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@Lurius Thank you <3 How are you doing...?
COVID, 3 years after everybody. Very anxious to be feeling so breathless and dreading my tinnitus to spike. Please let me be safe...
@Juliane Time, almost 3 years next february, living in a quiet environment and being supported by everyone around me. Sadly I would also say this...
@Strawberryblonde I have 10 physio appointments to come, it's very reassuring and encouraging to read they truly could help you. I won't take...
(2/2) I'm almost 100% cured from tinnitus and can't risk anything jeopardizing my recovery..
(1/2)I have to take Prednisolone 50g for 5 days for sciatica, but I'm so scared of taking it... Any advice on what I should do ?
The first one I saw told me "Just pretend it's a puppy you've just adopted, annoying at first but you'll come to love it".
My left ear has been acting up. Frequent fleeting tinnitus, burning feeling. I wish I could have a tchat with my body & ask it what's wrong.
The anxiety and trauma this family caused me since birth while blaming me for it is mindblowing. I don't deserve this. Can't sleep.
Head vibrations return. My sister said and did horrible things to me yesterday. She's not even sorry and gaslighting me for defending myself
Depression & anxiety are hard to deal with, I'm taking a break from TT. Take care, I love you all. You're brave in a way only we understand.
@stacey At home, I always kept low music in the background during the day, as I couldn't bear to be in complete silence. But I forced myself to go...
@stacey But I still went out sometimes, plugging my ears when the car door closed, foam earplugs ready anytime I left the house, doing groceries...
@stacey But if I did stay home, I didn't stay in complete silence. My sound tolerance lowered at the beginning, as I damaged my ears by masking my...
@stacey Immediately after onset, I was on sick leave for 3 months, came bach to work for 2, then quit. I stayed home for 9 months before finding a...
@ErikaS You're so kind to call me strong, I wish I could believe in these words... Most of the time, I just feel like a broken human being....
@ErikaS But it usually goes away in a few hours, 24h max, and isn't a severe pain. The severe ear pain I experience comes at night, but I've...
@ErikaS However, loud environments still cause me discomfort - children screaming, people talking loudly. I had to leave a restaurant once, and...
@ErikaS I had/have some kind of sensivity/reactivity. Before joining TT, I masked my T by listening to music on lowest volume with headphones, and...
@ErikaS I did have multiple tones at my worst - pure tones, wine glass, humming, chimes, computer/electronic sounds, bilateral. I still have...
@SarahMLFlemmer I mean actual silence. Most of the time if I plug my ears during the day, I hear nothing but a sound so faint I would even hardly...
@Lurius I can't imagine how cruel the news regarding the machine must have been for you... You're in my thoughts, healing can't come soon enough....
@Lurius I'm doing well despite a slight setback these last few days, but I'm feeling much better today. I have 95% silence most of the time, not a...
@Lurius Thank you so much for your message and your kind thoughts, I think about you often even if I'm always too shy and scared to bother anyone...
Hang in there, there have been smoother days and they will come again. I know healing feels desperately slow, but you can and will get better in...
@SarahMLFlemmer How are you feeling these days ?
@SarahMLFlemmer I have already had those "spikes" during the last year and everytime they got better within days, I hope this one will fade as...
@SarahMLFlemmer The last months were so quiet, quieter and quieter in fact, so much that I had complete silence during the day and the faintest...
@SarahMLFlemmer Thank you for checking in, this is so kind of you ! The last two days have actually been a bit challenging as I seem to be...
Hi ! Thank you for your kind message, I've actually tried a sip of beer a few days ago with no side effects whatsoever, it felt great to enjoy the...
Everytime I feel confident enough to come and share my progress and healing with you, I get a random spike the next day. Beyond frustrating.
Icing mine helps when they feel inflamed, have you tried it..?
Mine was A pair of brown eyes by the Pogues. I never understood why but it worked somehow.
Back when I had multiple and constant sounds, I found it so hard to describe it. Pure tones mixed with computer / modem sounds, wavering...
Icing my ear helps a lot as well !
I might have to go back to my old job in high school, but I'm terrified of all the noise. I wish I could find a way to work from home.
This is the wisest thing to do. Since onset 2 1/2 years ago, I've stopped going to loud places entirely. I'm going to a wedding in a few weeks and...
Dying to drink a beer but far too scared of potential consequences to even dare.
That's so great !
I wish you the very best <3 Take care and thank you for all your kind words.
How I wish I could blast my ears to Cradle of Filth again.
I haven't drunk since onset, more than two years ago. I've barely let a drop of wine touch my lips once, I'm too scared of getting a spike.. I'm...
A friend developed pulsatile T. Her doctor said "it's all in your head" and sent her home. There's no end to my hatred for those criminals.
I worked in high school. I took 3 months off, returned for 2 then quit and stayed 10 months home.
What happened that caused the worsening..?
Mine felt the same at times, oddly enough I started to put ice on it when it occured and it somehow brought some relief to the burning and...
This vibrating head thing is starting to really affect my sleep. It's also vibrating anytime now, not just when I'm lying down..
Sending all my support and so much love to everyone. It's not much of a comfort, but you are all the bravest people I've ever met.
I'm starting to wonder if TMJ could be one the main culprits for all this, I'm meeting with a physical therapist specializing in TMJ tuesday
T has been virtually silent for the last 6 days. Jaw pain is becoming more present however, radiating at times in the teeth, temple, ear..
@Strawberryblonde I never had jaw pain or problems prior to tinnitus, but since the onset 2 years ago I've been experiencing them regularly
@Strawberryblonde My dentist and physical therapist both acknowledged I had a lot of tensions in the jaw, but never diagnosed as TMJ
I've been having a lot of jaw and dental pain, and several episodes of ear pain and fleeting tinnitus for the last two days..
I stopped improving, but I'm deeply and forever grateful for all the improvements so far. I hope there's more to come...
Didn't see any friends since 3 years because of Covid then tinnitus, as train tunnels hurt my ears. Had to quit a job I loved.
2 years. Lost faith, trust and respect in doctors and medicine. Lost any sense of safety. T makes me feel like a prey chased by a monster.
@ErikaS No, I'm not on any meds and only taking B12 supplements, but I've been taking them forever and doubt they could have such a side effect on...
for a few seconds, several times in a row, then stops ? It's happening more and more frequently, longer each time & only when I lie down..
Does anyone experience a strange, inner vibration sensation in your head ? Like your entire face is softly vibrating from the inside (1/2)
It happened to me once, not 100% silent mais tinnitus hugely lowered after a long and intense crying.
