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  1. Kam75

    Could Tinnitus Have a Genetic Predisposition?

    Okay, so I understand why I developed tinnitus. I am both anxious and depressed… 😐
  2. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    These are the types of advice I received when I underwent CBT for insomnia. Yes, a few years ago I tried it. I completed two full courses of CBT for insomnia, four days per course, so eight days in total, with three-hour sessions each day, all held in the hospital. Unfortunately, it did not...
  3. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Thank you so much @SafeMusicFan for your long message of support. I really appreciate it! You are right about everything. I am indeed depressed and have been for many, many years. I was depressed even before I had tinnitus, so you can imagine how I feel now. My psychiatrist has been trying for...
  4. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Oh my God, you got tinnitus one year before I was born. That is crazy. :( I guess that is not you in your profile picture. The person there looks young. Thank you very much for your support. 🙏
  5. Kam75

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    Hi @object16, thank you for giving credence to what I said previously. I am sorry to hear about your difficult situation. My case is particularly catastrophic. Believe it or not, I suffered the sound trauma, which gave me four new disabling tinnitus symptoms and hyperacusis, at a music festival...
  6. Kam75

    My psychiatrist urges me to try an SSRI antidepressant such as Venlafaxine, but I've read on...

    My psychiatrist urges me to try an SSRI antidepressant such as Venlafaxine, but I've read on Tinnitus Talk that these types of antidepressant can worsen tinnitus. I don't know what to do, but I can't continue with sleepless nights. What about you?
  7. Kam75

    Hi @Marcello, I come with news. I did manage to lower Mirtazapine again to 22.5 mg, but I still...

    Hi @Marcello, I come with news. I did manage to lower Mirtazapine again to 22.5 mg, but I still can't get a decent sleep even with 50 mg of Quetiapine and 2 mg of Melatonine. This night I took these three medications and woke up every 15 minutes as my tinnitus is so loud. I can't even go to work...
  8. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @delta784, yes, I know about your story. I have read it. You are very unlucky as well. But why do you say that people on this forum caused this? Do you mean that someone on Tinnitus Talk advised you to take this medication and you followed that advice without any medical guidance? As for...
  9. Kam75

    Hi Joeseph Stope! To be honest, I'm not exactly sure what following someone on Tinnitus Talk...

    Hi Joeseph Stope! To be honest, I'm not exactly sure what following someone on Tinnitus Talk means in practical terms either 😅 I think it's just a way of quickly finding a forumer you've had an interesting interaction with. I also appreciated what you've said in Tom Cnyc thread that's why I...
  10. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi @L along the way, thank you so much for taking the time to write to me. I've never heard of Kratom, but after a brief search, I see that it's banned in France, which is probably why I've never heard of it. And I completely understand what you mean when you say that people don't understand...
  11. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Thank you for your support @MindOverMatter. What does your therapy involve, if I may ask? CBT?
  12. Kam75

    Hi @dreamer16, according to the French tinnitus specialist, the safest SSRI antidepressant is...

    Hi @dreamer16, according to the French tinnitus specialist, the safest SSRI antidepressant is Vortioxetine (Brintellix). It is the only one that doesn't mention tinnitus as a side effect. However I have never tried it, as it is supposed to suppress appetite, and there is no way I loose weight...
  13. Kam75

    Psychiatrist with Tinnitus: My Goal Is to Try TMS or the Susan Shore Device

    Hi @virginiadoc, sorry to hear that you are suffering. I have also been dealing with disabling tinnitus (at least five sounds) and hyperacusis for six years, which prevent me from living fully and sleeping well. Like you, I am eagerly waiting for Susan Shore’s device. However, do not forget...
  14. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    I am so sorry for you also, @vilebubbles, but nine months is not that long, if I may say so. You might recover a little in a couple of years if you protect your ears from noise and ototoxic medications. I can confirm that this terrible condition can improve, but not without a lot of sacrifices...
  15. Kam75

    Am I the Unluckiest Person on Earth When It Comes to Tinnitus? My 6-Year Tinnitus Nightmare: How One Festival Changed My Life

    Hi all, I have been a regular on Tinnitus Talk since 2019, but I feel the need to share my tinnitus history as my emotional state is currently at its lowest. I will try to be as concise as possible so as not to make it too boring to read. The first time I had tinnitus was in 2012. I was 21...
  16. Kam75

    First Major Spike After Six Years — Hoping for Improvement

    I have been suffering from extremely debilitating tinnitus for six years, following a music festival where I was wearing custom-made hearing protection (minus 25 dB). Two years ago, I started to sleep better, so I decided to resume a social life and began going to parties again (with...
  17. Kam75

    NeuroVR Device: Neurofeedback to Treat Tinnitus

    Two days ago, I came across this speech by Dr. Alain Londero, whom I mentioned earlier, at a hearing aid professionals’ conference in 2024 (the speech is in French). He confirms what I said earlier in this thread: even though virtual reality has been beneficial to a certain extent for a few...
  18. Kam75

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    Hi @Tom Cnyc, I beg your pardon. My intention was not to take away from your success story when I shared mine. I only wanted to warn others so that they do not end up in the same situation as me. I can confirm that it is extremely important to be careful after experiencing sound trauma, as...
  19. Kam75

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    Unfortunately, this is the case for me. I have been living in complete isolation at home since my condition worsened two years ago. I only go out to do the shopping and to the office one or two days a week. Fortunately, I am able to work from home. Otherwise, I would no longer be able to work...
  20. Kam75

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    Yes, I am so desperate that I feel like I have tried everything, including a guérisseur about four years ago. He was someone who performed manipulations on my head, using very strong pressure with his thumbs, and prayed to Christian saints. Obviously, it did not work. There is nothing rational...
  21. Kam75

    I'm Fine — Tinnitus Is Basically Not a Thing Anymore

    Hi @Tom Cnyc, thank you for sharing your story. It is always encouraging to hear from people who have managed to pull through tinnitus. However, there are a few points you raised that I would like to comment on. First, even if our condition has improved, we still need to be extremely cautious...
  22. Kam75

    Hough Ear Institute's Hair Cell Regeneration Project

    Thanks for the sharing! I don't know what to think about it. It seems that we are still decades away from getting a potential cure.
  23. Kam75

    My Acoustic Trauma (Jackhammer) Induced Tinnitus Has Got Much Better

    Thank you for your testimonial. I am desperate for emotional support. My tinnitus has been worsening for six years since my sound trauma. I have reached a point where no medication helps me sleep anymore. Mirtazapine, Alimemazine, Quetiapine, and Melatonin no longer work. I feel like I am...
  24. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    I understand your frustration, but with all due respect, it is not appropriate to respond in such a harsh tone. If we are on Tinnitus Talk, it is because most of us are struggling with severe pain. For some people, this forum is their last refuge after losing everything — their social life...
  25. Kam75

    To be honest I was king of scared to take it, as I don't want my body to get used to another...

    To be honest I was king of scared to take it, as I don't want my body to get used to another drug and then have to take a stronger one. It is really safe? I only took it once. I didn't see any difference, but maybe I'll consider take it more often Thanks for the advice!
  26. Kam75

    I did manage to lower Mirtazapine to 15mg, but after some months, my sleep was catastrophic...

    I did manage to lower Mirtazapine to 15mg, but after some months, my sleep was catastrophic again so my psychiatrist prescribed 45mg again. He did prescribed me Quetiapine as well last time I saw him. He told me that it is stronger than Alimemazine.
  27. Kam75

    New Sound Therapy? Enriched Acoustic Environment (A Sequence of Gammatones)

    Salut Frédéric, thanks for sharing. It seems to be another therapy that only reduces tinnitus distress, rather than the actual volume of the tinnitus.
  28. Kam75

    My Somewhat Success Story: What Helped Keep My Tinnitus Away for 3 Years

    Happy for you. Unfortunately, noise-induced tinnitus never completely goes away. Enjoy your life as much as you can, especially now that you are able to.
  29. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    Honestly, and sadly, no one seems to care about tinnitus. There are illnesses that receive much more attention and interest, such as AIDS, cancer, and others. Finding cures for those conditions is seen as highly rewarding. But tinnitus? Most people simply do not care. Many are not even aware...
  30. Kam75

    Unfortunately, I can't give you any advice as any of the medications I mentioned no longer help...

    Unfortunately, I can't give you any advice as any of the medications I mentioned no longer help. I'm not even sure whether it's the tinnitus that's getting worse or whether the body is getting used to the treatments, making them ineffective. I think it's a combination of both.
  31. Kam75

    Hello Marcello. Sadly my sleep is only getting worse. All the treatments prescribed by my...

    Hello Marcello. Sadly my sleep is only getting worse. All the treatments prescribed by my psychiatrist are no longer working (45 mg Mirtazapine, melatonin, Alimemazine). I'm totally desperate. I've been suffering from noise trauma for 6 years now, and it's only getting worse. Fortunately I'm...
  32. Kam75

    Neosensory — Bimodal Stimulation Device for Tinnitus: Any Reviews? A Scam or Not?

    On their homepage, it reads "All products are currently out of stock".
  33. Kam75

    Are There Tinnitus Sufferers in Paris, France?

    Hi @slc, I’m so sorry I missed your message. I’ve been away from Tinnitus Talk for almost two months—the longest break I’ve ever taken from the site. I just logged in today. I hope everything is okay with you.
  34. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    All joking aside, I’ve always wondered what would happen to Susan Shore’s device if she were to pass away before it could be brought to market.
  35. Kam75

    Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration

    I'm glad I can hear a video on TInnitus Talk in my mother tongue! :)
  36. Kam75

    Are There Tinnitus Sufferers in Paris, France?

    Hi @delta784, I’m so sorry to hear what you’re going through. My tinnitus also worsened because of an anti-inflammatory medication (Naproxen) that a doctor prescribed for foot pain. It’s true that some types of anti-inflammatory drugs are ototoxic, and this has been proven. Stay strong. I...
  37. Kam75

    Are There Tinnitus Sufferers in Paris, France?

    Hello, I am reaching out, like throwing a message in a bottle into the sea. I will not go into too much detail about my story, as it would take pages, but essentially, I am someone enduring extreme suffering because of tinnitus. I have been living with severe, disabling tinnitus for six years...
  38. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    Unfortunately, I agree. This aligns with what I said earlier: if 2026 is unrealistic, I don’t think the device will be available in the U.S. before 2030, and likely not before 2035 in other countries. :( I really hope I’m wrong because my tinnitus keeps getting worse, and I’m only 33 years old...
  39. Kam75

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    Wow! Thanks for sharing! Is this good news or excellent news for us tinnitus sufferers?
  40. Kam75

    Seeking Insights on Psychedelic-Assisted Therapy for Tinnitus: Ketamine, Psilocybin, or Ibogaine?

    Czesc Krzysztof, this reminds me of a Tinnitus Talk member who claimed that psilocybin "basically cured" his tinnitus. You can find his testimony here.
  41. Kam75

    Sea Pharmaceuticals — Oral Neurotherapeutics for Tinnitus, Epilepsy, and ALS

    Wow, wow, wow! It’s a pleasure to read articles like this. It gives us a bit of hope when we’re really at rock bottom. Thanks for sharing. I hope we learn more about these findings soon.
  42. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    Anyway, @Markku previously mentioned that the timelines discussed here on Tinnitus Talk for the potential launch of Susan Shore’s device are unrealistic. I don’t think the device will be available on the market before 2030, and it likely won’t be accessible outside the United States before...
  43. Kam75

    45 mg of Mirtazapine Doesn't Help Me Sleep — Need Advice for My Disabling Tinnitus

    I wasn’t aware of Ashwagandha. Thanks for the recommendation! I’ll ask my psychiatrist if there are any interactions with Mirtazapine. Many tinnitus sufferers on Tinnitus Talk have also recommended Trazodone for sleep. Unfortunately, it has not been sold in France since 1996.
  44. Kam75

    Commercial Lidocaine Patch as a Treatment for Ear-ringing

    I don’t want to alarm anyone, but I was curious about Lidocaine as a potential treatment, so I read this study on transdermal Lidocaine for chronic subjective tinnitus. I’ll admit I didn’t read it thoroughly, but according to the study, lidocaine administration might actually worsen tinnitus...
  45. Kam75

    Electrical Stimulation of the Cochlea for Treatment of Chronic Disabling Tinnitus

    Given that we recently learned that Dr. Shore's device won't be on the market for years, the new hype seems to be focused on this subject. Seriously, guys, are you really ready to have a device implanted in your ears to alleviate tinnitus? Honestly, it would freak me out. I'm more interested...
  46. Kam75

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    With all respect, personally, and even though your opinion might be rational, I think we should stop spreading negativity on Tinnitus Talk. Even the sponsor of this drug (if I understood it correctly) said that it might help noise-induced tinnitus. So maybe it will work for chronic...
  47. Kam75

    Hough Ear Institute's Hair Cell Regeneration Project

    I was reading through some of my old posts on Tinnitus Talk and suddenly remembered about this thread. There have been no updates in this thread for almost a year?
  48. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    This is, unfortunately, not surprising...
  49. Kam75

    Unbearable Tinnitus Spike: I Feel My Mental Health Is Deteriorating

    I heard about Quviviq a long time ago. It is finally available in France. I was thinking about giving it a try. I'm sorry it did not work as expected for you. I'm kind of reluctant to try it, though. As it is a very new treatment, we don't know what side effects could occur in long-term use...
  50. Kam75

    Unbearable Tinnitus Spike: I Feel My Mental Health Is Deteriorating

    Hi Wassim, I can't believe how similar our situations are! I also have severe tinnitus (and hyperacusis) after experiencing a noise trauma at a music festival in 2019, despite wearing custom-made hearing protection. Like you, I've suffered a lot for years - lack of sleep, no social life...
  51. Kam75

    NeuroVR Device: Neurofeedback to Treat Tinnitus

    Hi folks! I come with (bad) news, unfortunately. Some years ago, in this thread, I talked about virtual reality as a treatment for tinnitus, as proposed by the Georges Pompidou Hospital in Paris. It turns out that Dr. Londero didn't offer me to take part in the test protocol. However, I came...
  52. Kam75

    Auditory Mirror Therapy for Treatment of Tinnitus

    Is this device really promising? Why are there only four pages of discussion since 2022, as opposed to Susan Shore's device thread, which has over 200? Is it because this device doesn't really reduce the intensity of tinnitus, but rather the symptoms associated with it? In any case, it's good...
  53. Kam75

    Hi @Yosemite ! Thank you for your message. I reduced the Mirtazapine at the beginning of...

    Hi @Yosemite ! Thank you for your message. I reduced the Mirtazapine at the beginning of January 2024 (I went from 22.5 mg to 15 mg). My condition was "stable" until early March. I think that if Mirtazapine was involved in the deterioration of my sleep, I would have felt the effects after about...
  54. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    Hi folks! I used to read this thread several times a day for years. A few months ago, we learned of the very encouraging results of Phase II of Dr. Shore's device. Last I heard, we were waiting for Dr. Shore to submit her device to the FDA, if I remember correctly. What about today? I looked...
  55. Kam75

    My condition has improved over the last few months, I sleep better, my tinnitus is less...

    My condition has improved over the last few months, I sleep better, my tinnitus is less intrusive and thanks to that I've even resumed a social life little by little.
  56. Kam75

    I take 22.5 mg of mirtazapine every night to help me sleep. Up until 1 year ago I was taking the...

    I take 22.5 mg of mirtazapine every night to help me sleep. Up until 1 year ago I was taking the maximum dose (45 mg). Tinnitus can really improve, but it can take a long time (it took me almost 5 years). Stay strong, I'm sure it will get better one day. And don't hang around this forum too...
  57. Kam75

    No, food doesn't affect my tinnitus. As for hearing protection, I wear them every night to sleep...

    No, food doesn't affect my tinnitus. As for hearing protection, I wear them every night to sleep because I'm a sensitive sleeper, and it doesn't cause me any more problems. I also wear them during noisy events to avoid any worsening of the tinnitus.
  58. Kam75

    Hi @4Grace, I'm really sorry for my late reply. I've been going less and less on TinnitusTalk...

    Hi @4Grace, I'm really sorry for my late reply. I've been going less and less on TinnitusTalk recently because I'm doing better regarding tinnitus.
  59. Kam75

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    As we say in French, "hope is life". We have a damn incurable disease. So every potential treatment gives us hope, even if we're not sure it will work. It's always better than hearing the perpetual "there's nothing you can do, get used to it" from doctors. Whenever I'm not feeling well, like...
  60. Kam75

    I am very hopeful that Shore's device will help us. It is currently the most promising...

    I am very hopeful that Shore's device will help us. It is currently the most promising treatment. From what I read on Tinnitus Talk it is probably the only option for us in the near future. There is the Ebselen molecule too, but years of testing still need to be done.