Few Tinnitus Talk Members with a DEFINITE Diagnosis for Their Symptoms

Discussion in 'Support' started by brownbear, Nov 26, 2019.

    1. brownbear

      brownbear Member

      Tinnitus Since:
      July 2016
      Cause of Tinnitus:
      Sudden sensorineural hearing loss ? cochlear hydrops
      I may be wrong but I have noticed that there aren't huge numbers of people on this site with a DEFINITE diagnosis for their symptoms (very few acoustic neuromas/cholesteatomas/Meniere's/post chemo etc).

      I wonder if it is the unexplained aspects to our conditions that drive us to a place like this. I know for me that there are so many aspects of my tinnitus that baffle me and I often hunt around here for interesting/wacky explanations!

      I'm not sure whether if I could have a clear, unambiguous explanation that I might find it easier to manage.
       
    2. Elmer B Fuddled

      Elmer B Fuddled Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      plugged nasal eustachian tube
      If you find an answer please let us all know, we all have our own ideas about tinnitus no matter what type it is.
       
    3. Labyrinthine
      Moonlighting

      Labyrinthine Member Benefactor

      Location:
      The Netherlands
      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Music
      To me, the 'why' doesn't really hold much significance. I've never had a definitive diagnosis either; all I know is that it was most likely caused by excessive noise exposure. I think that, at least in my case, it is the need for support and knowing that I'm not the only person who is suffering from this affliction. Not to say that I want anyone else to have their life turned upside down by tinnitus, but it really does help to talk about it with someone other than a health practitioner or a person without tinnitus - someone who truly understands.

      I guess that, hypothetically speaking, it would make life somewhat easier to know the unexplained aspects of tinnitus (or hyperacusis), but in the end, I just want it gone like everybody else here. I'll probably be more interested in the unexplained aspects of tinnitus once it is actually gone, haha.
       
    4. emmalee
      No Mood

      emmalee Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      ?
      I feel the same. There is strength in numbers. It is so very helpful to know that we can come here to search for the strength that we so desperately need some days.
       
      • Agree Agree x 2
    5. emmalee
      No Mood

      emmalee Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      ?
      I am still not sure what caused my tinnitus, and I feel that I may never have the answer. I'm okay with this, though. Each day I wake up hoping that it will be better. Some days it even feels like there has been a small improvement. One step at a time.
       
    6. Kriszti

      Kriszti Member Benefactor

      Tinnitus Since:
      2016/2017/2019
      Cause of Tinnitus:
      Unknown
      Partly. I would care about the "why" if I saw that the medical comminity could actually do something depending on the cause. I'm here because nobody else besides the sufferers has any idea about what tinnitus means. People feel sorry, but after a time, they want you to be healed and get back to your life and now I don't see how it's possible. The uncertain outcome, the always present fear of worsening is what baffles me the most.
       
    7. linearb
      Psychedelic

      linearb Member Benefactor Hall of Fame

      Location:
      destroy all creatures. they cannot be regenerated.
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      karma
      "The Neural Bases and Neuroengineering of...


      This lays out a hypothesis that attempts to explain how most tinnitus arises, and I believe it. So, there's not much mystery left to this for me except the exact specifics of what caused my (very, very minimal) hearing damage, which is almost certainly noise related, but I had a number of other risk factors as well.
       
      • Like Like x 1
    8. Samantha R

      Samantha R Member Podcast Patron Benefactor Ambassador

      Location:
      Geelong Australia
      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Unknown
      Yes, very few, but I think a relatively large % of people would have had acoustic traumas / hearing damage.
      Mine's unknown and it's so frustrating, though I've really stopped searching for a reason.
      I don't think mine is a hearing issue.
      My tinnitus responds to prednisolone and curcumin (inflammation??) and fluctuates with my hormones....
      I wish I knew what the heck I could do to turn it completely off.
      Also, my dad and younger sister have tinnitus too.... there's some genetic flaw there I think that makes me more susceptible????
       
    9. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
      There is no doubt that tinnitus is complicated.

      Ways to get tinnitus:
      Damage to hair cells often from noise exposure or medications is one cause.
      Another cause is from a systematic event that may be from injury or disease.
      It does not matter what is cause for pre hypertension to develop.
      With pre hypertension, any biological weaknesses can become more active or plain out develop.

      Tinnitus can increase or spike from noise exposure and from things like ear wax, but a hyperactive moment - a sudden increase in blood pressure for a few minutes is often associated.
      It's impossible to monitor blood pressure and vitals continuously unless being constantly monitored by a blood pressure unit and a CO2 clip on your finger.
      On my profile page, I mention that that blood pressure and the thing that's placed on your finger are important tests.

      For those with pulsatile tinnitus, a hyperactive event is a set off cause - 38% of the time. A partial hyperactive event 90% of the time. Hyperactive events associate to blood flow - brain, heart, abdominal, thyroid and veins and arteries. Life style - before such as smoking, bad foods and stress are often present with those that receive pulsatile tinnitus. One also usually has other health problems.

      For those with physical tinnitus, all is the same as pulsatile tinnitus, except that physical injury, often connected to a physical weakness is present.

      There is no doubt that stress, that causes hypertension contributes to tinnitus and spikes. Most concerning is a hyperactive event - getting a quick and sometimes just brief ( a few minutes ) of a blood pressure change with decreased oxygen levels.

      Other things that can mess with a person's biology with or without conditions and disease is taking the wrong medications and/or vitamins for a condition, not getting the right ones, or taking the wrong combination.

      Always place what you are taking at the same time into an internet search - any medications or vitamins. Such as magnesium and turmeric curcumin. Both have benefits if used with time spacing between doses. One can also place "can I take" A thru Z - with just using the names of what's being taken. Then always research your conditions to see if what you are taking is a plus or minus.

      Magnesium or NAC, if tolerated and safe for use should be used one hour before going into an environment where there might be loud noise and one hour before going to sleep.

      The brain is the Wizard of Oz where it come to tinnitus. When sleeping - if the brain is signaling to change sides, do it. This will help those with hyperacusis or a spike.
       

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