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@4Grace Hi! About the same. My right ear has improved a bit but the left is about the same. Mentally I'm doing really bad. How long have you had nox?
Oh, can it be used as a speakerphone? It doesn't look like it has a microphone?
Hi DeanD, Have you found a speakerphone that works for you?
@MadeleineHope My apartment do not have a alarm connected to the building's alarm. I would also be terrified if I had one.
@MadeleineHope I live with my girlfriend. I hate that she has to see me like this. I'd say it's a fairly quiet area, but there can be some very...
Has anyone had their physician request compassionate use for BHV-7000? I assume only people in the US can do this.
@MadeleineHope I use Peltor X5A almost all my waking hours. I am homebound :( Imagine if you could start your life over with the knowledge you...
@Merlin L @MadeleineHope Yes, I have seen some small improvements. A little less stabbing pain at certain noises and a little less burning pain...
Hi @MadeleineHope. I'm hanging in there. But every day is a struggle. How are you doing?
Unfortunately, I cannot contribute with any suggestions. After doing some research on the supplements listed in the document, I have a few...
Nice work. I still haven't tried any supplements/medications for my noxacusis. I am very skeptical about using medications because of possible...
I hope you are doing okay despite the circumstances.
I can feel how it feels really tight in the ear and you really want to stretch it out, but you can't. This feeling increases when I am exposed to...
I have TTTS which is also worse in my left ear than the right. I think the pain in my left ear is both from the middle ear and the inner ear.
The pain I get from vibrations has nothing to do with sound at all, it must be something wrong with my nerves. Another example is if I put my hand...
Two days ago I accidentally hit the plate with the knife a little while I was eating and immediately felt how my left ear started to really hurt...
@haha ear go eeee I'm glad my right ear is "okay" (still really bad). My left ear is actually probably worse than ever after I went out for a...
Something is really wrong with my left ear as it is not only sound that gives me pain but also vibrations from my fingers. For example, if I have...
Hi @haha ear go eeee. My right ear has improved in that I don't get that deep pain at reasonably loud sudden sounds. However, my left ear has...
Probably. I don't know how to avoid it.
Hi, Thanks for checking in. So sorry to hear you also suffer from TTTS and hyperacusis. 157 dB sounds incredibly loud. Unfortunately, my...
So glad to hear about your great improvement with this condition. Sounds almost too good to be true. Thanks for sharing your success!
Sad to hear that your appointment with Dr. Timothy Hain was cancelled. Is there any way you can get a new appointment? I'm not familiar with how...
I understand that you don't want to be in the apartment in the city if a train is passing by every five minutes. Sleeping with ear protection is...
Glad to hear that CBT is helping you. That gives me some hope. Could you please elaborate on how you think CBT has helped you? Less anxiety?...
I appreciate your reply. Congratulations on finding a way to live with this horrible condition. The thing is, in the beginning with this...
I think it's impossible for anyone to understand how terrible it is to live with this condition without experiencing it themselves.
My girlfriend and family probably live in hope that CBT will help me and fully trust what the ENT says that noise is no more dangerous for me than...
If I understand correctly, you don't live with your boyfriend? I live with my girlfriend, so at least we see each other every day, but it's only...
I really hope my T doesn't get much worse than it is because then I don't know what to do. My girlfriend has been understanding, but it's clear...
@yeezysqueezy Glad to hear you're doing okay mentally aswell. As for you having less stabbing pain, I have no idea, but let's hope that's a good...
Yes. I have delayed pain. I agree with everything you said. I think it's impossible for a normal person to imagine what it's like to live with...
Hi! I'd say I'm fine mentally. No improvements in my noxacusis. Feels like I build up my tolerance by avoiding sounds and then back to square one...
How many of you with moderate/severe noxacusis have TTTS? I have noticed that when my TTTS is worse, I experience more of one type of pain (I have...
I'm so sorry to hear it's worse again. I think we have to accept that there will be a lot of ups and downs with this condition and some days will...
I am glad to hear that your condition has improved. That gives me some hope. I will take your advice and listen to my body.
Could not say it better myself. We know far too little about this condition.
I am glad to hear that your condition has improved. Well, I don't know about your situation but I'm sure that my pain is caused by noise because...
Update after my ENT visit: It went as expected. This is what the ENT told me: My hearing test showed no hearing loss. There is no drug that can...
So sorry to hear about the morse code. I hope it gets better with time. I've also got a tone back that I haven't had for a long time. Sounds like...
@yeezysqueezy, how are you doing? Any improvements with the supplements you've been taking?
How much ginger are we talking about?
Hi @Brian Newman, I asked if it is possible to skip the hearing test, but according to the ENTs, it is necessary for me to perform a hearing...
Thanks for your reply. Feels good to know I'm not alone with this condition. I really hope for an improvement over time. I would be happy if I...
@Brian Newman, thanks for your reply. I'm sorry to hear about your situation. I agree with you, this is one of the worst conditions you could...
I'm in a similar situation as you. I suffer with you. Hoping for a miracle.
Hi, I recently developed severe noxacusis. Looking for support and advice. Here is my story: For about 10 years, I have had problems with...
How long does it take for you before it goes away? If it does. I have seen a slight improvement now, but it took about 3 years for it to go away...
I have also read something about that. But it really is the last way out.
Hi, I have had tinnitus and hyperacusis for 4 years. During the first year of tinnitus I also developed problems with my eardrums vibrating when...
I suffer with you. If you ever find anything that might help please send me a message.
@Contrast Maybe I should have been a little clearer. He also inspected my ear and saw that the ear was infected and I got antibiotics. I've...
Hello. I'm been sneaking around on this forum for some time but this will be my first post. I'm not a native English speaker to begin with. So...
