Ondine

I thought your T was gone??

Oh noes :( I'm so sorry. Tbh I thought I got covid myself last week. I've been able to dodge it so far, I don't really understand how. Some of my friends who also dodged it in 2020 got it for the first time now in October.

Do you know what healed you? Just time?

@Juliane Time, almost 3 years next february, living in a quiet environment and being supported by everyone around me. Sadly I would also say this is sheer luck, as some may have waited just as long and lived in silence without improving as much...

@Ondine Did you still meet with friends and socialize during those three years?

I also had some sciaticia issues in September, I wish you a speedy recovery :)

@Lurius Thank you <3 How are you doing...?

@Ondine I'm off my sleeping meds now for 2-3 weeks again so a little worse sleep, a little worse T. I keep it in check by working out and some Lenire but still not great 60% of the time. You are always so kind to me, I'm thinking of you as well <3

I am so sorry. Being misunderstood or gaslighted by family is horrible

I am so sorry to hear this. I pray that sleep finds you.

My tinnitus was at it's best when I took a long break from here. I hope it will be the same for you.

Hope you feel better soon @Ondine depression and anxiety can suck the life out of you.

Hope you had a nice day, mademoiselle. I wish you silence.

@ErikaS But it usually goes away in a few hours, 24h max, and isn't a severe pain. The severe ear pain I experience comes at night, but I've experienced it for years and years before my onset. Something to do with teeth clenching and tension all around the jaw/neck area...

@ErikaS You're so kind to call me strong, I wish I could believe in these words... Most of the time, I just feel like a broken human being. Lifelong depression and anxiety didn't do well with tinnitus trauma. But thank you so much... Anyone surviving this nightmare day after day and still finding the courage to go on is strong. You are too, and I admire you so much for it.

Must be a great feeling to have had tinnitus go away 95 percent! What a dream. Although I am careful I don’t think I am anywhere near careful enough with noise exposure. I stay away from loud events and have declined many an invite but the place where I stay daily masks my T and I cannot for the life of me put on ear plugs for all the hours that I should

That’s good to know , thanks for explaining how glad you were still able to go out a bit and at least get stuff done.

@Lurius I'm also autistic. Was it visaul snow the reason you found out about gaba dysfunction?

@Ondine fantastic to hear you are doing better in regards to the tinnitus. Having silence again is wonderful, enjoy and cherish it. I'm jealous lol :)

Dang.

Hi ! Thank you for your kind message, I've actually tried a sip of beer a few days ago with no side effects whatsoever, it felt great to enjoy the family reunion a bit more :)

How are you doing these days ?

Nice to hear you enjoyed your family reunion. Family is so important. As for me, I have been up and down this past week. Sometimes the noise is less intrusive, but it's not constant. Thank you for asking!

@SarahMLFlemmer I have already had those "spikes" during the last year and everytime they got better within days, I hope this one will fade as well... My neck, shoulders and jaw felt very stiff lately, it might be a reason why. I've been icing my left ear and protecting it with a foam ear plug while it lasts.

@SarahMLFlemmer How are you feeling these days ?

@Ondine I've been up and down, up and down. ❤️

Hi Ondine, I don’t find any correlation. If anything it helps alleviate the stress of this condition.

If it has any effect itll be a temporary one. I drink quite frequently now, ciders beers etc and i find it makes me sleep quicker, then again it always has i just notice that more now.

Honestly, extreme metal genres sound shit at 30dB lmao

Yesss!! I love filth. wish I could blast it to

Actually forgot to say, CoF are from my home town!

like, literally in her head.

Or my personal favorite tinnitus is not that bad you are over reacting.

Maybe we should bring back the pillory for those guys.

How did your meeting with the physical therapist go?

Is it a light or more aggressive vibration?

La bravoure commence par la peur, puis l'échec, puis l'incertitude, puis on se redresse petit à petit. Tu es sur ce chemin maintenant et j'ai confiance en toi, jeune baguette :)

Thanks, I need a little support today!

Right there with you! <3

Me too I think getting the teeth corrected could fix it.

@Strawberryblonde My dentist and physical therapist both acknowledged I had a lot of tensions in the jaw, but never diagnosed as TMJ

@Strawberryblonde I never had jaw pain or problems prior to tinnitus, but since the onset 2 years ago I've been experiencing them regularly

Maybe you could try some jaw massages if you have not done already. It could help loosen any knots/tension if any :) and an alternating hot/cold compress to see if it helps too :)
Anxiety causes subconscious jaw tightness, it does with me.

What improvements has your T made?

So sorry to hear this, hopefully things will turn around in time and get better. Hugs! :)

Are you on any meds, @Ondine ? I had to decreased my Remeron because it was giving me inner ear and head vibration feeling at night when laying down. Once I went down to the tiniest dose (3.75mg) it seems to have gone away.

@ErikaS No, I'm not on any meds and only taking B12 supplements, but I've been taking them forever and doubt they could have such a side effect on the long term..? Thank you for your answer, I'm glad you could get rid of the vibration !

@Strawberryblonde None that I can think of, spikes and changes are always so random... My neck and shoulders have been very stiff these last few days, and I've been having more nightmares bringing their own anxiety, but no change in diet, noise exposure or daily routine... Thank you for your concern <3 I see you had a loud multitonal day, are you feeling any better since ?

@Sammy0225 Thank you for your constant support and kindness <3 I'm sorry I'm taking such a long time to reply whenever you answer my status, I tend to lose track of time, carefully reply in my thoughts and then forget to do it for real... I hope you're well, I was so glad to read you could enjoy a meal with friends !

That stiffness could well be the cause of the hum you have been dealing with, have a relaxing bath in some epsom salts (magnesium) and I always find a hot waterbottle helps somewhat when my back plays up :) @Ondine My loud days depend on how my mood is, I suffer with chronic anxiety which in itself is a daily battle the T certainly doesn't help.

I'm so sorry you are to go through all these issues @Ondine my heart and prayers are with you, please stay strong we are rooting for you always

How are you doing ? Thanks again for asking <3

@Ondine your welcome (^.^) and same last week all tones came back! (Wine glass, hiss and eee) also humming that so strange that we both experienced this! Lol and you are right it’s definitely stressful, but you are super strong and not letting this get the best of you! (.)….

(.)… sorry to hear about the outing but u did the right thing of plugging up. If it wasn’t for the sensitivity I feel we could narrow through life more easily. As for me I’m taking it day by day. Last week got me nervous cause the humming and wine glass came back but it eventually faded away again, and your definitely welcome I’m always here to talk or vent to ^.^ {: