BellaMia

@kingsfan I'm sensitive to caffeine and I know better. You're lucky is has a good effect on you.

@Robert Ospina Well thank you. It did eventually go back down but spikes can certainly wreck your day/week.

@cjbhab I know and they stink!

Nice relaxing vacations always help with this condition. Have fun.

It's actually an anxiolytic - anti-anxiety medication rather than an antidepressant. But yes, it has been associated with T. I'll add that I have taken a few different actual ADs in the past and didn't get VSS. I would like to try the anti-anxiety med buspirone, but when I asked my doctor about it, he said I couldn't take it with lorazepam that was already prescribed, although I rarely take that.

@BB23 I barely took any of the medicine. I'd split the lowest dose in half and no it had zero effect on my eyes. I still have perfect hearing even with extended testing.

@BellaMia i don't think hearing loss is necessary for tinnitus anymore. There's a subtype that happens due to hearing loss but not all cases are related to hearing loss imo.

I work a ton so I get it. It helps to stay busy. I went through the University of Michigan for hyperacusis therapy. I had both pain and loudness hyperacusis. I slowly started to introduce sounds that bothered me. Like dishes clanking together. I'd put the dishes away and listen to the noise. Slow and safe exposure on a daily basis will help with hyperacusis.

It will hurt at times but as long as the sound is safe keep pushing through the discomfort. I no longer have pain or discomfort from hyperacusis. It took a few months for it to settle. You just have to retrain your brain that noise isn't harmful. Listen to sounds on low with YouTube videos 5 mins a day and go up from there. I made homemade ginger and tumeric tea to treat the pain and discomfort.

@SharonBell My hyperacusis is about 95% gone with therapy. How are you holding up?

@BellaMia What type of hyperacusis was it? Pain, loudness or both?

@HearingHell Hello, I had both pain and loudness.

❤️

<3

@BellaMia It does not come and go. it is always there. I have not been diagnosed with anything. Doctor could not figure it out. My audiogram is basically normal.


agree with @MindOverMatter about ttts though. i have also had multiple bouts that have resolved but i can always make my ear rumble by touching my neck.

I get those occasional TTTS thumps from touching face, neck, head. And other times, they will thump every little bit lying or sitting completely still, sometimes set off by an initial movement. I get the continued fluttering TTTS from external sounds, also intermittently. To this point, it doesn't appear to have any connection with my anxiety level.

@MindOverMatter You put a triangle cone in your ear and their specialized machine sends out certain sound waves. The cone detects how your little tensor tympani muscle responds to it. It sends the information back to the machine to see if working correctly.

You are truly incredible.

That's very sweet of you to say. You are too!

Hey, life is going okay. I recently joined a gym and am doing bootcamp to get fit and toned. I'm just working on myself and my health while picking up hours at work. I'm figuring this new life out and think I'll be just fine. Thank you for checking in. How have you been? Any summer plans?

That's great to hear about the gym and working on yourself. I also love the positive attitude! Here in Aus we are oppsite to you, so we are approaching winter. My plans for that are to set up a nice fire pit in the back yard, stay warm and make plenty of stews and soups!

I thought it was just esclipse day. hehe I don't think we are lucky enough for it to all end, yet.

@Anomalous - me too. Can’t eat anything good. Bellamia - you have something about you. You will be okay with time. Just have that feeling.

@4Grace You'll be okay too. Keep your head up. ❤️ @Anomalous Life is too short. Eat the chocolate. Lol

I used to have 3 cups of caffeine coffee every weekday morning, and it never affected my tinnitus as best I could tell, but I avoid it now, because it just worsens my stomach pains.

Happy Easter, i hope you have some nice choccy eggs

@RunningMan That's so awesome! Don't you wish days like that could last forever? That's what I always say when it's super low..... Like I wish this was as bad as it got.

Yes, anytime I have a good day, I wish it could last. I have fewer good days lately.

My son is 42 and on his second failing marriage because he didn't teach his wife's how to treat him early in their marriage; he has no spine against their constant bitching. Setting limits and demanding respect eludes him. I'm sure another woman will pick him when his 2nd divorce is finalized; another woman looking for 'a man with a paycheck'.

Unfortunately I just want him. Maybe in time it will get easier. Thanks @RunningMan my heart breaks all over again seeing him. The reality of not having what I wanted for the rest of my life is hard. I can't see past the storm right now. Maybe one day I will.

You will get past that person you wanted. been there. took just over 2 years to get over it all. There is someone for you out there, dont worry about it.

This is great!

Good to hear, do you have any old hobbies you can pick up to start doing to?

@Stayinghopeful I do have a few. Right now I'm just repairing and repainting my house so it looks like new again. Then the gym because why not make myself feel good and look good. I don't like sitting around especially now with Tinnitus lol

@RunningMan I haven't used it yet. I just tried it out the 1st day I got it and it's pretty cool. I should test it out at night. It seems a lot of my stress from this condition comes from the middle of the night and early morning when waking. I just don't have the tolerance for the noise at those hours.

@RunningMan Maybe if I ever date again the Bluetooth headset would come in handy so I don't disturb the other person when sleeping with my weird Tinnitus soundtrack haha

Possibly. I got mine before I got my bluetooth speakers, which I use overnight now. Anxiety usually starts hitting me shortly after waking up while still in bed, but not right away.

So if you have hypertension it could be making things worse i guess?

Could it not also be related to GABA dysregulation? Alcohol works on those receptors

@BellaMia I had two glasses of alcohol on Thursday and still feel horrible. I regret it so much. How are you today?

@Juliane I'm doing okay. Tinnitus has been annoying me more lately. It could be that my tolerance has just gone down more. Yeah, I've always been really, really sensitive to alcohol. It's best I never touch it. Did you have a buzz going?

@BellaMia Do you mean if I was a bit tipsy? Yes, haha :-) I tolerate alcohol badly, I am tipsy after 1-2 drinks.

Happy Spring. It was about the same early this morning here in IL but up to about 60 now, but breezy. And cooling off after today.

It's super windy here too! You guys are colder then us!

Happy St. Patty's day to you. Hope you're doing well. This is actually a good day for me with hissy T and low anxiety.

@RunningMan That's so wonderful to hear! I hope you continue to have good days more and more.

@MadeleineHope Absolutely we are. I'm glad to hear your H has improved. I feel as time goes on it will inch it's way to almost non-existent for you or you'll get to a place that you don't mind it.

Keep pushing forward and when you hit a bump, I'll listen. ❤️ You're far too strong to stop now.

Thank you! And right back at ya ;)

Oh, and lovely new photo btw! I admire how well you're still able to take care of yourself despite the tinnitus!

I’ve had very mild t for 15 years.

I got covid in 2021 and two weeks after testing positive I got all new noises and reactivity and it’s been a roller coaster since then with it.

I’m slowly getting better at dealing with it emotionally.

I think when I’m ready to start dating again I’ll be sticking to coffee shops and outdoor events haha.

I know this may sound annoying but what if it is all part of your healing journey? I have a feeling it might be! Your suffering is not forever. Far from it. I see healing in your eyes. :-)

@Juliane I appreciate the positivity.❤️ I hope we all have healing in our eyes!

geez 2026? ive heard possibly summer of 2024

Nope. They have not submitted to FDA yet, or at best just did it. Add 140 days on average for approval (if goes well). They have no employees, the company is still a shell. Just got 2nd round of early funding. 2024 is impossible.

@Mattstarr251 no one knows when it will be available! It's all uneducated speculation!

@just1morething Yikes! I wonder if surgery will make your T go away. Wouldn't that be amazing.

@BellaMia, Dr. Bolding is quite sure that will solve my left ear tinnitus, but no guarantee. It would be amazing and make me very happy. I hate waking up every morning to left ear noise. I’ve heard some say my jaw is not related to my tinnitus but I hope they are wrong.

@BellaMia With a TMJ MRI, they'll want to do imaging of your jaw when it is closed and open, and a little movie of you opening and closing your mouth to see, for example, if your discs move/displace.

@SharonBell I really appreciate that, thank you. It's not easy by any means but doing my best to make it okay. I hope you're holding up well. How are you doing?

@BellaMia i think i have the same thing! I do get sharp pain for a second or two here and there. I also get bad headaches.

Ugh! Guys I'm sorry you're dealing with all of this too. It's just annoying and a very challenging way to live. I know I'm barely keeping up at times.

I'm sorry you're dealing with this! It makes everything harder. And the fact you read stories like Brian's and it scares the crap out of you!

@Stayinghopeful Alright, I'll put them on my to watch list. Have you followed the Warrens? The Conjuring and all that?

You want horror? Watch Dario argento classics.

Yes! I love all the conjuring series!

Today started the same, but I took Ativan before noon, and my tinnitus turned into a hiss in another hour or so. So, I'm doing ok now, but the squealing single tone always returns in 1 to 3 days, and it has seemed more intense lately. Hopefully we both see better days.

Oh my gosh. I really hope it calms down for you. Do you think the Ativan could be making it worse?

Unlikely Ativan. I only took 3 low dose 0.5mg over 2 weeks. Half potency and much shorter half life compared to Clonazepam. I don't know if it helped with softening it to a hiss when I took it yesterday, either, because it cycles between those sounds regularly. The hiss continues today which is easier to deal with.