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So sorry that your PT is still causing you so much distress. Do not give up in trying to find a cure. If possible take your scans to other...

Hi Jane.Sorry that you now have to deal with Pulsatile Tinnitus following such a serious surgery. I have PT . I get by fine but the first 2 years...

Yes you can habituate to pulsatile tinnitus. I have pulsatile tinnitus. Over 4 years now. Crazy hissing noise 24 /7 in sync with my pulse. First...

Hi Ann. Just some encouragement. I have Pulsatile Tinnitus as well as tinnitus.All kinds of crazy sounds.Im just past the 4 year mark.Check some...

AGAG.Hello.i read your post as and I'm sorry your suffering so much at the present time.Quick story .3 &1/2 years ago I came down with pulsatile...

Hi James.There is a doctor in New York city .Maksim Shapiro out of NYU.He's a specialist with Pulsatile Tinnitus .I believe ,for a fee ,he will...

Hi James.Yes I have PT.just over 3 years.Early on I had several tests/scans.MRI,MRA CT.The one I didnt have done is called a Cerebral...

Hi James.there are some other test you can have done .One of which is very invasive and has some risk of complications.Is your Pulsatile Tinnitus...

Awesome post Michael.perfectly said .post like that is what makes TT a great forum.just being able to support each other as best as possible.Happy...

hello Worker.im so sorry you are not doing well at this time with your PT.Please do not feel alone with this maddening condition.i cant tell you...

hello worker.i also have somatic PT mixed with reg.T.Mine is also loud.In the morning im talking really LOUD.mine is a hissing that changes with...

hi Stephanie.very sorry that your PT seems to be getting worse with time.I also have PT.in my research in some cases the patients who were able to...

hello Sergio.i also have a pulsatile tinnitus mixed in with reg.t. Ive had it for around 19 months.for me time has definitely helped.the first 4...

Hi Kathi.so glad you are doing well. I love your story because its so similar to mine.im 19 months in.still pay way to much attention to my T.But...

hi lily.the tinnitus you have is pulsatile tinnitus.i also have PT.only someone who has tinnitus and especially pulsatile tinnitus can understand...

hello pilot.i also have PT.mine also changes with jaw movement or head movement.but thankfully quiets down when I sleep.just wondering.was that dr...

hi Dr Nagler.just wanted to add my 2 cents to this thread.i was lucky enough to attend one of your presentations in person.it was here in NJ last...

hi nills.I love that story of the two wolves.i first read it on this forum several months ago posted by Charlie .a retired ENT.i had to read it a...

sorry Felix that you are going through such a tough time.i have pulsatile tinnitus as well as reg. T .Ive had it for close to a year and a half.i...

Awesome Kathi.im so happy for you.great to hear that your ok

hi Kathi.I cant blame you for beingvery upset.i would be the same way. i recently read that in most cases glaucoma, if it is caught early its...

hi Jim.i agree with kevin.ive been dealing with pulsatile tinnitus as well as reg.T for about 15 months.the first 6 months were horrible.but...

congratulations Karen.like you Im one of the few who have Pulsatile tinnitus as well as regular tinnitus.i just want to thank you for all the...

hey Larry.fellow jersey guy here. I know how you are feeling because I been there.i remember at the sixth month mark .things were still...

hi amandine.i have pulsatile tinnitus .ive had it for over a year. the first 4 or 5 months were absolute hell.thank god im doing better now. to...

hi Cathrine.sorry to hear that your PT is causing you so much distress.in regards to CT of the temporal bone.im not sure if that is the same as...

hi jon j.i also have Pulsatile tinnitus.mine is also a hissing that is in sync with my heart beep.my ct of the temporal bone came out ok.i would...

awesome Karen.getting out and staying active helps me so much with my pulsatile tinnitus.reminds me that im alive and that there are so many...

Hi Martin.please try to hang in there.back in January I was into my fourth month of battling pulsatile tinnitus.every day was a living hell . I...

hi Neil.please try to hang in there.i had a really bad concussion 2 months prior to my onset of pulsatile tinnitus. most doctors and specialists...

Demi.just wanted to thank you so much for starting this thread.and also want to say thank you to billie48.your posts are awesome.always so...

hi Worker.the best thing I can tell you is in my case time has helped.at three months or so I thought my life was over.every day seemed like a...

Hi Ervan.awesome positive post.so glad your doing so well .thanks billy43

hi worker.welcome to the forum.alot of great people and support here.i also have pt.mine is a hissing noise that is in sync with my heart...

hi laura89.my pt is a hissing that gets louder and faster with exercise ,jaw movement body movement ect.mine is also constant and is...

Hi Adamj.I also have PT.and also have all the same scans you had.mine is also subjective.i saw several specialist including Dr Shapiro.who like...

hey Eric.try to hang in there.your only 3 months in. I agree with Rube.just try to stay busy with things that you enjoy.believe me it aint easy...

I also was lucky enough to see Dr Shapiro .he was by far the best and most caring specialist I saw.he couldn't find anything unusual on my scans...

Hi Martin. I've had pulsatile tinnitus for 8 months now. Mine is a hissing that is in sync with my heart beep. I also had a severe concussion 60...

hi leecey. if possible I would recommend seeing a nuerologist. I also have pulsatile tinnitus.ive had it for 8 months.ive seen several specialist...

hi Ashlie.my PT is strictly sound.no pulsing but still really tough to deal with.mine is a hissing that gets louder and faster with any type of...

hi Ashlie. ive been battling pulsatile tinnitus for 8 months.and Its been some struggle.in the first month or so i was petrified that the pt was...

hi paul.I have pulsatile tinnitus for exactly eight months now.had mri with contrast,mra ct of brain and a ct angiogram of the neck.all came back...

Hey Ryan.well you definitely have pulsatile tinnitus because the pulsing is in sync with your heartbeep.it may be that you also have regular...

hi ryan.ive had pulsatile tinnitus 7 months.yes mine gets louder with jaw movement ,bending over and when running.Theres a site ;Whooshers.com...

hi Rosie.im also battling PT.7 months now.some good days some bad.but at least im able to sleep whitch wasn't the case the first four...

hi tychobrae.ive had my pt for about 7 months.mine also doesn't sound like a whoosh.mines more of a hissing which is in sync with my pulse.of...

hi DR Nagler.just wanted to thank you for your presentation today in nj.I thought you were great and I am so glad I went.also like that you mix...

wow.just read your update.it really seems Dr Shapiro is one of the few doctors who will exhaust all options in an effort to find a cure of the PT...

hi Dr Nagler.I also live in the area and look forward to seeing you on the 26th. thank you .

thank you.same here.lately I have been able to sleep.i also have taken a break on seeing doctors for my pt.i did find a very good hospital here in...

a little better.thank you.taking it one day at a time.how are you doing?

hi Karen.thank you for the post.

hi daver.objective pulsatile tinnitus means that it can be heard from outside your body.example;a doctor using a stethoscope can hear it usually...

by the way my blood press is borderline high.but all the other doctors felt is wasn't the caus.i also had a pretty bad concussion 60 days prior to...

yes.I had mri with contrast mra ,ct of the temporal bone and ct angiogram of the neck. all neg.dr Shapiro looked over all my scans while I was in...

I have pulsatile tinnitus the past 5 months.mine also increases in loudness with any exersion and is subjective and bilateral.ive had multiple...

hi Karen. I had mri.mra,ct of the brain and ct angiogram of the neck area.the pulsating noise is worst at night.and loudest at night and in the...

hi Karen.ive had mri with contrast,