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Nobody knows what causes that, but I am focusing on just the next step in front of me,not worrying about the many of possibilities way out in to...
Yes there is some treatment - mainly antibiotics, and there are some herbal concotions that help. It might take a while but I am looking forward...
I dont know yet Holy, though I share your concern...Imguess they are going to napalm my gut biome - spent hundreds cultivating it over the past 12...
sorry to hear about your lupus; a very dear friends wife had lupus. She managed to have a transplant and now has her life back. I have to go see...
Thanks Holy. Having read the symptoms more closely, I had a number of anomalous manifestations I shared with my doc well before going deaf. He...
Just got diagnosed with stage 3 lymes. While I am not happy about it, the positives are that st least I have a diagnosis.
Hi there- Thought I would share a personal story - it is purely my journey with no assumptions nor implications about anybody else. As someone...
You absolutely cannot rule that out. Thank you for sharing.
Just wanted to add, if you have the grit for it, applying capsicum cream (0.05%) to a cold sore tingle will hurt like hell, but it works 8/10.
Hi Carolyn- You have a very deep grasp of the science - far more than me. My point about the apoptosis is not about how the virus resides...
@CsaulNol Hi. No. I had no tinnitus - ironically good, intact stereo hearing even after so many nights clubbing as a youngster, and DJing.
@vermillion Thank you for sharing. Stay strong man. Part of this process I believe is the difficult process of grieving the death of life that...
I went to bed on a Friday night with a headache in my neck - on the left side. Felt like a stress headache. I woke up at 2am with the room...
@vermillion ! Nice to hear from you sir. I went dark, not because of struggles but because for me I found I would gravitate to the darker side of...
@jay777 Hi; ha that is actually a very accurate description actually.
@Jason37 Hi. Dont feel bad. I whined too. I was just very lucky to be doing a Tony Robbins coaching program at the time I lost my hearing, and...
No. Because I have sensor-neural hearing loss, I would need a cochlear implant, and I was advised that I would need to implant the other ear as...
This past 12 months I have read over 500 papers about HSV and sudden sensor neural hearing loss (and tinnitus). My current specialist believes...
A year this week, I went deaf and developed tinnitus and hyperacusis. I am still deaf, and I still have a very loud sound inside my head - flips...
I have had HSV-1 since as long as I can remember. After many many hours researching how I had "idiopathic" sensor neural hearing loss, I believe...
Thank you for the sentiments @Pomme!
Wishing you well Greg. My tinnitus is in my head but it has always been that way. I do get neck pain and very bad headaches at times - different...
Good one. Try to do this - plan a 5-10 minute meditation every day. The sole purpose of that meditation is to totally be present for your T....
Not really - there is an operation that can be had, but thats worse case.
Yah: I have been living open to menieres. I still haven't "dropped" but my M friends say it's more than likely M now. Will see!
Past 5 days I have developed balance and dizziness. Had vertigo twice in the middle of night. Menieres is looking likely.
I love the word Choose and everything it implies. I choose exactly the same.
Thank you Pomme. I like your profile mission statement. Have a fantastic weekend yourself.
Hi Viki14- I believe this video might be the same one I originally posted: [MEDIA] Thanks too about the blog - I intend to update that shortly...
Michael, I appreciate the sentiment of the sentence, or the post, was completely misunderstood. My simple point is, if in the middle of a crisis...
I appreciate and respect the belief structure that sees that it is easier said than done. And naturally, in my comment about language, its about...
@Paulmanlike - if you didnt have this label of an OCD suffer, what would that do to how you see your future? The experience of the screech is...
Hhhm...it does look like thats been taken down. Thats a shame.
Fantastic.
@vermillion I hear you. Time is definitely part of the process. Accepting what is, as hokey as it might sound, is a gateway to a whole new life.
Hey @vermillion could it be that its bearable because you are slowly but surely habituating? For me the more tolerance came from more acceptance....
How are you getting on today?
Dear Paul- I stopped posting to this group due to some personal messages that werent helpful to my journey. Your powerful story has compelled me...
Hey-I am doing well, thanks for checking in and asking. I am still deaf as a post in my left ear, and I believe my tinnitus pain may have gotten...
And then you have the obvious question - is one persons loud another persons mild? And when someone who says my T has lessened, is it because the...
Chris, Glad life goes on for you, and wish you a good nights sleep. mf
This company was cited in a number of places, and looks interesting: http://www.otonomy.com/pipeline/product-candidates/ Still a while away I am...
Thanks @Rubenslash.
That said, I met one of the top ear specialists who was quite negative about the whole thing, and stated it was most likely Menieres. I am going...
Hi Rubenslash - no. I am awaiting a meeting with some more doctors at Northwestern in Chicago, because I have suspected Menieres. However I went...
A little tired.
Not to spam Chris's thread, I genuinely respect your advice. I understand the "take each day as it comes", and I take that onboard fully; thank...
Hey @Michael Leigh, I respect your opinion and experience, and I learnt a few things too so thank you. mf.
Good on you @Chris Waller, you have this. Sometimes you will wobble, but you got this. Ending each day knowing at least one step forward was...
You might not like what I have to say here, but know it comes from someone with severe T and H and 6 weeks in I am almost habituated...and this...
Hi @Chris Waller, I believe in Cognitive Behavioral Therapy, that would be distorted thinking about the future, such as fortune telling,...
Hi @Bertman, I agree with all of the comments here from my own experience, and I take NAC daily. I was on Prednisone but I am unsure of its...
Hey @Chris Waller, Sorry to read about your recent challenges. One of the crucial things I have realized after reading some many stories, and...
Hey @Ludvik , Sorry to hear your new T challenges. I heard the right thing window for T being considered chronic was 12 months from my ear...
Hey @Topher James, I am glad my post was helpful in some small way. That question I asked is a good one; I use it on myself a lot. I honestly...
I have been doing ok with 5mg of V, which didnt seem like a high dose. It is only 5 weeks for me so I will keep an eye on the 3month window; thanks.
First night with no Valium...I guess I still need it. Ambien the night before destroyed me
It was not a raving success. Awake for hours, then on and off sleep till I eventually got up. Need another plan.
It didnt work well; awake for hours; conscious in the dreams, and waking up constantly.
First night without meds; some red wine. Lets see how this goes...
