Recent content by Markku

Yes, it's something we've talked about. An endowment would be a great way to create steady, long-term funding for research. The challenge is that it only really makes sense once there's a big enough starting amount. For example, a $1 million fund earning around 4 to 5 percent per year would...

For one thing, no one has applied to research this area. Even if we wanted a specific topic to be explored, we cannot compel researchers to pursue it. Our entire process depends on researchers taking the initiative to submit grant applications to us. (That said, we certainly hope that through...

Thanks for the excellent overview and outlook. We did some prep yesterday, and in just a couple of hours from now, it’s go time. When you join the Crowdcast interface for the Q&A, you can also add your own questions and upvote those submitted by others. https://www.crowdcast.io/c/auricle

I want to make it absolutely clear, if it was not already, that the positivity and excitement we have expressed for this Q&A relate only to the increased transparency and the direct engagement with the patient community, which many have been hoping for. Our comments should not be interpreted as...

They never shut down communication with us behind the scenes. Their decision not to engage with patients publicly at that time has no relevance to the October Q&A and its contents. This Q&A does represent a significant shift in their approach. It marks a meaningful change in transparency from...

No worries about that. We’re already looped in, so I can confidently say so. 🙂

On the one hand, you’re right; people sending Susan & Auricle accusatory or threatening emails has undoubtedly had a negative impact. We're not talking about innocent emails here congratulating them on their efforts, but rather self-entitled and vitriolic ones (or obsessive, like hundreds of...

Yes, it will be recorded and published afterwards. In the original registration email you received after entering your details, there was a link in the calendar event that you can use to join. One hour before the start of the Q&A another email will be sent which has a "Join Webinar" button and...

Friday, August 30th, 8 am Pacific, 5 pm CET. Once we have the registration procedure ready, we'll announce it here and put up a link! This should happen in the next few days.

Bad news: Auricle has decided not to release any statement at this time. We're disappointed, obviously, as we were expecting to be able to give you some more insight. But they want to stick to their strategy of focusing on their mission rather than engaging with the public. Essentially, their...

After Matteo de Nora's initial donation to TRI ran dry, they were no longer able to fund research. They haven't funded research in a considerable time now. Nowadays, TRI's most visible activity is the annual TRI conference (which is also not actually organized by TRI, but rather by local...