Tinnitus Talk Support Forum

I really wish that something can give you some help with your severe T so that the other issues you have also can heal.

@tomytl, thanks man. Do you use hearing aids?

Last two nights I could sleep well without any meds, now I take a half of a 0,5 Xanax and look how the level of T and pressure is next morning…

no, I don't use hearing aids.
10 years ago, when I was in a similar situation, I tried some Phonak CIC hearing aids, but they just made more T in the evening. And my understanding in a Speechaudiometrie was 100%
I actually would like to avoid being dependent on this stuff as long as possible, even they are nearly invisible and hightek.

So I could sleep 4 hours, T ist the same loud, pressure is like I would traveling on top of a 5000m mountain.

@tomytl, how was you sleep before the last incident?

very good, I never was physically so fit before, went 3 times to gym, was fit, slept well... It was this noise over the bone conduction which made my hearing hyperactive again.

@tomytl, even after two incidents you were still doing fine then. That's really good man, at least you have something to look and find some motivation. Have you ever had hyperacusis before?

Yes, I had very severe hyperacusis in 2003, it was my biggest concern then, Tinnitus was like something else, but Hyperacusis was horrible, everything was the pain in the ear and voices sounded very distorted... this last for almost 4-5 years, the distortion, sensitivity about 2 years.
Tinnitus went almost away, but started again in 2014 and since then persisted, but I habituated.

@tomytl, That's exactly why I tell other people as well. Everyone's experience with tinnitus is different in terms of intensity, frequency, and type. For example, when I describe my tinnitus here, believe me, there's even more to it, not less than what I'm telling. Mine isn't the kind that ever decreases. It completely wrecked my life, even though I'm a very strong and patient person.

I believe about your loud perception of T and I also believe you about this extrem condition, realy.
I can't conpare my condition I have or those I had, but I know the sudden loss of a beautiful, normaö life. When my Hyperacusis and hearing loss startet, I really felt like a nothing.
And I am also a quite relaxed giy in normal life.

Today it's like my esrs are full of glue, very discomfortable.

@tomytl, I've met and come across many people who recovered after receiving early treatments following acoustic trauma. When I experienced acoustic trauma, no treatment was applied to me. There are 4-5 different treatments applied to others. My life was blatantly stolen from me. Anyway, I don't want to talk too much about it.

I know exactly what you mean, and it's a terrible feeling. But it's important to understand that there isn't a single drug therapy for the inner ear where a causal effect has been proven. No one knows if improvement was due to spontaneous remission or the medication in cases where people got better.

I was also given cortisone after my first noise setback, and in my opinion, it didn't do anything. I had it for my first hearing loss incident as well, and my hearing didn't improve at all. At the hospital, they didn't even want to give it to me once because they just don't do it anymore.

It's not even fully understood what happens in the inner ear during sudden hearing loss or noise trauma. I can imagine if the hearing loss is caused by inflammation or an autoimmune issue, then maybe cortisone helps. It's really frustrating that the inner ear is still such a black box.

I also don't understand why some doctors or hospitals just do nothing and send you home—it's ridiculous, even from a psychological standpoint for the patient. Let's assume there's a placebo effect, even if the medication doesn't actually help.

@tomytl, I know that it has been effective for many people, and those I've mentioned say that after receiving the treatments, their tinnitus gradually decreased. Even if it didn't completely go away, they now say it no longer has any negative impact on their lives. If I had received these treatments at the time, I would have no choice but to continue with my life now, but instead, I suffer every day.

I just said, that there is no certain outcome in any of these inner ear therapies, and this males all very conplicated.

My T is changing a lot these days, it's very strange and the low tone T on the left is like a hole in the head…
But at least I could sleep a little bit better.