Recent content by Stefaniie

I don't like how final this sounds... Have they given up on FX-322?

Sorry in advance for the ignorance, I have no idea how these things work. When (if, knock on wood) Frequency Therapeutics releases FX-322, how would I go about getting it? Do I simply visit my local ENT and request the injection? Would I have to wait long for them to receive FX-322?

Are you certain your tinnitus was caused by sinus issues and not noise? I would advise you not to use any in-ear maskers. When I first got tinnitus I would use my ear buds to listen to music to drown my tinnitus out and it made it worse. Even listening at low levels. Unfortunately, I had to stop...

Just some advice— I would forgo the MRI. It's obvious you just have noise damage. Doctors do not understand tinnitus. One doctor repeatedly kept prescribing me allergy medication, which, of course, did nothing. My new gp is also recommending me to take an MRI but I won't because I know now that...

How would we do that? Aside from e-mailing, because I feel like those get largely ignored

Does anyone else find that their hearing gets better when they eat/drink better? I'm a heavy soda drinker and when I go a few days without any (drinking water exclusively) I think my hearing gets better. But my mood gets worse because I'm not getting any of that caffeine/sugar which in turn...

I only remembered this after I got tinnitus but they taught us about the dangers of being exposed to too much loud noise back when I was in middle school, I think it was. (I am 22 now). I remember learning specifically about tinnitus. Talk about foreshadowing. Anyway, I forgot about all of it...

Maybe she does have plans to release the device next year and is just trying to keep our expectations low in case something comes up. Which is understandable...I feel like giving tinnitus sufferers a date to look forward to and then not delivering would deal some major mental damage to a lot of us.

Do you have the link to the website that implied her device might be released next year?

Lately I've been struggling more than usual. I was deeply depressed before tinnitus, and now that I have tinnitus, it's like all the fight is slowly draining out of me. I can't see this ever getting better. I can't see the light at the end of the tunnel even though I know the chances of this...

People have asked but she won't answer. I understand she most likely isn't allowed to discuss it while trials are still ongoing, but still. I wish they would just come out and say if they believe this treatment will work for those with more severe hearing loss. If it does, then it gives us hope...

With a fast track, how long do we think it'll take before this drug hits the market, if all goes well?

Y'all still think it's possible for this drug to hit the market within 5 years?

So, I have both noise-induced damage and some kind of hereditary hearing loss (might be Meniere's because it effects my low frequencies too :(, but still need to get tested for that) and I already take precautions when it comes loud noises... basically, I try not to go near them and wear...

I assumed her device would have similar hearing requirements as Lenire since they're essentially (at least to my knowledge) the same device/concept. Hoping I'm wrong, though. With as much time as she's spent on her research, maybe she's figured out a way for her device to work for more...