Recent content by SueX

Fantastic idea. I look forward to hearing how it goes.

Sorry to hear that. I assume you got the diagnosis after a cerebral angiogram or maybe the initial MRI or CT scans? Many people on the Whooshers forum have been through similar experiences, so if you’re not already on there, it might be worth taking a look. I hope you don’t have to wait too long...

Sorry to read about your troubles. I am also investigating TMJ and cervical spine issues. I have had extensive scans of my head and neck. There are several potential causes visible on the scans for my tinnitus, but they are on the right side, while my tinnitus is on the left. I have been...

I hope I have now posted this in the right place. You replied to me, and for some reason I cannot figure out, I was then unable to reply to you. Anyway, I am sticking with the hearing aids. It has been about five weeks now. I would say they have helped, but it is hard work. I think they have...

Hiya, I have high-frequency hearing loss. It is only mild, and I also have some brain issues, so at first I assumed my pulsatile tinnitus was caused only by those neurological problems. However, I went to see an excellent audiologist who very patiently explained that even if the brain issues are...

I’m in the UK and about to get hearing aids to use as sound generators. I’m not getting my hopes up too much, but if the pulsatile tinnitus could decrease by even 10 or 20 percent, I think that would make a huge difference. I have had a lot of scans, and while some findings did show up, they...

After extensive scanning, audiovestibular tests, neuro-ophthalmology evaluations, sleep apnea testing, and appointments with a dentist and physiotherapist, the consultant today gave me a working diagnosis: Idiopathic Intracranial Hypotension Without Papilledema (IIHWOP). I feel relieved to at...

I am not sure if this procedure is called different things in different countries. I am in the UK, and two doctors have suggested it to me as a way forward. I am referring to the procedure where a catheter is inserted into the groin and guided up to the brain for imaging under X-ray. I...

I have also tried all the therapies, including Cognitive Behavioral Therapy and Tinnitus Retraining Therapy. However, like someone else mentioned, I experience a relentless screeching sound, like train brakes in my head. On top of that, other tones also appear. For me, my brain cannot adapt to...

I need advice. 😊 I have undergone extensive CT and MRI scans. My pulsatile tinnitus is on the left side. The scans revealed three findings. First, the Anterior Inferior Cerebellar Artery (AICA) is compressing the vestibular and cochlear nerves on the left side. The neuroradiologist believes...

I am eight months in. The noise I hear is like train brakes, along with several other sounds happening at the same time. It is also pulsatile. I have not managed to get used to it yet, but there are many positive stories here, and that truly helps.

Sorry to hear about that. I hope it proves to be only temporary, although six months is a long time for a single incident. It is possible that something else is going on, and the door slam may have been just a coincidence. Are you undergoing any scans or other investigations?

Hey, that's really good news - I hope the pulsatile tinnitus stays away!

Thanks - that's really helpful.

I’ve had extensive imaging for my pulsatile tinnitus, and a few possible causes have been raised, but there is still no single diagnosis. From my own reading, I thought that bimodal stimulation might be worth trying. The research so far seems fairly promising, even though there are some...