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I spoke with a moderator about deleting my post, but he said I was asking for advice and not trying to mislead anyone so he kept it.

Hi Ericka. :) I had to have a hearing test first and didn't get a prescription for Prednisone until 2/1. I am tapered off now. I have read different things about the timeline of the window of effectiveness for Prednisone treatment post-onset. If it were me, I would say it is worth a shot 1 month...

You are right. From what I have researched, 14 days of 60mg + a taper is the standard for treatment. On Day 18 I was already tapering down.

Hi Ericka. My sound is still there, but is now varying in tone and volume--which my doctor says is promising as it could mean the nerves are healing. I do still have loud spikes. The spike from the fire alarm lasted 2 days. Thank you for asking! :)

I'm so happy for you! Thank you for sharing your story. :)

Thank you so much for sharing your story! It was super encouraging to me. :) I got T from feedback through a Bluetooth headset so my T is always a variation of ugly sounds. At times it feels like it's melting my brain. I love reading positive, helpful stories like yours. Refreshing hope! Thank...

You may have to take matters into your own hands and try an elimination diet on your own. The Autoimmune Paleo Protocol/Diet is a great elimination diet where you remove things from your diet for a time and slowly reintroduce, watching carefully for any adverse reactions. It takes work, but it...

That is such encouraging news! :)

My auras were caused by my allergy to roses. Have you tried an elimination diet to rule out things like dairy or gluten? Sinus issues are often linked to dairy intolerance or allergies.

I don't understand what you mean. Is this something my ENT should have checked on as well? How are you doing?

I am so sorry you are going through this. I know quite a few people who have had brain surgery successfully. Praying for you, that in the end this makes your life better. The auras could definitely be from the tumor. I had auras and even partial blindness from my rose allergy before finding...

Thank you! :)

Thank you, Bill. Do you think 40mg for another day or two would be okay, or would I need to go back up to 60mg? I'm not sure I have enough left to taper back down sufficiently.

I was on 60mg Prednisone for 3 days, then 40mg for 2 days when I asked for a dosage increase. I took another 8 days at 60mg, then 2 days at 50mg, and 3 days at 40mg. So I've been on it for 18 days already... Tomorrow I was supposed to take my first of 3 days at 30mg, then 3 days at 20mg, then 3...

Hi! :) What are premolds? I think need them. Thank you!

That would be amazing.

I don't think so, unfortunately. I have been looking into Hyperbaric Oxygen Therapy. It sounds like it is most promising within 14 days of onset, which I am almost past...

How much NAC? Is there a specific thread concerning HBOT? Thank you!

I have been on Prednisone since Friday, 2/2/18. Today I took my last dose of 40mg and tomorrow I'll be on 20mg...I called my ENT NP to ask if they will re-evaluate the dosage since the window of effectiveness is so small. They will call back within a few hours. What should the dosage be? Thank...

My dosage is 3 days - 60mg 3 days - 40mg 3 days - 20mg 4 days - 10mg Praying it is enough.

I can identify with Marcus' self-condemnation. Thank you for posting this. Very encouraging!

You keep him in perfect peace whose mind is stayed on You, because he trusts in You. -Isaiah 26:3