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  1. ErikaS

    Thank you for the reassurance! Unfortunately, my sinus infection was resistant to Amoxicillin, I...

    Thank you for the reassurance! Unfortunately, my sinus infection was resistant to Amoxicillin, I developed worsening sinus pain and pressure by day 5-6 and it worsened with each day. I just started Cefuroxime last night since I cannot take Augmentin with my T. I don't think I've ever taken...
  2. ErikaS

    Got hit with a sinus infection after not being sick for quite some time. Tinnitus wasn't that...

    Got hit with a sinus infection after not being sick for quite some time. Tinnitus wasn't that bad during the illness, but yesterday when all infection symptoms were gone, whoaaa did my tinnitus spike. Need reminded, is it normal for delay tinnitus spike following illness and it more than likely...
  3. ErikaS

    New University of Michigan Tinnitus Discovery — Signal Timing

    I can empathize with all the emotions around this topic, as well as some of the facts that have been shared. This coming September will mark three years since my life was altered in a way that I still deeply grieve. I miss the life I had before it happened. While my mental health and resilience...
  4. ErikaS

    @Samy Anything you feel that seemed to help yours go away? How long did you have them before...

    @Samy Anything you feel that seemed to help yours go away? How long did you have them before they subsided? I remember having them off and on 1-2 years ago, but they eventually went away for good and would only pop up mildly if I got sick. I don't recall them ever being this intrusive and chronic.
  5. ErikaS

    @Samy I have been dealing with the vibrations since late March after exposure to loud music in a...

    @Samy I have been dealing with the vibrations since late March after exposure to loud music in a gym that was not well insulated. I had a period in June where they subsided, but then came back, specifically after a trip away in July...
  6. ErikaS

    @Samy I did do the Botox injections, I am a little bummed because they had to "strictly follow"...

    @Samy I did do the Botox injections, I am a little bummed because they had to "strictly follow" the FDA approved protocol for migraine for the first injection, so none went into my jaw muscles or in other muscles around the ear areas. She said the next one they may be able to "tweak" it and put...
  7. ErikaS

    Suicidal Two Months After Tinnitus Onset from a Child's Scream

    Hi @Annina, so sorry to hear about your tinnitus onset and worsening. For many of us, the first few months are the hardest. This is not only a complete shock to your auditory system, but also to your limbic and nervous systems. Research has shown that the limbic system, which is involved in...
  8. ErikaS

    Ultrasound-Guided Stellate Ganglion Block for the Treatment of Tinnitus

    Hey @gracepixie, I am in the USA, specifically in southwest Pennsylvania. He is located about 20 minutes from my home, recently opened his own pain management clinic, and was willing to listen to my story and try to help. Just an update following my earlier post: unfortunately, the occipital...
  9. ErikaS

    Hi @gracepixie , so sorry I didn’t comment earlier ! The Ubrevly did not seem to do anything...

    Hi @gracepixie , so sorry I didn’t comment earlier ! The Ubrevly did not seem to do anything, good or bad, when it came to my tinnitus sounds and reactivity. It did seem to help calm down inner ear vibrations, but that’s been inconsistent too.
  10. ErikaS

    Such good news @Samy ! I just got a call yesterday that my insurance will cover Botox...

    Such good news @Samy ! I just got a call yesterday that my insurance will cover Botox injections, so they want to do it next week. Never had Botox injections before so I am nervous, just don’t want to experience a worsening with my reactive tinnitus ! I'm hoping it may calm my jaw muscles that I...
  11. ErikaS

    Elon Musk’s Neuralink Looking to Treat Tinnitus

    I just listened to the presentation and read the subtitles. Honestly, it sounds like something from a Marvel movie. I am not saying I agree with their goals related to creating superhuman abilities or increasing the average human brain’s capacity, but I fully support and admire their efforts to...
  12. ErikaS

    Introducing Tinnitus Quest

    Just saw the post with William Shatner on Instagram. What a great voice and a big name to help raise awareness for Tinnitus Quest! A huge thank you to our Tinnitus Quest board and team for all the work and effort you are tirelessly putting in behind the scenes. ☺️💪👏
  13. ErikaS

    Wanted to provide an update on my TTTS/MEM vibrations in my right ear. After pretty much nonstop...

    Wanted to provide an update on my TTTS/MEM vibrations in my right ear. After pretty much nonstop for 12ish weeks, they just stopped about a week ago. The ONLY change? I took 2-3 doses of Ubrelvy (CGRP inhibitor) that the Neurologst wanted me to try to see if it would help with tinnitus and...
  14. ErikaS

    Ultrasound-Guided Stellate Ganglion Block for the Treatment of Tinnitus

    After some tedious searching and making phone calls, I found a local doctor who is a board-certified neurologist with fellowship training in pain medicine and neurophysiology. He has a special interest in neurological disorders such as migraine, trigeminal neuralgia, and cluster headaches. He...
  15. ErikaS

    One Night Out with Earplugs Triggered a Severe Tinnitus Spike After Years of Stability

    @Strife_84, hey there, I do not come on the forum as often as I used to, but I just read through your thread and felt I had to share what I and a few others have experienced with in-ear protection. I am almost certain we are a rare and small group, so what I describe may not apply to everyone or...
  16. ErikaS

    Ultrasound-Guided Stellate Ganglion Block for the Treatment of Tinnitus

    I had been looking into this for its potential use in treating PTSD, as it may help reset the nervous system and break the constant fight or flight cycle. After reviewing this study, I feel even more encouraged to pursue it. I am currently in the process of finding well-reviewed practitioners in...
  17. ErikaS

    Acoustic Shock → Misdiagnosis → PPPD: 18 Months of Pain and Finally a Way Out

    @jack8092, thank you for sharing your story! This will definitely help someone along the way, and I am so happy for you that you finally found a doctor who was willing to think outside the box. Although, someone really should have thought to offer you an antidepressant well before the 18-month...
  18. ErikaS

    Seeking Help: Unusual High-Pitched, Reactive Tinnitus After Postpartum & Klonopin Withdrawal

    Hey there, I’m interested to hear where your sister went for Botox treatment in the middle ear and how the procedure was done.
  19. ErikaS

    @MindOverMatter what also makes it tricky is if I’m around other ambient sound, it’s stops while...

    @MindOverMatter what also makes it tricky is if I’m around other ambient sound, it’s stops while the other sound is going on, so that gives me a nice mental break and boost. But after I stop talking, turn the car off, go into the quiet, go to bed, etc that’s where it really comes out and shows...
  20. ErikaS

    @MindOverMatter I then get upset and think "if I don't stop simple life things for a while, it...

    @MindOverMatter I then get upset and think "if I don't stop simple life things for a while, it will continue to be agitated and become permanent”. But also staying at home and limiting more simple things life has me fixated on it and increases depression because I’m isolating.
  21. ErikaS

    Thank you so much for the encouragement as always, @MindOverMatter ! This may be a rhetorical...

    Thank you so much for the encouragement as always, @MindOverMatter ! This may be a rhetorical question, but did you find that progress over the 6 months was not linear? I find if I am stricter with staying home, in quiet, very much limiting “life” such as driving and noises it may start to calm...
  22. ErikaS

    @DimLeb My version of it is a pretty constant rumble/vibration in quiet, I can hear and...

    @DimLeb My version of it is a pretty constant rumble/vibration in quiet, I can hear and physically feel it, like a car idling. It stops when another sound is heard, but comes back more aggravated once that sound goes away. Like if I talk, as I talk it stops, but once I stop talking it comes...
  23. ErikaS

    Six and a half weeks since my most severe bout of MEM/TTTS vibrations started in my right ear...

    Six and a half weeks since my most severe bout of MEM/TTTS vibrations started in my right ear. It is so frustrating and mood crushing. Things that gave me relief or took it away in the past (chiropractor ear adjustments) don't seem to be working right now.
  24. ErikaS

    @sandyknight Definitely give your ears rest in lower level sounds, they went away once and...

    @sandyknight Definitely give your ears rest in lower level sounds, they went away once and should fade again with some time.
  25. ErikaS

    Hi @sandyknight so sorry I am only responding now. When it comes to distortions, they come and...

    Hi @sandyknight so sorry I am only responding now. When it comes to distortions, they come and go, but don’t seem to stick around or bother me to the extent they used to. Something that I learned that really exacerbates my distortions was wearing in-ear protection, from foam to custom ear plugs...
  26. ErikaS

    Only seeing this now- so so happy for you Sammy! I myself have made QOL improvements I never...

    Only seeing this now- so so happy for you Sammy! I myself have made QOL improvements I never thought I would. Still deal with flares here and there, but my mental game is so much better than when we were in the trenches over 2 years ago.
  27. ErikaS

    Thanks for the feedback as always @MindOverMatter .. To reframe it in my mind, I think of it...

    Thanks for the feedback as always @MindOverMatter .. To reframe it in my mind, I think of it like an eye twitch. I've gotten many of those over the years, haven't had one in a while but the worst being during stressful, run down times. Some cleared in a couple weeks, others a couple months. That...
  28. ErikaS

    @MindOverMatter It seems you have had these bouts. Funny how our symptom(s) paths cross w/ our...

    @MindOverMatter It seems you have had these bouts. Funny how our symptom(s) paths cross w/ our reactive tinnitus. I have not dealt with this level of vibration in a long time, so my mind goes to "I've really done it this time" & worry it may stay w/ me. Have you found your bouts tend to...
  29. ErikaS

    A very stressful week + louder noise exposure to music over a 2 hour period has left me with bad...

    A very stressful week + louder noise exposure to music over a 2 hour period has left me with bad TTTS vibration in right ear/head. It's the worst in silence, especially when going to bed & waking up. Temporarily cuts out when I talk or hear external sound. It's only been 7 days since onset, but...
  30. ErikaS

    Ear Sensation / Unsure of Diagnosis / Rant

    This sounds like a case of very sensitive TTTS mixed with hyperacusis—essentially what others have mentioned above. You noted some auditory trauma, so think of it as a “hit” to an already vulnerable auditory system. Tiny muscles, nerves, and other structures are now overreacting to sounds, which...
  31. ErikaS

    Can Yokukansan Make Tinnitus Better?

    @HighleyTall, I’m not sure how much licorice is in this Chinese medicine, but I’m currently experiencing a significant spike after taking a GI supplement that contains 350 mg of licorice root per serving. I took the supplement for three to four days before my spike led me to research its...
  32. ErikaS

    Thank you for the encouragement @MindOverMatter and @Scruffiey .. ears are still very...

    Thank you for the encouragement @MindOverMatter and @Scruffiey .. ears are still very exacerbated. They were somewhat heightened before this just due to life and a travel a little over a month ago, but notably spiked in all ways this week and it aligned with this supplement. Hoping it doesn’t...
  33. ErikaS

    I just wanted to share this because I had no idea, and I really hope it settles down after only...

    I just wanted to share this because I had no idea, and I really hope it settles down after only taking the supplement for 4 days. It’s crazy how much it exacerbated my auditory symptoms.
  34. ErikaS

    There are two mentions on here that Locorice root tea or the extract have exacerbated tinnitus...

    There are two mentions on here that Locorice root tea or the extract have exacerbated tinnitus. After doing some searching, it states "Licorice root can potentially exacerbate tinnitus because it can interfere with fluid balance in the body due to its mineralocorticoid-like effects, which can...
  35. ErikaS

    Haven't posted in a while but want to share this random and unfortunate effect of what I think...

    Haven't posted in a while but want to share this random and unfortunate effect of what I think is from licorice root extract. Started taking a supplement with this in it (dose is up to 350mg) with some other things to help treat gastritis. Ever since starting the supplement four days ago...
  36. ErikaS

    From Suicide Back to Normal Life Thanks to Habituation

    I love your positivity and your ability to habituate and live your life! Tinnitus may be one of the biggest “mind games” the human brain endures. I hope your ears remain stable. One of these days, I swear I’m going to write a thread about the possible harmful effects of earplugs for certain...
  37. ErikaS

    Clonazepam did not provide any better or more relief to my tinnitus or reactivity, so after 3...

    Clonazepam did not provide any better or more relief to my tinnitus or reactivity, so after 3 1/2 weeks of trying it, I switched back to Ativan with no issues. Still .5mg in AM and .5mg in PM.
  38. ErikaS

    Hello! Little updates. Found out my thyroid went through a random hyper phase (I have Hoshimotos...

    Hello! Little updates. Found out my thyroid went through a random hyper phase (I have Hoshimotos hypothyroid), so adjusting meds and hoping that helps T. Yes, thyroid issues can very much exacerbate or even cause T. Also, switched back to Ativan from Clonazepam. Clonazepam is a heavy hitter...
  39. ErikaS

    Would I Benefit from Continuing My Sick Leave or Should I Go Back to Work?

    Hello! I am a speech and language therapist working in a school environment. I developed multi-tone sound reactive tinnitus in fall 2022 following an ear infection that affected my right inner ear, causing nerve damage and sudden hearing loss in very high frequencies. Because my tinnitus was so...
  40. ErikaS

    @Nick47 I’m so sorry, the variability is maddening and would drive the most mentally stable...

    @Nick47 I’m so sorry, the variability is maddening and would drive the most mentally stable person crazy. Give your ears some time from those ear plugs, first time I did that it took like 6-7 months. This time seems quicker but my job is so stressful and kicking my butt, which kicks up my T.
  41. ErikaS

    @yeezysqueezy I’m aware there are two very strong sides about benzos, but when meds like that...

    @yeezysqueezy I’m aware there are two very strong sides about benzos, but when meds like that allow those with epilepsy or T like mine function and you’ve tried MANY other avenues, it’s what I’ve got and I stayed disciplined with it.
  42. ErikaS

    @yeezysqueezy only this summer with major spike from deep ear plugs and a travel did my psych...

    @yeezysqueezy only this summer with major spike from deep ear plugs and a travel did my psych and I decide to switch to Klonopin to try it and he said with me leaving my job beginning of January and looking to wean off while I’m not working, it is easier to wean from something with longer half life.
  43. ErikaS

    @yeezysqueezy hey thank you for your comment. I was on low dose Ativan daily for two years since...

    @yeezysqueezy hey thank you for your comment. I was on low dose Ativan daily for two years since onset and not only did it save me mentally but it, along with other things, allowed me to generally function again and go back to work full time in a school last March and do things I hadn’t done in...
  44. ErikaS

    @Cmspgran it wouldn’t be every time, but even during my spike I would notice an hour after...

    @Cmspgran it wouldn’t be every time, but even during my spike I would notice an hour after taking it most days me saying “well at least it took the high frequency down some” which is honestly huge for me. I don’t find myself saying the same thing with the Clonazepam at this point. And I did not...
  45. ErikaS

    @Nick47 i know every brain is different and even from male to female, but I don’t know how Brian...

    @Nick47 i know every brain is different and even from male to female, but I don’t know how Brian Fargo takes 1mg a day. I know I’m not even 3 weeks in yet but even .5 -.75mg a day is giving me issues with some short term memory loss and just not as alert. Maybe I’m still adjusting.
  46. ErikaS

    @Nick47 yes I remember reading that, and when you're taking it 1-3 times a week I am sure that...

    @Nick47 yes I remember reading that, and when you're taking it 1-3 times a week I am sure that affect is more noticeable rather than a small daily amount? I don't know, I am just trying to tell myself I'm temporarily spiked more so, so don't judge now but my goal is to just take .25mg in am and...
  47. ErikaS

    @Cmspgran currently spiked due to hormone fluctuations, stress at work, and a little more noise...

    @Cmspgran currently spiked due to hormone fluctuations, stress at work, and a little more noise exposure recently. I took .25mg this afternoon and .75mg this evening and honestly, still suffering and no lowering of frequency like I would get often with Ativan.
  48. ErikaS

    @Cmspgran now I’m clear of infection as of 4-5 days ago, and I have to say I do not actively...

    @Cmspgran now I’m clear of infection as of 4-5 days ago, and I have to say I do not actively notice a relief like I did an hour after taking the Ativan. This may be more of a gradual set in relief rather than the fast acting Ativan, therefore it’s so gradual I can’t always put my finger on it...
  49. ErikaS

    @Cmspgran it’s honestly hard to say. I started taking it about 3 1/2 weeks ago, then the very...

    @Cmspgran it’s honestly hard to say. I started taking it about 3 1/2 weeks ago, then the very next day got hit with awful upper respiratory viral infection that lasted for 14-15 days. Ears honestly held somewhat stable through all of that despite my awful spike in August that made me switch to...
  50. ErikaS

    Well I went from the post below to entering that time of the month and BOOM. Instant spike...

    Well I went from the post below to entering that time of the month and BOOM. Instant spike, increased reactivity, decreased mental and emotional tolerance, increased depression. As if this time isn’t annoying enough 😣
  51. ErikaS

    Doing some better than 2-3 months ago from major spike in August. Last day of work is January...

    Doing some better than 2-3 months ago from major spike in August. Last day of work is January 3rd, just trying to make it until then with so much paperwork and a large student caseload. Going to do my best to enjoy the holidays 🦃 🎄❤️
  52. ErikaS

    hey @ZFire so sorry for my very late response! Thank you for your comments and compliment I vey...

    hey @ZFire so sorry for my very late response! Thank you for your comments and compliment I vey much appreciate it. Mast day is January 3rd, so much paperwork and craziness with the holidays approaching but almost there! Mixed emotions of course, but it is the right decision and move for me at...
  53. ErikaS

    @Nick47 also currently doing .25mg during day and .5mg at night just from illness and very...

    @Nick47 also currently doing .25mg during day and .5mg at night just from illness and very hectic work week. I will also say the mindset of keeping myself occupied/distracted very much helps me. Distortions are much quieter and crazy sounds that came on in August have calmed down a lot.
  54. ErikaS

    @Nick47 last weekend I went out to dinner with a friend Saturday night at a medium level noise...

    @Nick47 last weekend I went out to dinner with a friend Saturday night at a medium level noise restaurant and was there for 3ish hours, then Sunday was at my sisters for a small gathering for her husbands birthday. Monday and Tuesday were exacerbated, but rebounded to more tolorable levels. I...
  55. ErikaS

    Hey @Nick47 sorry I had a very busy week at work and wasn’t coming on much. Yes illness is gone...

    Hey @Nick47 sorry I had a very busy week at work and wasn’t coming on much. Yes illness is gone and thankfully no significant setback from that. All in all, I’m managing okay and better than 4 weeks ago. I have moments where it’s a lot and reactivity is still super sensitive, but it’s not nearly...
  56. ErikaS

    I'm telling you @Nick47 , my most significant spikes/worsenings followed using them. I'm one of...

    I'm telling you @Nick47 , my most significant spikes/worsenings followed using them. I'm one of the last people on this forum to tell someone what to do, but if someone like me who has reactive T and not loudness or pain H, and I am too sensitive for in ear protection, I can't help but think...
  57. ErikaS

    @k9 the exacerbation from the LumoMed specifically was short lived but it is so hard to say...

    @k9 the exacerbation from the LumoMed specifically was short lived but it is so hard to say exactly because I had/have very reactive tinnitus and driving, traveling, etc all effected that.
  58. ErikaS

    Hey @K89 I could only do about 2-3 sessions at half power because it was spiking me. I was very...

    Hey @K89 I could only do about 2-3 sessions at half power because it was spiking me. I was very bummed because I believe in the benefits such as mitochondrial repair with red light therapy, but with my reactive tinnitus and very sensitive nerves, it was just too much for me at the time.
  59. ErikaS

    I am convinced the occlusion effect along with vibrations significantly exacerbate the nerves in...

    I am convinced the occlusion effect along with vibrations significantly exacerbate the nerves in my ear canals and into my inner ear. I truly did and do better in louder environments without those ear plugs than in quieter environments with them in. On top of the distortions, I would get bad...
  60. ErikaS

    The worst distortions have happened after I wore generic musician ear plugs that look like...

    The worst distortions have happened after I wore generic musician ear plugs that look like little screws and I made sure they were snug, then went about talking with them in and being in an environment where others were talking/low to moderate background sound.