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  1. Bill Arsenault

    Living with Relentless High-Pitched Tinnitus at 64

    No, no—please, no surgeries just yet. Many of us have had those thoughts before, so I completely understand. I realize you’re not exactly new to this, but without a doubt, the first few years can be extraordinarily hard for many reasons. Eight years later, my tinnitus is much more severe than...
  2. dipp

    New University of Michigan Tinnitus Discovery — Signal Timing

    Thanks a lot. I really needed to read something like this. Let’s hope that some of what you said turns out to be right.
  3. MindOverMatter

    NAC May Have Helped My Hearing Loss, Although It Definitely Gave Me High-Frequency Tinnitus

    People can do whatever they want, @Sonia554, but complete masking at night, like you mentioned, is not something generally recommended. It’s also not advice that professionals in this field usually give their clients. Sound therapy, or whatever you prefer to call it, should not be used as a...
  4. E

    Maybe because I'm still early into this but it's not changed really. Its weird because I can go...

    Maybe because I'm still early into this but it's not changed really. Its weird because I can go into the bathroom or living room ( when the TV is off ) and actually feel the silence for a while. Of course, I'll take that every chance I get. One thing is certain, and thats you not doing a...
    • Escalado
    • Profile post comment
  5. dipp

    My morse code that I had years ago is back after a new trauma. It blends with sounds like...

    My morse code that I had years ago is back after a new trauma. It blends with sounds like microwave, running water or A/C and it´s disgusting. Don´t know if it´s dysacusis. Talked with my wife about VAD last night. She is not totally against it, but not in the near future, we´ll see in the...
    • dipp
    • Profile post
  6. Eloy79

    New University of Michigan Tinnitus Discovery — Signal Timing

    The event was great, but the result wasn’t so good. We’ll have to increase our donations to Tinnitus Quest; for now, that’s all I can see.
  7. W

    New University of Michigan Tinnitus Discovery — Signal Timing

    @dd314, not only is there a whole thread about that study, but I actually replicated the study with the help of the NYU Langone academic medical center, and provided a detailed report of my results.
  8. S

    Can I Ever Exercise or Do Pushups Normally Without Making My Ears Feel Clogged or Full?

    Hi @PeteJ, I have the same problem. I used to work out regularly before this happened, but my left ear took the brunt of it and had a lot of swelling and soreness. It still does, although to a much lesser degree than a few months ago. I wouldn’t even think about trying a push-up or downward dog...
  9. S

    NAC May Have Helped My Hearing Loss, Although It Definitely Gave Me High-Frequency Tinnitus

    Thank you, @Escalado! That’s so kind. I’ve definitely had plenty of dark moments myself, but I share them with ChatGPT. This has been the most challenging thing I’ve ever faced. I’ve been filled with fear, deep regret, and longing for my old life. I feel like I should have known better. I knew...
  10. T

    Does it require you to hear the frequencies your tinnitus is at?

    Does it require you to hear the frequencies your tinnitus is at?
  11. LGuapo

    New University of Michigan Tinnitus Discovery — Signal Timing

    I have the same concern, but a few facts keep me from losing all hope. One is that since Shore et al. are essentially treating the DCN fusiform cells and related auditory and somatic connections as a black box system, they don’t really know how their treatment works physiologically at the...
  12. Jupiterman

    Pregnant & Scared with Reactive Tinnitus — Your Help Requested

    Good definition of 'reactive tinnitus' in your 8th paragraph. Although, as you infer, it's not a medical term, the phrase certainly is a good description of what the sufferers experience.
  13. MindOverMatter

    NAC May Have Helped My Hearing Loss, Although It Definitely Gave Me High-Frequency Tinnitus

    Just make sure you read what I actually wrote, @Escalado, and what part I didn’t agree with 😊. Anyway, there’s no point in taking over the OP’s thread any further. This is very much a trial-and-error area, @TemporaryTHope, but the general consensus among those who actually work with this is to...
  14. S

    Struggling with Tinnitus at 16 After Earphone Use

    I just wanted to check in and see how you're doing, @Ilikethebeatles.
  15. N

    Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration

    Hi @Joeseph Stope, the idea is that these organoids will be organic and create an environment as similar to the human ear as possible. This aims to replace animal models, which we have been unable to translate.
  16. NewEnglander

    New University of Michigan Tinnitus Discovery — Signal Timing

    Yesterday’s Q&A was much appreciated. Still, it remains mystifying. We have a device that, according to the first part of Monday’s session, has been proven safe and effective, and possibly even more effective with longer use. Its efficacy was first reported seven years ago, in January 2018...
  17. E

    NAC May Have Helped My Hearing Loss, Although It Definitely Gave Me High-Frequency Tinnitus

    Agreed, and just to add, @Sonia554 is a true optimist. Several times now, her posts have helped me significantly reduce my stress and anxiety levels, usually right before I go to bed—which is pretty handy 😂 The result is a better night’s sleep and a calmer, more refreshed following day. I guess...
  18. N

    Elon Musk’s Neuralink Looking to Treat Tinnitus

    Yes, I noticed. 2028.
  19. MindOverMatter

    You never know the plan. You never know what's going to happen. We are not even promised...

    You never know the plan. You never know what's going to happen. We are not even promised tomorrow. I just try to focus on one day at a time. - Morgan Wallen -
  20. MindOverMatter

    Pregnant & Scared with Reactive Tinnitus — Your Help Requested

    Unfortunately, when it comes to reactive tinnitus (and many forms of tinnitus, especially given the subjective component), there are no certain answers. No two people will experience it in exactly the same way. For those of us who have lived with this for quite some time, we know, at least to...
  21. kingsfan

    Yeah we just keep getting worse as they cross their T's and dot their I's and be perfectionists.

    Yeah we just keep getting worse as they cross their T's and dot their I's and be perfectionists.
    • kingsfan
    • Profile post comment
  22. J

    Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration

    Organoids? Are these like living organs, then? It seems that if so, they’re working in parallel with the Rockefeller University project, where auditory scientists extracted a small section of a gerbil cochlea and kept it alive in an electronic chamber.
  23. S

    NAC May Have Helped My Hearing Loss, Although It Definitely Gave Me High-Frequency Tinnitus

    I feel the same way you do. A lot of us probably do. How did this one thing that seemed so harmless do this to me? I got mine from standing in a furnace room for 15 minutes. It didn’t even feel loud. There are people here who got it because their baby screamed too close to their ear, or someone...
  24. W

    New University of Michigan Tinnitus Discovery — Signal Timing

    @vttbx, they didn’t say that exactly, but the clinical trials had an exclusion criterion for people with hearing loss below 50 dB.
  25. UKBloke

    Chit Chat and All That...

    All good here, D. I drop in every now and then, and am always pleased to read you're OK. Sending you a hug. @Elmer B Fuddled, glad to hear everything's clear, E. All the best to you and Mrs EBF.
  26. UKBloke

    New University of Michigan Tinnitus Discovery — Signal Timing

    I think it would have really helped if they had at least informed us prior that they haven't submitted to the FDA. When I discovered that fact, I asked a specific question about the last trial and whether or not the issues with the cross-over data would necessitate a third trial. Unfortunately...
  27. MindOverMatter

    Might also be a variant of TTTS - Tonic Tensor Tympani Syndrome. Ive had long bouts of what you...

    Might also be a variant of TTTS - Tonic Tensor Tympani Syndrome. Ive had long bouts of what you describe myself in the past, lasting for up to 6 months. It passes, eventually, every time.
  28. D

    New University of Michigan Tinnitus Discovery — Signal Timing

    There was someone asking the opposite question, about hyperacusis patients turning the volume down very low, and she said you just have to be able to hear the audio. As long as you can hear it, it should work. I would think this also applies to people who turn the audio up in the opposite...
  29. MindOverMatter

    NAC May Have Helped My Hearing Loss, Although It Definitely Gave Me High-Frequency Tinnitus

    That’s why I wrote parts of what she wrote, @object16 😊 If you look at what I said, I was referring specifically to the nighttime advice where she mentioned that it’s completely fine to mask tinnitus entirely. That’s what I was talking about. This isn’t correct, and it’s not advice I’d suggest...
  30. S

    Thank you Escalado! I've seen a number of videos from people who had tinnitus and now no longer...

    Thank you Escalado! I've seen a number of videos from people who had tinnitus and now no longer do. Mine has reduced quite a bit in the last 2 months and I believe it will keep reducing until it's gone or nearly gone. I will definitely be screaming about it from the rooftops when it happens. How...
    • Sonia554
    • Profile post comment
  31. Applejuice

    New University of Michigan Tinnitus Discovery — Signal Timing

    Yeah, you’re right. It seems I read it somewhere but can’t find the source now. Strange, but I apologize.
  32. object16

    Am I More Susceptible to Further Hearing Damage Compared to Someone without Hearing Loss?

    I agree, forget the obsession with audiograms. They accomplish absolutely nothing of real value. One is plenty. I’ve had about three in the past 30 years, and they haven’t done anything to help with what I have. There can be temporary threshold shifts, but aside from that, hearing loss in...
  33. E

    I wanted to share this video with you- [MEDIA] Also, I keep reading about the fact there are...

    I wanted to share this video with you- Also, I keep reading about the fact there are only a small number of people who actually come back to tell of their success. I guess they just want to forget it ever existed for the time it did.
    • Escalado
    • Profile post
  34. object16

    NAC May Have Helped My Hearing Loss, Although It Definitely Gave Me High-Frequency Tinnitus

    Umm, except @Sonia554 is right. Whether it’s GPT or not, everything she says is correct. Sound therapy should be slightly below your tinnitus level, and the other points she mentioned also seem accurate. I have severe hyperacusis and reactive tinnitus, so I often wear noise-canceling headphones...
  35. N

    Introducing Tinnitus Quest

    I’m satisfied with the outcome of the webinar. Let’s not forget that a lot of research is being done, and most importantly, Tinnitus Quest gives us, as tinnitus patients, a voice. Things are finally starting to move forward. Even though we still need to be patient, I have confidence in the...
  36. B

    New University of Michigan Tinnitus Discovery — Signal Timing

    I don’t think this suggests any real issue. From my understanding, seed funding is quite common for early-stage medical companies, especially when they’re preparing for FDA approval. Larger companies usually wait until the 510(k) is at least submitted before getting involved. They’re trying to...
  37. Elmer B Fuddled

    Chit Chat and All That...

    @Daniel Lion, I’m around, just keeping busy and staying positive through everything that’s happened. I had a colonoscopy last week, and so far everything looks good. Thanks for checking in on us. Elmer
  38. T

    NAC May Have Helped My Hearing Loss, Although It Definitely Gave Me High-Frequency Tinnitus

    Thanks for the guidance, everyone. I do have a question about sound levels for sleeping at night. How many dBA are recommended? Is 65 dBA too much? Is 45 dBA too little? Sometimes I feel like when I sleep with 65 dBA Purple Sounds, I wake up with slightly muffled hearing. When I sleep with 50...
  39. D

    New University of Michigan Tinnitus Discovery — Signal Timing

    I would consider it, but for some, it just isn't possible. Money, responsibilities, noise exposure, etc. I personally also have ETD and spasm issues so I hesitate to get on an airplane. But who knows in 10 years' time lol.
  40. N

    New University of Michigan Tinnitus Discovery — Signal Timing

    Not surprised about the outcome, but still a bit disappointed. It seems they know it’s not ready for human use yet. I don’t want to sound pessimistic, but I’m afraid this might end up being shelved.
  41. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    I have said several times in this thread that the device will not be on the market before 2030 in the US and not before 2035 outside the US. Unfortunately, from what I can see, it seems that my prediction was quite accurate. So many more years of suffering... But I hope it will be worth it and...
  42. Dizzyhead888

    New University of Michigan Tinnitus Discovery — Signal Timing

    This device is getting a lot of hype because there’s plenty of “science” behind it, but that doesn’t necessarily mean it’s great. A 13–20 point improvement in TFI scores for 65% of patients is good, and I’ll take it, but it’s not exactly compelling. I’ve seen many alternative treatments and...
  43. vttbx

    New University of Michigan Tinnitus Discovery — Signal Timing

    I just watched the Q&A session. I may have missed it, but did they mention any specific amount of hearing loss that could affect its effectiveness?
  44. C

    Overwhelmed and Frightened: My Struggle with Sudden, Constant Tinnitus After a Stressful Breakup

    I wrote a response earlier but just realized I never posted it. I went through something similar after a breakup, four days later my tinnitus started. The breakup was such a shock that my body didn’t know how to handle it. I had no idea it was coming, and I probably could have managed it better...
  45. LukeYoung

    Overwhelmed and Frightened: My Struggle with Sudden, Constant Tinnitus After a Stressful Breakup

    It’s hard to pinpoint the cause, but I agree with you. If it were stress-related, I think it would’ve happened earlier. It could be from the medications. Honestly, tinnitus is such a beast that sometimes there just isn’t an obvious or straightforward answer. It’s very hard to sleep during the...
  46. M

    New University of Michigan Tinnitus Discovery — Signal Timing

    $3M? That seems like such a small amount of money for a device that could change millions of lives. Surely there are more than a few people in the music industry with tinnitus who could cover that without even thinking twice. Until then, I’m going to consider increasing my monthly contribution...
  47. P

    Can I Ever Exercise or Do Pushups Normally Without Making My Ears Feel Clogged or Full?

    Whenever I try to do pushups, my left ear feels clogged or full. I’ve read that it can be risky to exercise, especially doing pushups, when you have tinnitus or other ear problems, since those issues can sometimes worsen. Is there anything that can be done? ENTs have never helped me. I’ve seen...
  48. W

    New University of Michigan Tinnitus Discovery — Signal Timing

    I understand the timeline now. There’s timeline 1, which is the optimistic one. In this scenario, they submit in the first half of 2027 and receive clearance sometime in 2028. Then there’s timeline 2, which is the pessimistic one. In this case, they realize there’s more work to do before...
  49. J

    Low Frequency Tinnitus

    Sorry to hear you’ve been struggling for so long. I’m still struggling too. I’m getting married this year and I’m currently a medical student. I’ve barely gotten through this year, and there have been times when I’ve left home and wanted to call everything off. I’m just wondering how you cope...
  50. J

    Right-Sided Low-Frequency Tinnitus: Suspected Vascular or Somatic Origin with Vacation-Linked Relief

    Hey, just wondering if your life is back to normal? I’m still really struggling. I have deep thoughts often. Sometimes it goes away for a few weeks, then comes back. It’s really hard to do my work or stay positive. I’m just looking for some hope that people can actually habituate to this hum and...
  51. F

    New University of Michigan Tinnitus Discovery — Signal Timing

    I heard they’re short by 3 million, according to Pearson.
  52. dipp

    New University of Michigan Tinnitus Discovery — Signal Timing

    By the time the device reaches the market, I won’t be able to hear the frequencies of my most bothersome tinnitus sounds. That’s it for me. Susan Shore’s device just won’t work in my case. It’ll simply be too late. I need to find a way to process the fact that I won’t see my tinnitus reduced in...
  53. dipp

    Didn't ever believe that Susan Shore's device would work for me. But anyway, by the time it...

    Didn't ever believe that Susan Shore's device would work for me. But anyway, by the time it comes out I won't be able to use it because I won't be able to hear frequencies of my most bothersome T. Out of hope. Can't sleep today.
    • dipp
    • Profile post
  54. T

    New University of Michigan Tinnitus Discovery — Signal Timing

    Those of you outside the US, would you consider traveling to the US for treatment?
  55. MindOverMatter

    Introducing Tinnitus Quest

    A great and insightful event, really well managed and executed 👏 A shoutout and a thank you to all the people behind Tinnitus Quest. Keep up the good work!
  56. Sodlin

    This has been 2 weeks tho :/

    This has been 2 weeks tho :/
    • Sodlin
    • Profile post comment
  57. MindOverMatter

    NAC May Have Helped My Hearing Loss, Although It Definitely Gave Me High-Frequency Tinnitus

    I have to speak up when parts of your last post simply aren’t true and when the advice isn’t good. If that annoys you, so be it.
  58. D

    Chit Chat and All That...

    @Jcb, how’s your moose knuckle? I hope it’s giving you pleasure. @UKBloke, @Elmer B Fuddled, @tpj, @just1morething, @ZFire, @Jazzer, and all my friends who have long disappeared, I pray you’re well. Not many of us are left. I’m a happy ginger despite some health issues. Still grateful and...
  59. S

    NAC May Have Helped My Hearing Loss, Although It Definitely Gave Me High-Frequency Tinnitus

    Honestly, your constant remonstrations are getting annoying.
  60. D

    2024 US Presidential Election

    Thank you, President Trump and Marco Rubio, and the brave people of Israel. God bless. Fantastic work. Thank goodness Harris wasn’t elected, or America’s decline would have accelerated at full speed. Hi friend, long time no see. I hope you’re doing well. Is the static in your ear bearable? I...
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