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Not like how it was in the beginning. Inflammation is still meh. I'll try to pop in more often. Just took a break from the site; you know?
Sorry for the absence. A quick update, really - I still have tinnitus; but for the most part, it is better now :)
Maybe a development or not. Finding it harder to freely move the tissue inside of my ear; to make the ear crackle at will. Will it stick...
Nothing serious. Just good old ibuprofen. I toyed with the idea of taking stronger items, but the possible side-effects worried me :S
The pain in my right ear has been much better these past few months. Not having to constantly take pain killers is nice..
My eardrums were healthy. You can have ETD with healthy eardrums - mine are fine for example. The test was offered first thing with my private ETD...
Oh, and I can sleep now. Which…which I’m very, very, very, very, very, very, very, very, very, very, very, very, very, very, very grateful for.
Yep - I regularly feel soreness and movement in my affected ear - like a living piece of clay. I’m convinced it’s just stubbornly inflammed tissue...
Yeah, I wouldn’t waste your time with the NHS. You wait for months for a 5 minute phone call - never even met my NHS ENT. Go private if possible....
Very true. 13 months at this point :S Slowest year of my life.
Perhaps some minor improvement? Very much a waiting game.
One year down, hopefully not too many more to go :S
Thanks for the advice :)
Tinnitus is one of the worst. But it makes other bad things seem...less bad by comparison. Not as important to worry about or get scared over....
I will say one positive about T. Just ONE. It gives you an excellent gauge to measure against other bad things that may happen in life.
Resisting the temptation to take ibuprofen daily at this point...but worried about long term side-effects :S
It might be your Eustachian Tube playing up? Maybe if the air pressure in your ear is not perfect, the eardrum suddenly becomes a wobbly drum.
Ear continues to feel like it’s inhabited by Flubber. At least it’s a stable noise.
Since early July 2020 - so about 11 months.
My ear rarely pops anymore (fingers crossed); unless I deliberately force air into my E-tube. I’ll take it as an step in the right direction
A good, old walk in the rain :)
@Steph1710 Hope you get better soon! :) Sounded painful!
Is there any consensus on which is the safest vaccine for T sufferers? I’m hearing bad things about Pfizer.
Hi, Could I ask how you got ETD by any chance? Allergies, ear infection, bad cold? (I've personally been on this unpleasant E-train for 9 months.)
Thanks for the advice!
Going to ask my ENT if they can arrange a micro camera into my E-tube, and record the results - maybe get some answers on the tissue lining.
Interesting; never heard of that type of MRI machine before. Yep - just my head.
@asey20 Unfortunately, I'm not sure what exact model it was. It was shiny and gleaming, so my brain equated that to "new", rather than the grey...
@Forever hopeful Thanks. I hope yours goes well :) You could bring earplugs as well, for double the protection maybe?
Surprisingly only took a few minutes and the nurses were very friendly. Currently sipping coffee and watching the snow.
Had my MRI - I think the machine was a later model, so it wasn't as loud as I dreaded. (No spike from the procedure. Wore ear defenders.)
Hi Owen, just wondering how you are getting on?
High frequency static is what I had during and after my middle ear infection. It seems to be the norm with infection and ETD caused tinnitus...
Surprise MRI appointment letter, the day after my birthday!? :o
Ah, Alister, why must you wiggle and hurt me so :( I thought we were coming around. Becoming friends even. Well, more cider for me, I guess.
I’ve invested in a re-useable gel pack and am going to be doing a bit of heat / ice therapy from now on. Strapping it on is a bit fiddly :S
I like the suggestion haha
I’m thinking of giving the living dough octopus in my ear a name. I’m thinking Greg... Any other suggestions?
There's still movement in my E tube - i.e. tissue randomly sliding around, spasms, etc - BUT it's a lot less aggressive than before the operation....
Every day I am grateful that lofi music exists. It’s not silence, but combined with masking, it’s the bronze medal to it. It’s something.
It moderately helped - my tinnitus is quieter. However, I still have ETD symptoms at this point in time. Doctor said to wait 1-3 months.
Sorry for the delay - I’ll try my best, but I’m obviously not an ENT / medical practitioner. My answers are based on my opinion and experience...
Thanks Pray. Yes, just got to wait, wonder and hope :) They don’t hurt, no.
It’s not terrible; it seems to come and go :o That’s horrible Steph - I’m sorry :( I really hope it’s a just passing thing and it will go away...
Hi JYD, I've had what I believe to be ETD for 7 1/2 months - so I might be able to help you narrow it down. Was it wet in the sense that the...
Inside of my head feels wet. That's new.
Maybe I'm reading into nothing. It ~could~ be air travelling through the E tube for the first time in months..hmmm. Noooo idea :)
Insides of the post-surgery ear feel weirdly, erm... cold? Not freezing but pretty darn chilly. Like someone left a fridge door open. Odd.
Subnautica - quite possibly the best aquatic game in existence. You will be afraid to go to greater depths though :bag: I was! [ATTACH] Please...
'Eustachian tube balloon dilation'. Some of my teeth hurt from where they presumably bit into the pipe that was in my mouth - supplying good old'...
No worsening of symptoms - so that’s something. Teeth ache slightly but that’s it. Time to put my waiting hat back on :S
Back from surgery. No immediate improvement but have been advised by my doctor that the majority take 1-3 months to notice the benefit.
Thank you! :)
Surgery is in 8-12 hours...let’s see how this goes.
I don’t know if I’ve missed the opening, but I sent them an email as well.
I'd recommend Subnautica; no guns in sight. Buuuut you might want to avoid if you have thalassophobia.
If tinnitus has taught me anything, it’s how to be patient (among a few other things). Or perhaps just endurance. Sheer bloody endurance.
It also hurts like heck. Popping my ear helps for a second. Sod this I’m watching Netflix! >:/
Crazy levels of movement and vibration in my head. Tinnitus is currently piercing - like ultra oscillating glass. Can’t sleep.
My head feels like a washing machine set to max spin rotation. It’s kind of fun. Kinda.
