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I do wonder if extracochlear electrode stimulation might be helpful in the future (if one was prepared to have surgery to have a device fitted).
Hi @Jupiterman. Sorry for the delay. I'm doing well, thanks. My tinnitus has very slowly worsened over the years but it bothers me less and...
Almost 7 years in for me! Pffffffff.
This is a very interesting thread. Lots of great contributions and things to think about. Thanks. Best wishes to all.
@GDK, thanks for posting this. I developed EXACTLY what you and @Ben Winders describe in my good ear about 2 years ago and I have been wondering...
It seems perfectly reasonable to me to still want to have silence. I guess it’s only a problem if that desire keeps you stuck in a state of...
@Bluemoon, one of the biggest breakthroughs I had was when I stopped measuring my success by how much I was aware of my tinnitus. It allowed me to...
@Bluemoon, I am able to go many hours without noticing it and even slight distraction makes me unaware of it but I still have plenty of time when...
Hi @Ed209, glad to hear you are doing well. Great stuff. Thanks for all your support over the years. Best wishes mate.
@Oreilles, thank you for your positive post. It is getting towards 5 years for me now and I am following a similar trajectory. I haven't achieved...
Hi @billie48. Did they not offer you an intratympanic steroid injection? I’d be happy to discuss with you if you want to PM me? BW
@Gb3 I am in a far better place than I was but it's not quite the bed of roses I imagined this far down the line. I'd still walk across hot coals...
@Gb3 No I just have a low rumbling vibratory hum in my good ear. Been there for a year now. I seem to get a new tone every year unfortunately but...
:popcorndrink:
@Thuan I’m optimistic but no more optimistic than I am about current hearing restoration methods that don’t reliably improve tinnitus.
@CAgirl . I see you are very early in this process. Lot’s of people see a reduction in the first year or even later. Even if you don’t it’ll be...
@GregCA You too! It’s pretty crap isn’t it but what can you do? I just try to have fun every day, even when I can’t face it. How you getting on?...
@CAgirl sorry for the delay. Been pretty busy! I’m doing reasonably well these days. Not great but way better than the first couple of years when...
@Candy Sorry for the delay. Mine is also brutal at the moment and I'm not doing well (again!). Only just making it into work each day. I do find...
Hi @monkey124. That doesn’t really sound like a noise induced history to me and the olive oil will not be relevant so don’t worry. Did you have...
@monkey124 No problem, message me!
I'm pretty sure I know what Zack would say to that...
It's hard to say how much I have loved Rage Against The Machine through my life but never got to see them. I REALLY love them. I have horrendous...
What do you do about multiple sounds in your head that you can hear with a power shower on your head? It's not fair really, but I'm carrying on...
I agree with that passionately. I find it very irritating reading endless 'papers' written about psychological approaches. Helps some, but we need...
I would have thought that one of the cornerstones of CBT is not to focus on the characteristics of your tinnitus (volume/pitch etc). You don't...
I may be wrong but I have noticed that there aren't huge numbers of people on this site with a DEFINITE diagnosis for their symptoms (very few...
Hi @Backpacker. I am now pretty sure the cause of my SSNHL was a virus as I have not had ongoing symptoms in keeping with hydrops. I've never had...
I hope this confuses more than it helps. Got to go cos my youngest just threw up. Nothing stops you thinking about tinnitus more than clearing up...
@JohnAdams I think you fail to understand how someone with severe tinnitus might be panicked over the idea of a potential treatment making things...
LOL, my wife says only my mum finds me really funny. At least there are 2 people now (my wife is lovely I should say - in case she ever reads this...
@Michael Leigh I'm with you on that - I wouldn't rock the boat either. Im too worried it might get worse
I know something about having brutal tinnitus, that might be about it though
I see a big shark looking at me
No I just have a constant low hum in my good ear for no good reason. Luckily nothing compared to the shitstorm in my other ear
Man this could end badly.....
You're like a high school cafeteria. That's what people would have said in my high school cafeteria.
Dark
Is it anything like the first rule of fight club?
that's another example of why I feel uncertain here - don't understand, help me!
I think I do, but maybe you could spell it out for me so I don't get it wrong (not being sarcastic honestly)
Because when I thought of Wayne's World I thought I should try to upload the scene itself to my post, and then realised I had no idea how to do that.
@Agrajag364 Sorry, no better. New tone recently - lovely low hum in my good ear I'm ok though, good in fact.
It's a bit scary being on MPP. I feel like Wayne saying 'we're not worthy'
@Michael Leigh . I sincerely mean it when I say that I have no doubt that you have helped many people immensely. I'm not so sure that you know...
@Michael Leigh You seem like a smart guy so you must see that your comments could be looked on in a bad light. Happy to chat as long as you...
Oh god I just got a three year anniversary award. Feels like 30
@Michael Leigh . I honestly don't really know where you stand. You have previously laid into me for trying to put a positive spin on this...
Well I managed to get off the SSRI. It wasn't easy as expected. It went something like this from the last dose I took: Week 1 - No problem. Felt...
Dear @Candy . So sorry to hear you are suffering so much. I know you've been through hell with this before and got to a better place. I'm thinking...
Still here, more or less.
@GlennAz. Of course you must do what you think is best for you and definitely wait and see what outcome you get from the PRP treatment. I would...
Honestly I think it is difficult to know. He may well be an amazing pioneer but something about it doesn't sit well with me. It's not like South...
@GlennAz. Have you ever considered a Cochlear Implant?
Sorry not to be responding at the moment. I am in the throws of antidepressant withdrawal and it's not pretty..... Not sure when I will be back on...
So it was done after a recent intratympanic injection? I have to say that doesn't sound sensible.
My understanding is that hydrogen peroxide is ototoxic.
@Drone Draper. Intratympanic injection is pretty safe. I usually do a separate high 'relieving' perforation to reduce the risk of a huge increase...
Good luck @JohnAdams. Very brave of you. What degree of hearing loss do you have if you don't mind me asking? Hope you get some relief.
@Bazan . Sorry to hear this. I didn't start to feel better until about 18 months to be honest. I'm not sure if this applies to you but one problem...