Welshexport
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Welshexport

Member, Male

TINNITUS the invisible enemy Feb 12, 2019

Welshexport was last seen:
Sep 9, 2020
    1. Welshexport
      Welshexport
      TINNITUS the invisible enemy
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  • About

    Gender:
    Male
    Tinnitus Since:
    2002
    Cause of Tinnitus:
    Noise induced, Cervical Stenosis
    Can TINNITUS be caused by an autoimmune disease?



    I was diagnosed with psoriasis in 1982 while still serving in the military, then in 1987 was diagnosed with psoriatic arthritis. When I first had psoriasis, it was in small patches all over my body but after about 10 years most of the patches cleared up but has always remained in my scalp ears and my genital and anal area as well as the coccyx. I have only recently learned that my scalp psoriasis could be the reason why my head is so sensitive to cold weather and drafts I even have to wear a hat in bed as soon as the outside temperature drops below 14 degrees, it might sound silly but it’s true.



    By 1993 I had left the military and was diagnosed by a German Doctor I was negative for the HLA B27 blood test but after examination and seeing my psoriasis swollen fingers and rotten finger nails he diagnosed the PsA.



    I have had so many problems over the years mainly neck, shoulders, hips, thoracic spine and lower back, I have had a lot of discomfort where the ribs are connected to the breast bone. I have tried to keep myself fit but find it almost impossible now, I am 55 years old and have had this condition since I was 18. My neck and some shoulder movements act like a volume control for my Tinnitus, I have stenosis and a herniated disc in my neck, C5, C6, and C7.



    After years of visiting Doctors and being told my neck, shoulder and back problems were probably contributed to stress I finally had an appointment with a Professor for spinal surgery here in Germany he actually took the time to study my MRI scans and concluded that all my problems are probably PsA related. He told me I should make an appointment with a good Rheumatologist my house Doctor sent me to an older rheumatologist who didn’t study the disks but agreed with the PsA diagnosis but refused to acknowledge any link between the PsA and my back problems so gave the diagnosis as unexplained chronic back pain.



    This is now my second-year suffering from sacroiliac joint pain, I have had so much pain in my buttocks and outside hip area at the top of my legs my orthopaedic Doctor diagnosed it as sciatic nerve pain. But the pain I am feeling is also in my groin area it seems to be the whole hip area and I am crippled with this pain when it strikes, when the pain subsides I am dogged with stiffness which is extreme in the mornings. I am in much discomfort for most of my life I am now weary of just walking as it causes my pain, the mornings are the worst I am so stiff that on occasion my wife my help me out of bed and it takes time to get mobile.



    Apart from the Spinal Surgery Professor who I visited in 2016 no other Doctor seems to be joining up the dots and I am now getting to the end of my tether I just don’t know where to go to next.



    I recently visited a Rheumatologist 18.10.2018 as the pain in my hips and groin area is severe this summer my inverse psoriasis has been very bad. This new Doctor just after five minutes with him has prescribed me 20mg self-injections of MTX per week for three months. He just didn’t have any time to explain about this drug. I have read it is better to be used at the early stages of diagnosis as I have said I was 18 when first diagnosed back in 1982. All the info I have found seems to be controversial some say that 20mg is too high to start with and other say I’ve had the condition far too long for it to be beneficial. I have also had a Hiatus Hernia since 1985 and take anti-inflammatory drugs to keep the stomach acid at bay. I told the Doctor about this that at the moment I am having problems with the hernia he just waved my comments away and said MTX won’t be a problem and off he went.



    I have just spent a week in a Rheumatologist Hospital 21.11.2017 they done some extensive tests but at the moment I have no swelling in my joints and advised me not to take the MTX because of the lack of swelling. They didn’t seem to be that interested when I told them about the stiffness I get in my muscles and joints or the severe Tinnitus which I suffer with also the trouble with my eyes mainly the left eye dry and feels swollen and foggy. I was told this is probably the best Rheumatologist clinic in Nord-Rhein Westphalia but the Doctors only seemed interested in the fact that I had no swollen joints during my six days there they didn’t see any correlation between my experiences with these illnesses.



    It’s the stiffness that mainly affects my mobility but as I have explained to the hospital I have always suffered from stiffness I have always tried to keep myself in shape being ex-military I have always watched my weight. But from the onset of psoriasis in 1982 I have always had to do such a lot of stretching after exercise. Whenever I do exercise although the most I do these days is walking or light weights it’s as if it’s the very first time I have carried out any sort of exercise the next morning I always suffer from very bad stiffness I’m quite often like Quasimodo walking about. The other thing is my Tinnitus levels increase after exercising this condition is with me 24/7. I am now truly at a loss of what to do these illnesses combined are driving me insane.



    With Tinnitus, I think it’s the stress of these combined illnesses that make it worse. Here in Germany I don't think there's as much research into PsA as in the USA and UK. The Sacroiliac Joint is used in certain countries to determine a PsA diagnosis mine was diagnosed because of the rotten finger nails in both hands and toes. My inverse psoriasis flared up bad this year because of the hot weather this in turn made my hip and groin pain worse.



    I have lived for so long now with these illnesses and have managed quite well over the years but since November 2014 my Tinnitus has increased tenfold so the last four years I have managed on very little sleep. I know that driving makes the TINNITUS far worse and my job is HGV Driver, I have had five jobs since 01.01.2014 and have been made redundant because of illness due to Tinnitus. I get very anxious when I know I must drive, the road noise and the air-conditioning fans and wind noise just make my tinnitus ten times worse.

    1982 Psoriasis

    1982 Inverse Psoriasis

    1985 Hiatus Hernia

    1987 Psoriatic Arthritis

    1994 Gerd, diagnoses after appendix ruptured suffered from peritonitis have been taking omeprazole ever since.

    2008 Hospitalized after losing the feeling in right side of face, I am now very sensitive to cold and drafts. No diagnosis was given for this even though I spent a week in hospital, the feeling came back gradually but I suffer from the cold on the upper right side of my face.

    2011 Hypercholesterolemia

    2011 Shingles

    2016 Barrett’s Oesophagus

    Had Tinnitus for over 15 years officially diagnosed in 2011.

    I have MRI scans HWS, BWS and LWS all over three years old….



    Any help would be appreciated

    Thank you for your time

    Richard Jones

    Can TINNITUS be caused by an autoimmune disease?



    I was diagnosed with psoriasis in 1982 while still serving in the military, then in 1987 was diagnosed with psoriatic arthritis. When I first had psoriasis, it was in small patches all over my body but after about 10 years most of the patches cleared up but has always remained in my scalp ears and my genital and anal area as well as the coccyx. I have only recently learned that my scalp psoriasis could be the reason why my head is so sensitive to cold weather and drafts I even have to wear a hat in bed as soon as the outside temperature drops below 14 degrees, it might sound silly but it’s true.



    By 1993 I had left the military and was diagnosed by a German Doctor I was negative for the HLA B27 blood test but after examination and seeing my psoriasis swollen fingers and rotten finger nails he diagnosed the PsA.



    I have had so many problems over the years mainly neck, shoulders, hips, thoracic spine and lower back, I have had a lot of discomfort where the ribs are connected to the breast bone. I have tried to keep myself fit but find it almost impossible now, I am 55 years old and have had this condition since I was 18. My neck and some shoulder movements act like a volume control for my Tinnitus, I have stenosis and a herniated disc in my neck, C5, C6, and C7.



    After years of visiting Doctors and being told my neck, shoulder and back problems were probably contributed to stress I finally had an appointment with a Professor for spinal surgery here in Germany he actually took the time to study my MRI scans and concluded that all my problems are probably PsA related. He told me I should make an appointment with a good Rheumatologist my house Doctor sent me to an older rheumatologist who didn’t study the disks but agreed with the PsA diagnosis but refused to acknowledge any link between the PsA and my back problems so gave the diagnosis as unexplained chronic back pain.



    This is now my second-year suffering from sacroiliac joint pain, I have had so much pain in my buttocks and outside hip area at the top of my legs my orthopaedic Doctor diagnosed it as sciatic nerve pain. But the pain I am feeling is also in my groin area it seems to be the whole hip area and I am crippled with this pain when it strikes, when the pain subsides I am dogged with stiffness which is extreme in the mornings. I am in much discomfort for most of my life I am now weary of just walking as it causes my pain, the mornings are the worst I am so stiff that on occasion my wife my help me out of bed and it takes time to get mobile.



    Apart from the Spinal Surgery Professor who I visited in 2016 no other Doctor seems to be joining up the dots and I am now getting to the end of my tether I just don’t know where to go to next.



    I recently visited a Rheumatologist 18.10.2018 as the pain in my hips and groin area is severe this summer my inverse psoriasis has been very bad. This new Doctor just after five minutes with him has prescribed me 20mg self-injections of MTX per week for three months. He just didn’t have any time to explain about this drug. I have read it is better to be used at the early stages of diagnosis as I have said I was 18 when first diagnosed back in 1982. All the info I have found seems to be controversial some say that 20mg is too high to start with and other say I’ve had the condition far too long for it to be beneficial. I have also had a Hiatus Hernia since 1985 and take anti-inflammatory drugs to keep the stomach acid at bay. I told the Doctor about this that at the moment I am having problems with the hernia he just waved my comments away and said MTX won’t be a problem and off he went.



    I have just spent a week in a Rheumatologist Hospital 21.11.2017 they done some extensive tests but at the moment I have no swelling in my joints and advised me not to take the MTX because of the lack of swelling. They didn’t seem to be that interested when I told them about the stiffness I get in my muscles and joints or the severe Tinnitus which I suffer with also the trouble with my eyes mainly the left eye dry and feels swollen and foggy. I was told this is probably the best Rheumatologist clinic in Nord-Rhein Westphalia but the Doctors only seemed interested in the fact that I had no swollen joints during my six days there they didn’t see any correlation between my experiences with these illnesses.



    It’s the stiffness that mainly affects my mobility but as I have explained to the hospital I have always suffered from stiffness I have always tried to keep myself in shape being ex-military I have always watched my weight. But from the onset of psoriasis in 1982 I have always had to do such a lot of stretching after exercise. Whenever I do exercise although the most I do these days is walking or light weights it’s as if it’s the very first time I have carried out any sort of exercise the next morning I always suffer from very bad stiffness I’m quite often like Quasimodo walking about. The other thing is my Tinnitus levels increase after exercising this condition is with me 24/7. I am now truly at a loss of what to do these illnesses combined are driving me insane.



    With Tinnitus, I think it’s the stress of these combined illnesses that make it worse. Here in Germany I don't think there's as much research into PsA as in the USA and UK. The Sacroiliac Joint is used in certain countries to determine a PsA diagnosis mine was diagnosed because of the rotten finger nails in both hands and toes. My inverse psoriasis flared up bad this year because of the hot weather this in turn made my hip and groin pain worse.



    I have lived for so long now with these illnesses and have managed quite well over the years but since November 2014 my Tinnitus has increased tenfold so the last four years I have managed on very little sleep. I know that driving makes the TINNITUS far worse and my job is HGV Driver, I have had five jobs since 01.01.2014 and have been made redundant because of illness due to Tinnitus. I get very anxious when I know I must drive, the road noise and the air-conditioning fans and wind noise just make my tinnitus ten times worse.

    1982 Psoriasis

    1982 Inverse Psoriasis

    1985 Hiatus Hernia

    1987 Psoriatic Arthritis

    1994 Gerd, diagnoses after appendix ruptured suffered from peritonitis have been taking omeprazole ever since.

    2008 Hospitalized after losing the feeling in right side of face, I am now very sensitive to cold and drafts. No diagnosis was given for this even though I spent a week in hospital, the feeling came back gradually but I suffer from the cold on the upper right side of my face.

    2011 Hypercholesterolemia

    2011 Shingles

    2016 Barrett’s Oesophagus

    Had Tinnitus for over 15 years officially diagnosed in 2011.

    I have MRI scans HWS, BWS and LWS all over three years old….