and all I can think about it pre PT. Sounds at night and sometimes during the day but I am having trouble coping.

Where is the full story? Please post.

I have had this awful sound for the last 8 months. I have had MRI,MRA,CTA,Doppler , blood tests. They did find dehiscience but not sure what I can do abo.ut it. Anyone know?