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It seems that more people have received Neuralink. I don't think we know anything about it doing something for hearing disorders, but let's hope it will.

I don’t think it helps much, and sorry to say, but sound therapy or sound exposure is not a proven treatment for reactive tinnitus or hyperacusis. Not even researchers have confirmed this, and Treble Health, in my opinion, is a scam. If it truly helped, there wouldn’t be so many members here who...

Funny how, while our empathy for others increases with tinnitus, their empathy for us actually DECREASES. They often think we’re making a fool of them when we talk about the invisible things that are happening to us.

Lol, another incompetent ENT pulling a random story out of his head, trying to look like he knows something. Research keeps discovering new cell types in the cochlea, and tinnitus and dysacusis still can’t be fully explained. But no, this guy’s apparently a genius who already has it all figured...

Probably because the actual drug is an anti-inflammatory and is already used for some diseases. I’m guessing it’s similar to trialing Prednisone or something like that, and probably not worth the hassle.

About Betahistine and Lysine, they are low-risk options that you can try without a doctor’s advice, honestly. I do see the drop at low frequencies, which is suspicious. I don’t think I can help much though, since audiograms can be inconsistent and don’t show the bigger picture. It does sound...

All good points, but the big organizations and government departments already believe tinnitus is not a pressing issue, and this has been the case for years.

Such a great day, I've had 5 SBUTT's in the same ear so far today. I don't know if I should worry that something bad is happening.

That sounds a bit like MEM spasms of the stapedius muscle. I have not experienced that much myself, but people who have describe high-pitched sparks or a rattlesnake-like sound when the stapedius spasms or flutters. I have the type of MEM that causes a low, muted thumping, probably from the...

This is very unfortunate for you, and I truly sympathize, being a musician myself. I fear every day about this condition. I get periodic episodes of pressure, tinnitus, and changes in hearing, which may or may not be linked to hydrops or migraine. Thankfully, they are temporary, but always...

Well, I’m in no position to assess all that information thoroughly, but I still think it sounds better than the sketchy Lenire trial that had no placebo group. I like to think it is better than nothing, even if it has flaws, because if there is something, maybe someone will build upon it...

I’ve slowly lost interest over the course of all this, but do we actually have any information that things went wrong? I also feel like there might be something fishy about this story, but maybe I missed something.

Let's hope something actually moves forward, and she won't recycle old stuff.

I don’t think I can help much, but I’d like to ask because it sounds similar to some episodes I’ve been experiencing. About the metallic ringing, do external sounds trigger it inside your ear, like with reactive tinnitus? For example, when you hear running water, other people’s voices, music...

I believe that as well. The fact that there is still complete radio silence about this device after so many years suggests that something is off. Either it does not work—at least not as it was supposed to—or it got buried in a logistical or bureaucratic mess.

Well, I am not new to the forum. I actually posted my first message around this time four years ago, and I am well aware of your post. I read the forum almost every day, especially now during these desperate times. I am truly sorry for the unfortunate things that have happened to you. Positivity...

I wish I had hair loss problems being 31 years old like most friends have, instead of ear problems.

Hi all, I’m desperate for any guidance or even just a few words of encouragement. I feel completely lost. My story is long and complicated, but I’ll try to explain it clearly. For the past 4 years, I’ve been dealing with tinnitus that is usually mild but unstable. I also get loud sound bursts...

Freakin' cicadas high season. Their level is surely above 90dB all day long, as I happen to live in a suburb with lots and lots and lots of pine trees. They often give me the scares that I hear dysacusis tones on their screech too.

Yeah, sure, fair points about placebo control and risk consideration. However, an ear with a cochlear implant is, by default, destroyed in the process, and that is vastly different from the ears of people with only sensorineural hearing loss, which they seem to highlight on their site...

I still do not understand why they need to test it with cochlear implants. What is that supposed to mean for those without them?

No, just no.

There is some really really promising stuff in this report. I wonder, will they ever see the light for a possible treatment?

I seem to be going through the same thing now. It started about a month ago as a beeping, reactive, and distorted tone, but it has now turned into more of a clicky Morse code sound. For a few days, I thought it was getting better because I did not notice it as much, but over the past few days...

Exactly. Tinnitus is a very serious condition, and I find it laughable that charlatans try to sell so-called treatments for over a thousand dollars. These often amount to nothing more than sound samples you could find on YouTube for free, combined with a few “learn to live with it” tips—advice...

Jesus Christ, what am I reading? Of course you were not improving after two years of TRT, because TRT is like trying to treat heart disease with “positive thoughts.” LOL.

Has anyone seen this new-ish video from Hough Ear Institute's YouTube channel? I know they have been scammy af so far, but I'd like to read any thoughts.

Your story sounds very similar to what I have been experiencing over the past few years. However, I did not take any SSRI or similar medication. It all seems to have happened to me without any clear cause. Over the last four years, my symptoms have been building up — tinnitus, TTTS, random...

"The severity of tinnitus is influenced by associated symptoms such as stress, anxiety, depression, and insomnia." I stopped reading when I saw that, along with terms like TRT. It is just another useless “research study.”

Unfortunately, no. My TTTS is still the same—some days are worse, and some are a bit better. A few months after that message, I also developed MEM, which involves hours-long episodes of spontaneous spasms, flutters, or vibrations, usually triggered by yawning, burping, and similar actions. I...

@Kraazy, that’s really good that you are done with the distortions, man. I remember reading your story on Reddit, if I’m not mistaken. Unfortunately, I’m dealing with something similar. Over the past three weeks or so, one distortion has appeared in high-frequency sounds without any specific...

Bump? I’m still dealing with it. I’ve noticed that the reactive tone is probably less pronounced or even absent in the morning after sleep. However, it becomes bothersome as the day goes on, possibly after I’ve been exposed to various sounds that trigger it. Fortunately, not all sounds trigger...

Hello, My history with ear issues has been quite long and complicated. For the past four years, I have had mild to moderate, unstable, multi-tonal tinnitus with normal hearing. I am a 31-year-old male. I frequently experience sudden, loud tones that appear and disappear within half a second or...

I have been suffering for about four years from TTTS (spasms in response to sounds) and for two years from MEM (spontaneous). Nothing has really helped, even after trying sinus rinses and a bit of nasal steroid spray. I have also been diagnosed with ETD and a retracted right eardrum, but there...

Great, now trying to deal with a new sudden reactive tone/distortion on top of sounds, after 4 years with tinnitus, SBUTT's, scary inner ear sensations, TTTS, MEM, tinnitus spikes etc, now this. Shit keeps piling up. Do you think this can go away? After waking up it seems gone, and ramps up...

I am dealing with a similar situation right now, noticing a reactive tone and distortion frequency on top of sounds. There is no obvious reason for it, other than some tinnitus fluctuations over the last few weeks or about a month. My tinnitus has always been unstable anyway. It is so...

This thread should really stop having the word "New" in the title...

In other news, during deep sleep, the brain can naturally turn off vision and smell as well. LOL. Basically, we’re not aware of much when we sleep!

Because they already blur the process and any results with something that significantly affects the ear, it reminds me of how Frequency Therapeutics relied on a largely subjective test to measure outcomes, which ultimately proved useless. This seems like a similar situation. And of course, it...

"All of them will receive cochlear implants along with Rincell-1." That smelly smell that Frequency Therapeutics had...

Not specifically for TTTS, but for my MEM (spontaneous spasms not in reaction to sounds), I tried taking Magnesium and sinus rinses/nasal steroid spray. They had no effect at all. I've read online that Carbamazepine and some other anti-epileptic and muscle relaxer drugs can help both TTTS and...

For a moment, I thought I was writing this myself—it’s so relatable! I’m not sure if I’ve mentioned it before, but I also experience reactions to certain sounds and even to touching my face, which is probably related to TTTS. Regarding your question, over the past year, I’ve also started...

Well, some research says this. I also read somewhere that the change in fluid pressure causing hydrops might be due to the ossicles being pushed by those muscles. So, irregular muscle activity could be responsible for those SBUTT symptoms. But who knows, these are all just theories. Yeah, same...

That's good if things return to normal. I get what you mean about "normal," as I also have permanent mild to moderate multi-tonal tinnitus. It can be particularly bothersome on some days since it's variable. On top of that, I deal with TTTS (spasms triggered by certain sounds) and occasional MEM...

Yeah, except it doesn't. That explanation sounds incredibly shortsighted, especially for people with an unknown or idiopathic cause. You might never identify the root issue, and the tinnitus could progressively worsen due to factors like autoimmune conditions, viral infections, hydrops...

Seconds after the year change, I got a huge SBUTT that seemed to be coming from the center of the head. Then one ultra high pitched in the right ear. Now having a MEM episode. Great start.

Lol, I doubt it. More like a minimum of 50 years.