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So interesting to hear everyone's different audiologist stories. From full of hope success stories to 'well, just wait and see what happens'

Same.

Oh man, AM 101 memories. I remember the car salesman pitch the site coordinator gave us when he heavily implied so many people were cured when...

We all tried many a'remedy during the first few desperate months.

it took nearly 4 months for me to get anything, didn't even get gas covered although they said they would. never received anything from the second...

Such a heartbreak. Meanwhile I still have my smug site coordinator begging me to return. Fat chance after all this.

I wouldn't hold my breath. Shady would be the optimal word to describe my experience with this whole process.

Amen

Hi everyone. It's been a while. Been quite a few months since I had the open label injections. Zero improvements. Only difference is slightly...

Well my aloof doc let the needle actually slip out of his hand during my second day my first round. Hurt like hell, he just says 'oop's and re-did...

I think I'm pretty close to being done guys. Exactly one month ago I had the open label round injections. For 1 week the T was a little louder...

Shit, sounds like a few of us are trying to weather storms. Stay strong is I guess all we can do. I kinda wish past participants would make...

@TC426 how are you doing now?

48 hours since the final open label injection. Hearing is really muffled. T is definitely louder. God I hope this goes away. How's everyone else...

14 hours post injection. headache, feeling a bit disoriented and queasy. ugh.

Just got the injections for the open label round 1. Tinnitus definitely louder, hearing muffled. God I hope this isn't all for nothing.

Looks like a couple of us start round 2 today. Ugh.

No I'm over in Southern California, what bothered me was how aloof their attitude was toward us participants. At no point did he say 'in case you...

Well after being 99% sure I got the placebo back in February I start my 2nd round open label injections on Monday. I'll keep you guys updated....

Curious if the open label has ever helped anyone, seeing as how I'm pretty damn sure I got the placebo I'm praying it can provide some relief.

Hey guys, been a while since any updates, I wanted a lot of time to pass before I gave a real assessment of this process. So my round 1 is about...

My ENT didn't mention anything about not swallowing or yawning or anything during the half hour of waiting after the injections, am I the only who...

My ENT told me I was only 25th person he's injected in 2 years. But the site coordinator I spoke to on the first day said in a vague way they've...

Sadly, the majority of ENT's are a waste of time, all they'll do is tell you some kind of combination of " learn to live with it/it may go away ",...

What a tangled web we weave

Not to mention all the people who did the phase 1 and 2 trials. You'd think more people would have 'where are they now' style updates years after...

By the way, how long does it take on average to get that 300 bucks we have coming to us after the injections? My doctor had no idea

Deafness or decreased hearing? There is a BIG difference.

Doing round 2 John?

I'll be posting my experience after injection 3 on Wednesday. As well as some tips for people who are having trouble getting accepted. There are...

Literally laying here minutes after first injection. Awaiting the next. Hurts a lot more than anticipated

T minus 8 hours till the first injection, here we go.

Feeling any lasting side effects John?

Had a brain CT scan couple weeks ago, wore earplugs but probably didn't need to. It isn't loud at all, apparently MRI's are. There's nothing to...

don't know whatcha got, till it's gone.

I'm learning persistence/being borderline annoying is the only way to get things done during this process.

So weird, I know the Santa Monica one was SUPER strict about things. Was that the first clinic you tried?

Yeah I was just told by the dude the 9 days before the first injection are the most important. I'm a bit confused, you were rejected at a...

I know each clinic is different but does anyone know how strict they are on the daily diary thing? I'm still a week away from my injections and...

Umm, temporary right?

Shatner and Ozzy should do and Odd Couple style speaking tour.

Hmm in terms of safety, there haven't been reports of permanent side effects have there? I wonder if theres any risk of stuff happening 5 or 10...

How long before you felt brave enough to attend your first 'loud' event? movie/bar/etc

Well dudes, looks like I'm starting the screening process this Friday 2 hours away in some little town I've never heard of. Add another...

Waiting to hear back to see if I'm accepted. Only thing I'm afraid of is while checking past medical records they might frown upon seeing the...

Well done Mr. Bond

Good stuff man

Thinking about trying it just to see what happens. What do you guys think is a decent amount of sessions to see any general benefit?

As a dude with generalized anxiety disorder, I can totally attest to the incredibly awful things anxiety can do to your body, convincing me I have...

Thanks man, I will. I can't seem to find a direct number. I only found a number from Googling the office address, would (310) 586-0843 be the good...

I would have actually welcomed any kind of drug or injectable steroid offer, even if futile it would have felt a bit better than the 4 minute...

It was actually reading your temporary side effects that kinda scared me man. But I think it's now worth at least trying to get into the screening...

Hope works great only in songs and the movies I'm finding out. The ent's response to asking whether or not things like movie theaters or shows...

I hear ya man. I was hesitant trying to go the AM 101 route because of the really scary side effects some of the guys in the participants thread...

Don't we all.

Damn man, I wish I had have of the courage that you do.

Oh man, this topic is what I was afraid of :(

Hey, Although I'm still fairly new to this (about 3 weeks) I'm noticing the same thing in just bringing it up to people in real life. I've heard...