Sammy0225

Your a warrior.

@Jupiterman I’ll definitely put zink on my shopping list!

@Ken219 thanks bud! Hope all is well my friend (:

@Sammy0225 what is this option of getting a nerve burned off??

What were you thinking? :)

Omg I thought only I did this xD

Lol absolutely Oprah

- Dr Phil

Thank you for checking on me @Moni97 (':

Unfortunately not to good yet another setbacks a loud slam of the broom sent my ears into another shock and Morse code has come back I'm hoping progress I made will not be effected. How are you holding up??

Aw I’m so sorry to hear that. :c I’m hoping so too. And I’m alright, thank you for asking :) had my first ok day since Fri. Hoping it continues cuz I’ve been feeling pretty bad lately.

@Ondine thank you for checking up on me {: the last couple of days definitely tested my patience. I hope your doing okay as well my friend ^•^

Should be fine. Sneezing is something mankind has been doing since the dawn of time. There’s not going to be permanent damage.

@ZFire you are definitely right man I'm usually spreading positivity but this past week phonophobia snuck back up. Thanks for the reassurance my man

Dealing with 3 set backs in last 48hrs just a constant reminder how T, can flip your world upside down one minute to the next

@Sammy0225 Thanks for asking. Have had one of my most difficult weeks this past week. Reactivity is still a bitch, and lack of sleep doesn’t seem to help it. I just want to see some type of improvement, not steady standstill or worsening.

Ugh I know how you feel @ErikaS usually I try staying positive on here but this week it kicked my ass the setbacks made the reactivity sky rocket I'm still hopeful you will make good progress keep your chin up it won't stay this way forever

Hi @Sammy0225 all is pretty OK. Just a new tone in one ear like sand being poured onto metal! ugh so annoying.
Glad to here you are having better days though :)

Will try and go through the app store to see if I can see which one you use. :)

Earplugs/muffs certainly amplify an already annoying sound. I feel that if I didn't have to wear ear plugs I'd habituate quicker as I wouldn't always be aware of it and it's forever changing sounds :( @Moni97

Thanks you Guys I hope my bread trails help someone one day {:

Respect....well done!

Is your job noisy?

I've been on leave from work but I plan on going soon @Jupiterman

I don't thankfully it lasted two months before going away how long have your experienced this? It definitely is unsettling I figured it was from anxiety until I discovered the term palinacousis

@ErikaS @Jackson Brady I hope all this info helps! I truly believe most will heal. Remember a big part of healing is emotional response the more you feed it the more it will control you. Using natural white noise for therapy right now the reactivity no longer fights the AC humming and most of the time I can mask it now. God bless

@Sammy0225 - it's amazing you've been able to get to the point of almost quiet. Just read a post of yours from mid Nov in a much different place to now. Amazing progress!

@DeanD thanks Dean you will overcome this man this shit won't defeat you in the end you will survive and be stronger from it

@Jackson Brady My bad I haven't been on much lately right now things have pretty much been back to normal I still do sound therapy but it seems my ears are adjusting back to everyday sound like my kids laughing or my partner cooking dinner not getting Much of a spike so I'm counting my blessings

@Sammy0225 i was actually asking what kind of sound therapy do you do?

I’m still using the AC ( natural white noise) and running the tap a good majority of the day and magnisium Is definitely helping @Jackson Brady hope all is well

@Moni97 its a very powerful method i came across when i started my tinnitus journey, its always in my check list to try it fully soon, its a method by @I who love music which can kickstart habituation

https://www.tinnitustalk.com/threads/back-to-silence.7172/

@Sammy0225 aww you have kids? Jealous :p but seriously, so glad you are at a place where you can have fun with them again ^-^
Oh ok @Jackson Brady I have actually been doing this since about day 5 of my journey. Really helps me with my anxiety and panic attacks.

@Moni97 yea my 3yr old he keeps me busy! Lol and thanks I’ve also gone back to reading hope I can stay on this path and hope your doing good ^.^

I told myself that as soon as I feel better, I’m taking myself on vacation. Rent a beautiful AirBnB somewhere peaceful and calming and just allow myself to feel alive, not this constant struggle for survival that I feel everyday.

@ErikaS @Jackson Brady @Moni97 when y’all have a chance give @Coffeebean last few post a look. He had a very similar case of tinnitus like us. Unfortunately he no longer visits the forum but he made it out with little to no help from any audiologist I’ve been following his past comments as guidance. Click “find all post” his last two post have so much info

@Moni97 yes your body will thank you for it!!! (: it was shortly after the beach house that my ears relaxed and I said okay this is my sign, to start sound therapy! Don’t worry moni a year from now I’m
Sure all of us will be in a much better place then we can all go half on a Air BnB ;p

That's really nice to hear - I hope the new year will hold many experiences that will make you laugh and smile for you!

@Leila thank you that’s very kind of you to say Liela I hope the same for you as well. {:

@Jackson Brady since we become hyper aware of everything with this condition unfortunately phonophobia eventually comes along. I can say it will go away slowly as you start feeling comfortable around loud sound again. It’s gonna take a few months but your startle reflex needs time to get out the fright response mode. You’ll notice a big difference once you start sound therapy

@Sammy0225 so should i listen to car horns on youtube?

Oh no definitely not!! The phonophobia will pass eventually but from what I've been noticing is has been calming down with my anxiety and fear of sound. Target anxiety to help with phonophobia cause that's mainly what it stems from

You'll have more good days soon enough. These things go at such a snails pace it feels like you will never get there :)

Yeah, the brain is the Equalizer of T. If i get obsessed with my T, the loudness gets up. If i dont give a damn, it goes quieter over a period of time to a point that i dont realise that i have T.

@seppl same here! If we could some how wire our brains to not care so much about our T, I feel we could live a more sustainable life.

@Jackson Brady Yes spicy food can be anti inflammatory. Jalapeños are especially considered to have anti inflammatory and antioxidant properties. They can treat inflammation throughout the body and aid in cell health/repair.

@Moni97 plus really yummy to eat haha I’m such a food lover ^•^!!

Haha me too! ^-^ Pretty sure food is my love language. To feed/be fed that the Italian way. xD

@Jackson Brady that is exactly what I did and still do don’t stop doing that. You on the right track and yea 0ct I started being dedicated to magnisium daily

@Sammy0225. During your 'Silent protocol' Sammy. Did you still talk to people?
Is there any sounds you allowed yourself to hear?

@Jupiterman yea I still socialized with family in the house just told them to talk low around me, I allowed sound just nothing loud like music or tv I kept everything as low as possible I watched TV with no sound just subtitles and read alot. I knew when I had setbacks cause my hiss turned into a crystaly sound

Also for how many months did you take magnesium? I’ll willing to try it for atleast 3months before commenting on its effectiveness.

@Sammy0225 so ridiculous that getting sick can back track, but I have a feeling due to being inflammation and once that settles it will improve so much faster than first time around. Sending you love and support as always!

@ErikaS ugh I know this shit is something else tell you. Thanks for the kind words {:

My main thing is the ttts it’s so annoying I also have a bit of loudness H lingering around it’s a hiss that I’ve been trying to get under control

Yes same here!! The ttts is super annoying!!! It drives me insane

Yup some days it’s completely gone then next day it’s back like, make up your mind lol

I just met with highly recommended functional med doc tonight, been waiting to see him for 3 weeks. He told me I’m his 3rd patient with what Im describing. One girl, her T was so loud she could barely hear. Anyway, he determined high viral load, said my body isnt clearing viruses that caused/worsened this & it’s just cont. the inflammatory process…

So we are detoxing the viral crap & doing cranial nerve work. He said the 2 others notably improved within 2 mos. treatment. Not expecting miracles, but would welcome any improvement. Just very on point to how you and I have discussed an inflammatory viral component and that’s what I tested as.

Oh God this is amazing news!! I'm so damn happy you found a doctor who actually knows what to target! Please keep me updated on what kinda treatments work? Targeting inflammation sounds right on track and I feel hopeful this is going to bring the relief you been needing (:

@Jackson Brady 450mg glycinate I noticed it helps with sensitivity and my ttts

Definitely man I did the same dont beat yourself up I went to grocery stores and work using protection and I guess it just wasn’t cutting it my t was spiking right through the ear protection. Doctors make shit worse by suggesting sound therapy right away when the ears aren’t ready for it yet

@ErikaS your welcome I’m glad to help when I can I wish I knew more about this condition, it’s been a learning experience and I’m thinking of becoming a ENT after going through all this shit lol

If I was a Ear doctor and someone came in with these conditions I would explain the ears need to settle first before starting sound enrichment. Instead they slap hearing aids on you and start pushing more sound into a already overstimulated ear. And if that doesn’t work they push you on meds and say you are paranoid and have anxiety issues which can turn already severe cases into hell. @travishenry

http://www.chronicdailyheadache.com/headache-doctors/

These are two of the first people I talked to about decompression surgery, Dr. Blake is extremely knowledgeable and empathetic to your situation.

She is a bit like the Susan Shore of Occipital and Trigeminal neuralgia. They are also located in Texas so this should make things a bit easier for you than some of the other surgeons.

If you find them too expensive, I have alternatives. The surgery is $15,000 dollars out of pocket. There is another surgeon in Maryland who does it with insurance coverage or for $12,000 out of pocket.

@CarlosEstan thanks so much!! I'll definitely be looking into Dr. Blake I'm glad we have this forum to keep stuff like this circling. Your resources are very much appreciated brother

Wanna trade location?

@CarlosEstan long as it’s not too cold lol

Freeze to death and get rained on where I'm at haha. What a combination.

Exact same thing here dude @Sammy0225, i often go check if i actually have some visitor outside lol. Can you tell what exactly helped with it besides time?

@Jackson Brady unfortunately it’s back I spoke to soon hope it goes away again also wine glass ringing is back also

When it comes and goes, it can be gone for good someday.

@Sammy0225 just had the 2nd one yesterday and I think that will be my last. Tones sound sharper and louder, hoping it fades in the next day or two. Also getting increased random fleeting T moments? Whooo knowws :)

You got this under control! I am so happy for you.

The TSSSSSSSSSSS sounds i have since 2017. I barely notice them anymore.

Hi @CarlosEstan I’ve had tinnitus going on 7 months and I been seeing improvements every 30 days. So I would say monthly. If you just got tinnitus please give it time the ringing may sound loud now but it will get lower or you will learn to ignore it eventually

If anyone stumbles here look at
@ErikaS post https://www.tinnitustalk.com/threads/just-how-far-should-you-push-reactive-tinnitus-should-i-protect-my-hearing-more.50561/

I Went into detail of my progress