Recent content by mandyc

So, do you think Effexor was the reason it improved? I am scared to try any medication, since they can all make it worse.

Thank you for sharing those stories. They have been a huge help and are keeping me away from a dark place. I have hyperacusis and reactive tinnitus, which have been getting worse since they first appeared on April 20. It is helpful to know that others have been in a state as desperate as I am...

Hi delta784, just wondering how youre doing now. Im looking for some hope to get me through these bad times. My tinnitus is so extreme i just want to jump.off something high and die too. I know this would hurt my boyfriend and mum incredibly but i dont know what else to do. It is relentless...

Sorry to hear you’re struggling too. I’ve never tried Mirtazapine. I took 2 mg of Melatonin two nights ago and managed to get at least 4 hours of sleep. But last night, without it, I was back to only 2 hours again.

I hear you. I'm sorry to hear you took an overdose. I get how you feel. My reactive tinnitus is triggered by traffic noise, wind, bird calls, and aeroplanes flying overhead, and you're right, there's no escape or peace from it. I also experience a burning sensation on my scalp, and I struggle...

How are you doing now, @lostb1t? Mine has suddenly gotten much, much worse. It’s deafening now. I can’t sleep because of it, and I can’t function at all. I have a burning pain all over my scalp, and any stimulation, like watching a TV show or doing computer work, brings on a severe headache...

I’m also housebound now. I can’t believe how loud the world is. Even the wind and rain feel overwhelming. There are loads of airplanes flying over our house. I never noticed them before, but now they all sound incredibly loud, just like the birds. And now I’m hardly getting any sleep. I’m...

I feel that way, too. I know my depression is coming from the lack of sleep. I’ve gone over 48 hours without any rest. I’ve been prescribed Zopiclone, which does work, but only if I use it very occasionally. I’m thinking about starting Low Dose Naltrexone (LDN), but I’m really scared it will...

Hi Marx, just wondering how you are now. Did you take ldn and how did you get on. I have it in the fridge but I'm scared to take it. My tinnitus is very bad and I'm hardly sleeping at all

I was on Venlafaxine years ago, and it didn’t give me tinnitus. Withdrawing from it, however, was a terrible experience, but it still didn’t cause tinnitus. I stopped taking it because it wasn’t helping. Years later, after a pharmacogenetic test, I found out that I couldn’t metabolize it and...

I’m exactly the same: reactive tinnitus and hyperacusis. Mine started on April 20th. I just woke up one day with screaming tinnitus. I’m trying to manage by habituating and spending lots of time outside in nature, which seems to help, as long as it’s not too windy. Wind can make things worse...

I totally get what you’re going through. I’m in the same place right now. My brain won’t relax enough to let me sleep, so I’m getting by on about one hour a night. I have hyperacusis and reactive tinnitus. I just woke up on April 20th with screaming tinnitus in my left ear, which then spread...

Has anyone in this chat continued using LDN and experienced good results with it? I started at 0.5, and I am currently in a bad spike that has lasted for several hours. I am unsure whether to continue or not.