@Zigs Now I can handle all my children in one room again at normal conversation levels. Took roughly two years! Lots of ups and downs. As for the beach house it definitely helped during my onset! Any place you can find that relaxes you well help the mental aspect (:
@Zigs well during my worst days I couldn’t help my partner with the kids unfortunately as anything above whisper level really bothered my ears it took several months to builds small tolerance and eventually I built more and more.
Also I was 24/7 living in my closet with muffs and eventually my shit calmed down enough for me too tolerate some sounds and I stopped living in my closet worst year of my fukin life
As the loudness H got better so did everything else that’s only thing I can say. The reactive T bullshit goes hand in hand with loudness H. It’s some midsole ear bullshit. I still have it all I just learned what my limits are @Karolina
Yup I had exactly everything you listed god dam it sucked exactly everything ttts, loudness H, Dysacusis palinacousis was hearing out of this world tones (alienated ones) I hated one the most was the wine glass one @Karolina
What you’re describing definitely sounds like a setback cause that’s how mine works also. Barely wake up and it’s already blaring away. Anyways hang in there I don’t get on much but I frequently log in to see how everyone is doing. We will get through this <3
"Before this setback, I was driving all over the city with minimal reactivity. I was also able to tolerate quiet places. The kicker is, I was inside my house when I heard someone honking their loud horn up front. Additionally, the landscaping people didn't give a warning; they just started using...
I Seriously, I hate this condition with a passion. I told my partner that if I just had regular tinnitus, I'd be home free because I could overlap it with music or ambient noise. Reactive tinnitus acts like a brat; if it can't get its way, it throws a fussy tantrum."
"Hi @ErikaS, it's always good hearing from you! I feel like we understand how difficult this condition is, especially reactive tinnitus. I'm also still in a spike. It changes now every millisecond; I can be in one room and walk to another, and the reactivity will instantly change."
Sorry to hear this I’m also in a spike 1 days ago I got hit with 50 seconds of a leaf blower/lawn mower. Then a few minutes after that someone pulled next to my house and honked the car horn 45 seconds. Took 24hrs to notice the reactivity is haywire
@Thizzle thanks for asking man I appreciate it I’m doing okay for now after being home bound for two years I’m driving daily now and going places there aren’t loud. Healing at a snails pace