2049v

@tpj, what was the cause of yours?

@2049v, don't know for sure, but I think it was cumulative noise exposure over the years. Concerts, nightclubs, regular earbud use. And of course, shitty genes and bad luck.

@tpj, you don't have a severe type, right?

@Karolina, I hear a single tone mostly, but it can be heard everywhere and the sound is extremely loud. My perception has been completely distorted for 3 months, and I feel like I’m in a dream. It feels as if someone else is controlling my mind and body. I want to die every day. I feel like drunk even on the street or in the market, and I can hear the ringing constantly.

So yours is a ring?

@MiaVIL, mostly single tone torture, unbelievably loud.

@L along the way, Yes. If my condition weren’t the most severe type, my life would be a bit easier, but I suffer torture every single day.

@2049v i know exactly what you mean, sadly enough.. awful painful suffering on the daily pffft.. painful and just ridiculous beyond words, im saying that without exaggeration. I hope and pray we can be reborn. That somehow our ears and brains can heal back to our natural way of being. Natural health and wellbeing. Natural health and wellbeing.

@L along the way, I know it doesn't work this way but I want to hope.

It's understandable to feel like this.. i also have been enduring a lot, and it's really not fun.. just remember that you didn't ask for all this.. trying to be kind to yourself

@L along the way, No matter what I do, no matter what I think, nothing works.

@2049v this is the thing i struggle with too, like what is an actual solution for this? And sadly.. nobody has any answer basically. Yes, i do believe that a healthy lifestyle (i switched to plant based foods), mindfulness and plenty of rest is good, also distraction. But it hasn't cured t. So, that's why i try to put my trust in the hope that time is a healer.. i mean.. what else sensible can i do

@2049v i don't know how i'm still alive tbh. The stresses i've been through.. pff.. somehow the days have passed and im still here.. i've suffered for many years.. sadly.. now i just wish a calm life and praying for t to heal, hope to finally find some real peace

@L along the way, do you have a family? How old are you? Do you live alone?

@2049v I am single, 36. I have some hope of finding new love, and maybe starting a family some day, but for now my own wellbeing deserves most priority and care

@kingsfan, I try to do things I used to enjoy to escape this curse, but as soon as I step outside, I experience balance issues and nothing feels enjoyable. Three months ago, I woke up one morning, and everything was over for me.

@2049v I totally get that. Considering where you are in your journey. 4 months in with no Sleep and my wife was looking to have me committed. It's hard to say what will happen should you stay in the fight. But I've been here long enough to see major improvements in most people. And others habituate to a livable degree. I wish you the best. Truely.

@tomytl, Thank you for your supportive words, my friend. They truly mean a lot to me. One morning, I woke up with hearing problems, ear pain, dizziness, hyperacusis, and extremely severe tinnitus. Suddenly, I found myself in the middle of hell. I just want to escape from this.

Yep, im also done with analysing and trying to explain it.. i only know i just wish natural wellbeing, the sense of wellness.. it's like a long lost friend, hoping to revisit soon hopefully

@L along the way, I have been thinking about my own death and I would like to have ‘My Life’s Anthem’ played at my funeral :)

https://youtu.be/asL4qxHVS-k?si=RPU5Ze4d9vpwYuj9

@Pinhead, do you have any idea what might have caused it? Any ototoxic drugs, noise or physical trauma etc. As far as I could see those with no obvious reasons tend to get better in time but it wasn't the case for you, very interesting. How is your relationship going?

I was leading a very healthy lifestyle. Weightlifting 5 times a week and counting my calories. I was in a stable relationship and had no excess noise exposure, but of course who knows how to estimate "excess".
I just had my six-year anniversary yesterday.

@Pinhead, apart from the "noise exposure" it was quite similiar for me. Last night before it all started I listened to some music with earbuds for 10 mins and here I am. I was shocked because I wasn't a regular headphones user. Even those who use them 7/24 on the loudest level don't know what tinnitus is.

@Asta, I understand. The ENT told me that my hearing wouldn’t be an issue, but I can’t hear as clearly as before, I can’t distinguish sounds, and I find it very difficult to understand people in places with background noise—sometimes I can’t even understand them at all. Do you have the same problem?

I had NO problem before the microsuction. I wasn't even aware of what tinnitus felt like...

I have been describing it as an altered sense of hearing. When I cup my ear in my hand and listen for the 'sounds of the sea' that you can normally create, it's not there- asthough there is a problem with conduction or amplification or something. My ET I keep looking in the hole that it might help, but it didn't l doesn't...

@Asta, Our hearing issues are quite similar, but mine started due to headphone use. Are you certain yours began after microsuction? It might have been the last straw. Were you exposed to loud noises before that? Like headphones, nightclubs, concerts, etc.?

Did something turn to the better with your condition?
How about your hearing loss?

@tomytl, So far, I have not noticed anything helpful. Apart from ACRN, nothing provides relief either. My hearing loss is of the type similar to cochlear synaptopathy. The clarity of sounds is reduced, and I can’t perceive sounds as I used to. I still feel the same, I don’t notice any change.

Do you also feel pressure in the ear? This clarity of sound an pressure goes along with my hearing.
Or maybe your hyperacusis is also make sound less clear, I remember, I had left a lot of distortion effect after my first incidence. Now it's also a little back. I really hope you can make some advances very soon...

Oh yes, imagine living forever with all this crap

@Juliane, that's what makes me wanna die sooner :D

As I said I would prefer to be dead instead of living everday with this torture and I don't fear death, I don't see it as something bad. I want all of my family and friends to know that my suffering will end when I die.

I often hear that gratitude is a good attitude, but im thinking to myself too.. gratitude when there's things to be grateful for. I'm grateful for some things in my life, but not for misfortunes. Of course i read your sarcasm, but i feel you.. i would be grateful for a healthy life

@L along the way, I wouldn't wish anyone in the world to go through what I've experienced. Even the worst criminals can be sentenced to death, and death is a release in itself. However, no one with any sense of human dignity should ever have to endure what I am going through.

@2049v i feel you, it felt like a cruel joke how life can be this way.. what's there to say.. myself am just going day by day, trying to take away other stressors, resting a lot, trying to be mentally kind to yourself, and trying to let go.. i hope a better day can come, a new day.. when we will feel reborn

@AfroSnowman, I didn’t know that experiencing hell on earth was possible until I developed these damn inner ear problems. As if living with this difficulty isn’t enough, not being able to prove this disability only adds to the misery. None of us deserve this. Even the most heinous criminals in the world are not punished like this.

@2049v I am so sorry you are going through this. You are right to not accept any medication for anxiety. I have loved ones who try to push meds on me as well. I have refused so far. These meds are super dangerous. Please do your best to stay off them.

@Juliane, Yes, especially after seeing the issues caused by the withdrawal of benzos, I realized this. No, thank you, I’d rather not. Unfortunately, we have been struck by a cursed condition, one that leaves medicine helpless in its darkest corners. To make this more bearable, I just live day by day, without thinking or worrying about tomorrow. Otherwise, it’s impossible to keep my sanity.

@L along the way, if only I knew there was avaliable treatment for my hearing, I could have waited. Not only I'm suffering from hearing loss, tinnitus and hyperacusis but also having to explain this shit to family, friends and my gf is another torture. Noone understands these problems, even doctors. I don't give a f.. dude. I wish there was a button that I could use to disappear forever.

@2049v It sounds like a harsh situation. I wish life would be enjoyable. Suffering is the problem of life is how i see it. I hope things may ease out with time

@L along the way, the worst part is that even though I sought early treatments and informed the doctors, they didn’t provide them. In fact, two hearing tests said my hearing was "perfect," but it’s actually terrible. I have cochlear synaptopathy. Although the audiogram shows little loss, I hear things blurred, and my hearing has completely changed. I was such a happy guy before this torture started.

@Juliane Like it for the vibe and the soundtrack. I used to listen to this song a lot. Now it doesn't sound the same anymore. Woke up one day in hell, suffering since then. My hearing is terrible unfortunately.

Like it as well!

Talking about movies, i've watched Ben Hur (original one, from 1959) recently. Really good! Also seven samurai i found really good.