Recent content by SueX

The electricity and buzzing are sadly just part of tinnitus. When I first got tinnitus in September 2024, it was a whooshing sound, a bit like waves on the beach. I started to get used to that, but I am struggling with the electricity sound because it is such an “evil” sound. Based on what...

@amyliyahxxx, how was your follow-up appointment?

I have seen probably 10 different doctors now, and each one has had a different theory on the pulsatile tinnitus. It is hard. I have had extensive imaging, but even that seems to be interpreted differently. Rather than seeing this as a confusing situation, I am trying to see it as each visit...

It's really good to read that things are going well.

I’m only six months in with the “electricity” sounds. It has not improved yet, but sometimes I experience other tones alongside the static-like electricity. However, I have read that for many people, it does get better. So, there is hope.

Yes, I have more problems on the left side, along with a high-frequency sound. It really is hell, isn’t it? But thank goodness for groups like this.

Not sure which place is Opus. I know Vista in W1, where they have upright and open scanners—they have two of them—and Queen Square Imaging, where they have a 3T MRI machine. It is loud, but they are very strict about the ear protection protocol.

If you are going to the same place in London (I have been there three times), you could ask for the foam earplugs, along with the extra foam they can place between your ears and the helmet or coil. I have also had scans at Queen Square Imaging. It is more expensive than Vista, but very good...

I feel sorry for you. I have that static or hissing sound too. Yes, I hear it even in the shower. I even heard it while I was in the MRI machine. When I first got tinnitus, I was able to mask it with general everyday sounds, but this static or electrical sound is very piercing. I hope we can...

Yes, I have ETD and some hearing loss. I think it is not uncommon to have both.

Cortical mastoidectomy with resurfacing of the sigmoid sinus was suggested to me by a skull base surgeon to help alleviate my pulsatile tinnitus, which has a vascular cause. Has anyone here had this procedure? I believe it is relatively new, but it seems to be fairly well tolerated and...

I had a massage booked at a local hotel to calm me down the day before my MRI (I am really claustrophobic and have always previously been in an open or upright scanner). While I was in the changing room, the alarm went off — the bell itself was right next to me. I stupidly stayed there, thinking...

Is that scanner somewhere in the UK? I have been in a 3T machine. I am not sure if there are differences between types of 3T scanners. The one I went in was fairly spacious, but it was very loud.

That is a wonderful thing to hear! Well done for getting adjusted. I suppose it probably happens to many people, but when you are at the start of that habituation journey (as I am), it really does feel like accommodating the tinnitus is never going to happen.

It is never simple, is it? I am the original poster on this thread. At first, I was just about coming to terms with having a vascular loop, which is an artery in close contact with the vestibular and cochlear nerves. Then I was told that although the vascular loop was indeed present, it probably...