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I am so sorry. I wish I had advice. I am also living in my room. I had to leave my job, my home, my husband, and my son to move in with my mom because I could not handle the noise at home. I have only had tinnitus for 9 months, but it went from mild to severe within a few weeks back in January...

How are things going with you? Still doing no muffs?

How are things going now? I’m nearing the end of my taper, about 6 weeks left.

Hi @LindaS, how did it go for you?

Hi. How did you get your reactivity and pain to fans and digital audio to go away? Did you just wait it out? Did you use any meds? Did you stay in quiet?

How have you been?

I am dealing with the same situation. I went from having one mild or moderate tone to experiencing over ten awful tones in just a few weeks. How are you doing?

The tinnitus just keeps getting worse. I stay in my room or the hallway in quiet. Doesn’t seem to matter.

Wow, this sounds like a wonderful place to live. :)

I can’t do this much longer. The sounds are horrific and the pain from nox. I really tried.

New tones daily. They get faster and stronger and make my body tremble. Can only sleep 3-4 hours with a benzo. Feels like my brain is breaking down. Starting to see green when I close my eyes instead of black. I’m scared.

I messed up with benzodiazepines. I had one tone and some noxacusis before taking them, but now I have ten different tones and things are getting worse every day. Can it get better? My tones feel more like they are in my brain than in my ears. I tapered too quickly and I am still only halfway...

Been talking to chat gpt. Apparently rapid paced tones that don’t change and are in your brain rather than ears is a symptom of severe auditory hyperactivity and likely permanent. I’m fucked. If some of these tones don’t go away I’m out.

If I’ve had a new tone for a week, it’s probably permanent right? Sounds like rapid fire piano keys banging.

Does anyone know if, when you apply for Pegasos or Dignitas, you have to do it within a certain time frame? Or can you apply and pay, then have your place secured for when it becomes too much?

I wish I didn’t know what was happening to me. I used to hope it’d stabilize. Now I see it’s just going to progress.

He does not have regular tinnitus. He has something similar to what I have, and it is brutal. He is going to need a lot of support, especially from others who are severely affected. Do you have weird tones like this too? I am going absolutely insane. I wear earplugs all the time and I am...

Everytime I think it can’t get worse, I’m proven wrong with a new tone, that is often worse. Just trying to do basic things like taking a bath or eating or taking ear plugs out for a few hours at night. At this point I don’t know if the new tones are sound exposure or from meds and my brain is...

Any updates?

Someone tried to get it, but their doctor would not prescribe it. 😕

I am getting worse almost every day, with chaotic tones that are not pure tones or hissing. I feel like I am going crazy.

Hello, how are you doing now? My tinnitus also gets worse with walking and driving

Hi. Did you ever end up trying Pramipexole?

How are you doing now? Are you still taking the medication for RLS?

Did you have to increase your benzodiazepine when starting Carbamazepine?

How much protection, though? I can’t live in silence 24/7.

I need hope for severe multi-tonal tinnitus and some noxacusis, please. I have around 10 different tones. They aren’t the usual “eeeeee” or hissing types. They sound extremely fast paced, almost like someone is rapidly banging on a piano key, or like screeching violins. I also have TTTS and...

How have you been? Do you still have bag pipe tones and stuff?

No longer able to sleep over 3 hours even on benzos. T is too intrusive and h causes every noise to jolt me awake. Nox is off and on I guess. Accidentally messed up my benzo cross taper and was taking way too little. Went up to almost the correct dose but it isn’t working.

Did you ever try Clomipramine, @Blix M. Paraglot?

Hi you said Rojo is still alive back in 2021. Do you have their fb name? I have very similar symptoms to them and want to know how they are

How has your insomnia been?

Hey! How are you doing now?

You still around?

Have you recovered any?

Ears are so sensitive. Every car that drives by causes a squeak or a reaction in tinnitus. Can’t get away from the cars. Some pain around ear.

How are you doing now?