Sammy0225
Mood:
Last Activity:
May 12, 2024
Joined:
Sep 2, 2022
Messages:
58
Trophy Points:
271
Bookmarks:
1

Post Ratings

Received: Given:
Like 1,855 2,052
Agree 50 54
Helpful 4 7
Hug 55 141
Good Question 3 7
Genius 0 5
Funny 10 7
Winner 12 14
Informative 4 10
Friendly 7 19
Useful 0 1
Optimistic 0 1
Creative 0 0
Gender:
Male
Location:
Texas
Occupation:
Insurance adjuster

Share This Page

Sammy0225

Member, Male, from Texas

Able to drive my car with no reactivity issues. Thank god. Took 2yrs. Hope yall are ok May 5, 2024

Sammy0225 was last seen:
May 12, 2024
    1. Kiro
      Kiro
      Hey, I’m 3 months into T that has developed into reactive/spiking from conversations-level volume in the past 2-3 weeks. How did you go about with your exposure therapy in the beginning? If I even put on white noise on my phone with the volume 1 button press above mute is enough to spike me.
    2. Sammy0225
      Sammy0225
      Able to drive my car with no reactivity issues. Thank god. Took 2yrs. Hope yall are ok
      1. Anomalous, ErikaS, tpj and 6 others like this.
      2. gameover
        gameover
        Nice. Did you ever have nox?
        May 6, 2024
        Sammy0225 likes this.
      3. Sammy0225
        Sammy0225
        @gameover how have you been? In the beginning I believe I was pushing into nox deep stabbing pains.
        May 7, 2024
        gameover likes this.
      4. gameover
        gameover
        I've been doing somewhat better/stable, but have terrible setback now, and increased nox and lower tolerance to speech via speakers which I did not have problems with before. Sucks.
        May 7, 2024
    3. Sammy0225
      Sammy0225
      Reactive Tinnitus needs to be tackled with natural white noise and very carefully
      1. gameover and Jupiterman like this.
      2. View previous comments...
      3. gameover
        gameover
        Why white noise?
        May 1, 2024
      4. Sammy0225
        Sammy0225
        Sorry the late reply guys I’m
        Hardly here @gameover and @Jupiterman. I use the water faucet and things like the fan I started low and gradually built up more over time. The reactivity slowly started adapting to it.
        May 5, 2024
        gameover and Jupiterman like this.
      5. Sammy0225
        Sammy0225
        I still have reactive t but it’s not easily triggered anymore unless I hear a lawn mower or leaf blower then I get a flare up for 24-48hrs
        May 5, 2024
        ErikaS, gameover and Jupiterman like this.
    4. Andrew40
      Andrew40
      Hello! It was nice to read that you are feeling better..Did you actually have reactive tinnitus, were you able to go outside during difficult times? What helped you the most?
      1. Sammy0225
        Sammy0225
        Resting my ears in quiet environments and slowly exposing. Sorry late response I hardly visit as often anymore
        Apr 30, 2024
        gameover and Andrew40 like this.
    5. Sammy0225
      Sammy0225
      Diagnosed w/occipital neuralgia. Covid kick started causing reactive T and light sensitivity. Neck stiffness and pain. Hope everyone is ok
      1. View previous comments...
      2. cjbhab
        cjbhab
        can you tell more about your symptoms? when i google online everything they say describes me. so much pain on my left side of head , ear, behind eye.
        Mar 27, 2024
        gameover likes this.
      3. ErikaS
        ErikaS
        I was hoping you were keeping on the mend and doing ok! I am so sorry to hear this. What can they do for the ON? Was it from a recent bout of Covid? Are you back in ear protection? Hugs <3
        Mar 27, 2024
        gameover and tpj like this.
      4. Tryn2BHopeful
        Tryn2BHopeful
        Occipital Neuralgia can cause T, I think they confirm it my doing a lidocaine block on the nerve and if the pain stops then its the cause.
        Mar 27, 2024
    6. Sammy0225
      Sammy0225
      I’m out of here guys. I feel like I shared everything possible that helped. Wish y’all the best. Take care
      1. 4Grace, SamRosemary, stacey and 4 others like this.
      2. ErikaS
        ErikaS
        I will never forget your friendship and support through my darkest days. Drop a hi on my feed if/when you ever come back. :)
        Jan 16, 2024
        Sammy0225 and Jackson Brady like this.
      3. Sammy0225
        Sammy0225
        @ErikaS hi love I popped up to see how y’all are doing I’m glad I helped you And you also helped me. I’m forever grateful for your friendship here on TT. Currently I’m okay. No big changes reactive tinnitus still hanging around I’m taking it day by day. All my best

        -Sam
        Feb 7, 2024
        ErikaS likes this.
    7. Sammy0225
      Sammy0225
      Still fighting. I’ve had several and I mean SEVERAL loud exposures the past 4 months
    8. Sammy0225
      Sammy0225
      I’m alive.living life. Several loud exposures. Just don’t give a shît about em anymore. Kids are keeping me busy
      1. View previous comments...
      2. Sammy0225
        Sammy0225
        @ErikaS my heart is always with you my friend I’m glad to hear you’re making progress with the mental aspect I would say just keep at it and remember we are gonna have good and bad days but we will always take it one day at a time <3
        Dec 19, 2023
      3. Sammy0225
        Sammy0225
        @kingsfan same here my friend!! The government did a signal test late night on the tv which unfortunately blasted a loud sound I covered my ears quickly but unfortunately I’m in a setback because of it. My T is really loud right now but as always I’ll fight through it! It’s not going to beat me
        Dec 19, 2023
      4. kingsfan
        kingsfan
        @Sammy0225 Oh damn I'm sorry to hear that. I actually got hit with an 80dBa tone from my dehumidifier a few hours after I replied here.
        Dec 19, 2023
    9. SharonBell
      SharonBell
      Who has tinnitus was caused from noise and are your hair cells damaged and do you have hearing loss? They said. Mine is from noise, I have bad hearing loss, but mine isn’t in the speech frequency like needing a hearing aid. Mine is I. The extended high frequency when I got tested at tinnitus clinic.
      1. Forever hopeful
        Forever hopeful
        @SharonBell I am not sure how old you are but it is expected that we lose higher frequencies as we age often by the time enter your 30s. There is much debate about this as a cause of T since those frequencies are not frequently part of our environment so it begs the question as to why the brain would seek to replace the missing frequencies if we are not exposed to them often.
        Nov 22, 2023
    10. Sammy0225
      Sammy0225
      I’ve had a few weeks with low T and H so it’s possible guys I hope everyone the very best <3
      1. 4Grace, gameover, ErikaS and 6 others like this.
      2. Tryn2BHopeful
        Tryn2BHopeful
        Seems like the sound therapy has been helping. *knock on wood
        Nov 20, 2023
        4Grace, gameover and Sammy0225 like this.
      3. ErikaS
        ErikaS
        Always cheering for you friend !
        Nov 25, 2023
        4Grace likes this.
    11. SharonBell
      SharonBell
      Sammy please don’t forget about me to explain the hyperacusis please.That way I will know if I have that also. Isn’t their other ones or something else like hyperacusis seems like I saw it posted, but can’t remember the name.
      1. Sammy0225 likes this.
      2. Sammy0225
        Sammy0225
        @SharonBell Sure,Hyperacusis is a condition in which the ears become highly sensitive to sound. Personally, I have experienced the onset of hyperacusis, and it has had a significant impact on my daily life. Simple things like the clanking of metal utensils or the sound of coins hitting the floor became extremely discomforting to hear, almost as if I had been exposed to a loud gunshot.
        Nov 20, 2023
        4Grace and SharonBell like this.
      3. Sammy0225
        Sammy0225
        I noticed that higher-frequency sounds tended to agitate me even more. The sensitivity was so intense that I couldn't even tolerate running a fan on its lowest setting. If you're experiencing any of these symptoms, it's possible that you may be dealing with hyperacusis.
        Nov 20, 2023
        4Grace and Tryn2BHopeful like this.
    12. Sammy0225
      Sammy0225
      At this current point and time reactivity, is behaving and my (H) LDL is reading about 88DB. I’ll keep posted on new developments
      1. Tryn2BHopeful likes this.
      2. Joshua Macleod
        Joshua Macleod
        Fantastic to hear, man. Colour me curious, how do you assess your LDL without exposing yourself to those levels? All the best.
        Nov 16, 2023
        Sammy0225 likes this.
      3. Sammy0225
        Sammy0225
        @Joshua Macleod hi bud! So I downloaded a Decibel reader on my phone I reset the highest (reading) to zero and begin quietly saying the word “test” then I say it gradually louder until I usually hit a 88DB reading I’m sure I can hit a 90DB reading but I don’t wanna risk it just yet
        Nov 16, 2023
        Joshua Macleod likes this.
    13. Sammy0225
      Sammy0225
      No H today ..hardly any T … and 0% reactivity.. sleeping 9hrs fan on full blast white noise (bed side)
      1. gameover, ErikaS, cjbhab and 7 others like this.
      2. View previous comments...
      3. Sammy0225
        Sammy0225
        So far so good. Running the fan on high running the AC unit 9ft away on low “cool” And the tv at 5 volume. @ErikaS at some point we have to try something love <3
        Nov 16, 2023
        ErikaS likes this.
      4. Stayinghopeful
        Stayinghopeful
        So happy for you!
        Nov 16, 2023
        Sammy0225 likes this.
      5. 4Grace
        4Grace
        This is incredible news. Sounds like a miracle but came from a lot of hard work. I am so happy for you. What a dream. :)
        Nov 18, 2023
        gameover likes this.
    14. Sammy0225
      Sammy0225
      White noise has built my H tolerance. It’s taking more noise to spike my T. Keeping close tabs on it.
      1. gameover, 4Grace and tpj like this.
      2. View previous comments...
      3. ErikaS
        ErikaS
        Those next mornings, my T seems quieter in the AM, quieter during the day, and maybe not as reactive. Idk. Maybe we are at a point in our recovery where we are ready for the constant low level background noise.
        Nov 5, 2023
        Sammy0225 likes this.
      4. Sammy0225
        Sammy0225
        @ErikaS i would say stick with the baseboard heater. I noticed with the fan I’m using I did spike significantly the first few weeks but eventually I broke through a barrier where the reactivity wasn’t so reactive. Even if it takes 2yrs of white noise I’m gonna keep at it.
        Nov 6, 2023
        ErikaS likes this.
      5. Sammy0225
        Sammy0225
        Sitting in silence only got me so far; I think pushing back into sound or some type of stimulation to the ears is warranted for recovery. I know lots people are against sound therapy but I’m fed the f#ck up. And it’s doing something cause I’m slowly getting better
        Nov 6, 2023
    15. ErikaS
      ErikaS
      How is it going today? PS love your profile pic, so so cute!
      1. tpj and Strawberryblonde like this.
      2. View previous comments...
      3. ErikaS
        ErikaS
        I am experiencing an awful worsening myself. It's like I have surround sound of all sounds happening in my brain with worsening reactivity. I wish I could try lidocaine into the inner ear just to see if it would work like it does for some people IV. I know its only temporary but we need SOMETHING.
        Nov 2, 2023
        SamRosemary and Sammy0225 like this.
      4. Sammy0225
        Sammy0225
        @ErikaS you’re one of the strongest persons I know. Shit at this point I’m open to try that also. We’ve both missed out on so much the last 1.5yrs.. always trying to stay positive but there’s only so much we can take
        Nov 3, 2023
      5. SamRosemary
        SamRosemary
        @ErikaS @Sammy0225 I’m sorry guys. Seems to be bad times with this shit for a lot of us. We’ve had better days tho so we will get back there.
        Nov 11, 2023
    16. Sammy0225
      Sammy0225
      Last nights gathering went smoothly. A few episodes of PTSD. I’m still working on it.
      1. Strawberryblonde
        Strawberryblonde
        It's a nice feeling of normality when in reality doing something like that shouldn't cause worry. How T changes things. Hope you had fun :)
        Oct 28, 2023
        4Grace, gameover and Sammy0225 like this.
    17. 4Grace
      4Grace
      @Sammy0225 i am sooo sorry to bother you. Yesterday I felt great talking to you. Like I was on my way. Honest. Today one of my worst days. What a swing. Every time I try to live just a little I get destroyed. I feel like I need to go hermit mode but cannot mentally manage that ..
      1. Sammy0225 likes this.
      2. View previous comments...
      3. Sammy0225
        Sammy0225
        @4Grace thank you my friend but please understand I never had the luxury of being able to mask my Tinnitus after 320 days I think my brain just said “ fuck it” And got brief moments of being able to tune it out. Then grew more from there. You’ll get there don’t give up. I sleep like a baby with no masking so it’s possible
        Oct 28, 2023
        gameover and SarahMLFlemmer like this.
      4. 4Grace
        4Grace
        @Sammy0225 - thank you for your kind words and support. I think that’s the problem. I have had to mask since day one. Even when I went for a walk outside. It’s drives me insane. Now it’s too loud for masking.
        Oct 29, 2023
        gameover likes this.
      5. ErikaS
        ErikaS
        Yes, my SSHL was in ultra high frequencies in my right ear from an ear infection, so unfortunately, I always have some kind ultra high pitch going on, and it’s reactive. Then I have other awful sounds that are down in 1000-3000 Hz that make no sense because technically I have no hearing loss there.
        Oct 30, 2023
    18. 4Grace
      4Grace
      @sammy0025 - what an incredible story. You are a true inspiration to me. Sometimes I get a boost of confidence from you guys. Is your T better then those bad days or do you just deal with it better?
      1. Sammy0225
        Sammy0225
        "Thank you, @4Grace Your words mean a lot to me! I overlooked your story. I want to emphasize that there is hope. During my darkest moments, I was subjected to a custom air-horn without any protection. At that point, I thought to myself, …'This is the end…Surprisingly, even that didn't cause permanent damage. So, please, keep fighting. I like to believe that it's a test from Jesus Christ
        Oct 27, 2023
        4Grace, gameover and Strawberryblonde like this.
      2. Sammy0225
        Sammy0225
        @4Grace There are days, like last night, when I experience a distressing 10 out of 10 ultra-frequency dog whistle. However, over the past 15 months, I have learned to tune it out most of the time and still sleep peacefully. Months ago, I made a firm decision that suicide was not an option, and since then, the power it held over me has diminished.
        Oct 27, 2023
        SharonBell, gameover, 4Grace and 2 others like this.
      3. Sammy0225
        Sammy0225
        And then there are days like today when it's non-existent. So, I embrace the good along with the bad. (:

        Headed to a Halloween get together in a bit a year ago I was living in my restroom. I hope this brings you hope
        Oct 27, 2023
        4Grace, tpj, gameover and 1 other person like this.
    19. Sammy0225
      Sammy0225
      I’m gonna leave tips on what I did to heal some of my symptoms Incase I disappear one day and someone needs info. I’ll start with (TTTS)
      1. View previous comments...
      2. Sammy0225
        Sammy0225
        So, the impact of these conditions can vary depending on various factors. I'm grateful that I was able to identify the root cause of my own experiences, and I sincerely wish the very best for anyone who is suffering from this condition. It can be incredibly cruel and unforgiving."
        Oct 28, 2023
        gameover and Strawberryblonde like this.
      3. DimLeb
        DimLeb
        @RunningMan Yeah, MEM episodes thankfully stop after some time. The first few months for me, there were times I had it for 4-7 hours - 1-2 times a week. But now it usually happens for 1-2 hours 3-5 times a week. It also shifted from hiccups to yawning triggering it. I don't know if it's an improvement. This crap is a mystery. (We had talked about this in another thread btw)
        Oct 28, 2023
        RunningMan likes this.
      4. RunningMan
        RunningMan
        @DimLeb Indeed, I remembered that when seeing your earlier comments. Since then, the spontaneous thumps seem a little more frequent, but don't last as long, maybe minutes, I try to focus on something else. They do seem triggered sometimes by muscular movements of head or jaw at any time of day, except I don't think they've ever started during exercise (with or w/o earplugs) or watching TV (with sound).
        Oct 28, 2023
        gameover likes this.
    20. Sammy0225
      Sammy0225
      Woke up with no tinnitus thought I was dreaming :0 it’s back now but man that was nice
      1. View previous comments...
      2. Sammy0225
        Sammy0225
        @ErikaS going on 2 weeks! And tonight I’m headed to a Halloween get together (no more then 8 ppl ) so I’ll let you know how that goes ;p
        Oct 27, 2023
        4Grace, Strawberryblonde and ErikaS like this.
      3. SarahMLFlemmer
        Oct 29, 2023
      4. 4Grace
        4Grace
        @sammy0025 ear protection at party? How did it go?
        Oct 29, 2023
    21. Sammy0225
      Sammy0225
      Incredibly low tinnitus today. Such a rare thing to experience. If only every day was like this
      1. gameover, 4Grace, ErikaS and 6 others like this.
      2. View previous comments...
      3. Tryn2BHopeful
        Tryn2BHopeful
        So oddly some of my best T days are the day after I go to my sons football games on Friday night. Its noisy as frick, I wish I knew what it was doing.
        Oct 27, 2023
        Sammy0225 likes this.
      4. Sammy0225
        Sammy0225
        @Tryn2BHopeful yes mine was actually some what the same. I also wish cause then habuitaion could be 100% accomplished more easily
        Oct 27, 2023
      5. 4Grace
        4Grace
        @Tryn2BHopeful - some of my major noise traumas improved my T for the better. I don’t think that’s the case anymore.
        Nov 2, 2023
    22. Sammy0225
      Sammy0225
      13khz this shit is piercingly loud today. Getting over a viral infection
      1. SarahMLFlemmer
        Oct 15, 2023
        Strawberryblonde likes this.
      2. ErikaS
        ErikaS
        Ultra high frequency sounds are the WORST. Mine has been going as high as 15-16k Hz.
        Oct 18, 2023
        Strawberryblonde and Sammy0225 like this.
      3. Sammy0225
        Sammy0225
        @ErikaS i feel your pain. My baseline sits around 13khz with a spike I’m assuming 15-16Khz. This shit is horrendous
        Oct 18, 2023
        Strawberryblonde likes this.
    23. Sammy0225
      Sammy0225
      Spike sub-sided. Able to tolerate TV,AC, Fan and my kids all in one room again. Just tired..so damn tired (15 months)
      1. Juliane, ErikaS, stacey and 1 other person like this.
      2. ErikaS
        ErikaS
        Glad it subsided, but the exhaustion is so understood. Praying for spike free days/months ahead.
        Oct 15, 2023
        Sammy0225 likes this.
    24. Sammy0225
      Sammy0225
      Can’t hit the lotto, but developed a rare form of Tinnitus. Ain’t that a bitch
      1. ErikaS
        ErikaS
        1-3 years hopefully this will all be behind for many of us. Praying for that every day.
        Sep 24, 2023
    25. Sammy0225
      Sammy0225
      Wish I had better news; going back into Public places has re-activated the static electricity ⚡️hoping it passes * sizzling bacon*
      1. 4Grace, Juliane, SamRosemary and 4 others like this.
      2. View previous comments...
      3. Strawberryblonde
        Strawberryblonde
        @Sammy0225 hope you manage to get out of the bed soon. Sending positivity your way :)
        Sep 19, 2023
        4Grace and Sammy0225 like this.
      4. Sammy0225
        Sammy0225
        @Strawberryblonde thank you love I’m trying my best to push through this spike. The past few days have been electric sand storms piercing my ears at an ultra high frequency. I can only assume I’m experiencing a setback. This type of reactivity is the definition of debilitating @ErikaS I’ve beaten it once, I’m hoping i can bounce back again
        Sep 19, 2023
      5. SamRosemary
        SamRosemary
        I feel you. Going through similar atm.
        Sep 19, 2023
    26. Sammy0225
      Sammy0225
      My right ear is 100% healed from H. My left ear is bouncing between 85% ~ 95%. Another year should add 5%
      1. View previous comments...
      2. Bimmerboy
        Bimmerboy
        @Sammy0225 thanks for replying I've got the same aching pain now which goes into my jaw
        Sep 12, 2023
      3. PennyCat
        PennyCat
        Hey @Sammy0225 is your TTTS still pretty much gone? I forget if you’ve answered this or not but how long did it take for that to happen? Mine is better than it used to be but comes back for a few days here and there for some reason.
        Sep 24, 2023
        Sammy0225 and SarahMLFlemmer like this.
      4. Sammy0225
        Sammy0225
        @PennyCat hi Hun! Yes it took 8-9 months but it’s currently gone. I have days where it comes back but it never last more then 2-3 days
        Sep 24, 2023
        Bimmerboy and PennyCat like this.
    27. gameover
      gameover
      How are you doing man?
      1. Joe Cuber and sakrt like this.
      2. View previous comments...
      3. gameover
        gameover
        I tend to agree. While my T is bad I feel I can deal with it better than with loudness H. But I don't know how to help H. Overprotecting was making it worse. I do not overprotect, get plenty sound exposure at normal level (while overall living quiet life), yet H is getting worse it seems.
        Sep 1, 2023
      4. Sammy0225
        Sammy0225
        Same here man.
        I didn’t see any significant improvements till about14 months into having loudness H. What a bullshit condition. And yea over protecting didn’t do me any favors also. I didn’t start seeing progress till I slowly started exposing back into sound
        Sep 3, 2023
        gameover likes this.
      5. gameover
        gameover
        My condition is really weird, I've been exposing continuously since late May at least, while avoiding any traumas, yet while I saw some transient improvements, I am worse H wise. Not at the worst peak wise, but I think worse average wise.
        Sep 3, 2023
    28. Sammy0225
      Sammy0225
      :3 hello everyone! Just checking in hoping everyone is doing okay
      1. gameover, ErikaS, PennyCat and 7 others like this.
      2. View previous comments...
      3. Strawberryblonde
        Strawberryblonde
        Today i'm not to bad but maybe because its a friday and i'm having a few beers! :P Hope that limbic system of yours is behaving?? @Sammy0225
        Aug 11, 2023
        Sammy0225 and tpj like this.
      4. Sammy0225
        Sammy0225
        @Joe Cuber hey bud! Good to hear from you!!

        Yea so definitely still cycling during July I was on 5 quiet days 1 mild day and 1 loud day! How’s yours been??
        Aug 12, 2023
      5. ErikaS
        ErikaS
        Glad to hear my friend!!
        Aug 19, 2023
        Sammy0225 likes this.
    29. Strawberryblonde
      Strawberryblonde
      I know its only been a month off here for you, but it was always great to chat! :)
      1. SarahMLFlemmer and Sammy0225 like this.
      2. Sammy0225
        Sammy0225
        Hi love how you been? Yea it seemed longer lol haha July was a really good month for me :)
        Aug 11, 2023
        Strawberryblonde likes this.
      3. Strawberryblonde
        Strawberryblonde
        Good to hear it @Sammy0225 !! Have you been managing a lot better?
        Mine is up and down and generally just that annoying person you just can't shake off lol had a nice holiday at the end of last month in which I didn't even think of my T, I need that again:)
        Aug 12, 2023
        Sammy0225 likes this.
    30. Sammy0225
      Sammy0225
      I’m doing really well! I plan on this being My last goodbyes if progress stays uphill. As predicted the limbic system is the final step!
      1. View previous comments...
      2. MindOverMatter
        MindOverMatter
        Great to hear @Sammy0225 Creating new positive neural pathways is indeed the way forward in my opinion. This has worked for me as well throughout my journey. There are many ways to go around this, and it doesn't necessarily have to be the more "complex" routes like DNRS or EMDR - but both of those are optional routes.
        Jul 6, 2023
        Eleanor89, Joe Cuber and Wrfortiscue like this.
      3. Charburchar
        Charburchar
        Great stuff mate, happy for you. Just remember to stay vigilant!
        Jul 7, 2023
      4. stacey
        stacey
        Does anyone know if he’s still doing okay?
        Aug 2, 2023
  • Loading...
  • Loading...
  • About

    Gender:
    Male
    Location:
    Texas
    Occupation:
    Insurance adjuster
    Tinnitus Since:
    06/2022
    Cause of Tinnitus:
    COVID-19, ear infection, stress
  • Loading...