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Does anyone know please who /where performs MVD (microvascular decompression) of 8th cranial nerve in England or the US?
Thankyou
@Greg Sacramento Thank you for your concern Greg. No, not yet found anyone in Sydney who performs this for middle ear. Continuing the search.....
@Mishal how did you go asking your doctor / neurologist about Carbamazepine / Tegretol? It takes a while to gradually increase the dosage.
Hello. Does anyone have any updates please where boxtox or steroid injections are offered for middle ear myclonus in Europe? (Germany, Uk -...
Hello Mishal. I hope you are going ok. I have been thinking of you. You might also look into nerve blocks. These are administered by pain...
Hello. I have middle ear myoclonus and live between London and Sydney. Has anyone had a tenotomy of the tensor tympani and/or stapedius...
Hello I am in Sydney, Australia and am researching other countries that might be more open to performing tenotomy on someone with unilaterial...
Mishal you might also try googling Tonic Tensor Tympani Syndrome, and see if your symptoms fit.
Thank you
Hello no, I have not been prescribed these.
Yes, this is the most difficult time in my life. The neurologist should prescribe the medication (not saying that an ENT won't). Also see a Pain...
Hello. I have intermittent tinnitus in my left ear of 9 month's standing, following an accident. I hear fine - then static/vibration and pain. I...
Hello I am being treated for possible MEM. I recommend: see a neurologist, ask to be prescribed carbemazeine (Tegretol) or similar...
@GregSacramento Thankyou though I didn't find stroking that muscle made a difference. What kind of therapist would deliver the muscle therapy...
thank you
@GregSacramento Hello, further sincere thanks for replying. What is SCM please? I have MRIs of brain and cspine/thoraic spine, Bone CT, Nasal...
@GregSacramento Sorry, I meant to type, I've NO hyperacusis in ears.
@GregSacramento Thankyou very much for your very detailed reply. It's MUCH appreciated (more than the 3 ENTs have said!). I've hyperacusis in...
Hello. My tinnitus began 9 months ago (Nov 2017). My neck was pushed while my neck and face were hard-turned left. I began hearing static my left...
