Ondine
Mood:
Gloomy
Last Activity:
Feb 27, 2024 at 2:07 PM
Joined:
Apr 19, 2021
Messages:
7
Trophy Points:
173

Post Ratings

Received: Given:
Like 378 472
Agree 5 25
Helpful 0 0
Hug 16 37
Good Question 0 0
Genius 0 0
Funny 0 0
Winner 7 0
Informative 0 0
Friendly 4 4
Useful 0 0
Optimistic 0 0
Creative 0 0
Gender:
Female
Birthday:
March 25
Location:
France

Share This Page

Ondine

Member, Female, from France

COVID, 3 years after everybody. Very anxious to be feeling so breathless and dreading my tinnitus to spike. Please let me be safe... Nov 5, 2023

Ondine was last seen:
Feb 27, 2024 at 2:07 PM
    1. Ondine
      Ondine
      COVID, 3 years after everybody. Very anxious to be feeling so breathless and dreading my tinnitus to spike. Please let me be safe...
      1. Juliane and Sammy0225 like this.
      2. SarahMLFlemmer
        SarahMLFlemmer
        I thought your T was gone??
        Nov 6, 2023
        Juliane and Utdmad89 like this.
      3. Lurius
        Lurius
        Oh noes :( I'm so sorry. Tbh I thought I got covid myself last week. I've been able to dodge it so far, I don't really understand how. Some of my friends who also dodged it in 2020 got it for the first time now in October.
        Nov 6, 2023
    2. Ondine
      Ondine
      (2/2) I'm almost 100% cured from tinnitus and can't risk anything jeopardizing my recovery..
      1. View previous comments...
      2. Juliane
        Juliane
        Do you know what healed you? Just time?
        Nov 1, 2023
        gameover and Ondine like this.
      3. Ondine
        Ondine
        @Juliane Time, almost 3 years next february, living in a quiet environment and being supported by everyone around me. Sadly I would also say this is sheer luck, as some may have waited just as long and lived in silence without improving as much...
        Nov 5, 2023
        gameover and Juliane like this.
      4. Juliane
        Juliane
        @Ondine Did you still meet with friends and socialize during those three years?
        Nov 11, 2023
    3. Ondine
      Ondine
      (1/2)I have to take Prednisolone 50g for 5 days for sciatica, but I'm so scared of taking it... Any advice on what I should do ?
      1. Sammy0225 likes this.
      2. View previous comments...
      3. Lurius
        Lurius
        I also had some sciaticia issues in September, I wish you a speedy recovery :)
        Oct 31, 2023
        Ondine likes this.
      4. Ondine
        Ondine
        @Lurius Thank you <3 How are you doing...?
        Nov 5, 2023
      5. Lurius
        Lurius
        @Ondine I'm off my sleeping meds now for 2-3 weeks again so a little worse sleep, a little worse T. I keep it in check by working out and some Lenire but still not great 60% of the time. You are always so kind to me, I'm thinking of you as well <3
        Nov 6, 2023
    4. Ondine
      Ondine
      My left ear has been acting up. Frequent fleeting tinnitus, burning feeling. I wish I could have a tchat with my body & ask it what's wrong.
    5. Ondine
      Ondine
      The anxiety and trauma this family caused me since birth while blaming me for it is mindblowing. I don't deserve this. Can't sleep.
      1. Strawberryblonde likes this.
      2. Juliane
        Juliane
        I am so sorry. Being misunderstood or gaslighted by family is horrible
        Sep 20, 2023
        Ondine and 4alien2 like this.
      3. 4Grace
        4Grace
        I am so sorry to hear this. I pray that sleep finds you.
        Sep 29, 2023
    6. Ondine
      Ondine
      Head vibrations return. My sister said and did horrible things to me yesterday. She's not even sorry and gaslighting me for defending myself
    7. Ondine
      Ondine
      Depression & anxiety are hard to deal with, I'm taking a break from TT. Take care, I love you all. You're brave in a way only we understand.
      1. kingsfan
        kingsfan
        My tinnitus was at it's best when I took a long break from here. I hope it will be the same for you.
        Aug 31, 2023
      2. Strawberryblonde
        Strawberryblonde
        Hope you feel better soon @Ondine depression and anxiety can suck the life out of you.
        Sep 8, 2023
        4Grace and Ondine like this.
      3. Lurius
        Lurius
        Hope you had a nice day, mademoiselle. I wish you silence.
        Sep 10, 2023
        4Grace and Ondine like this.
    8. ErikaS
      ErikaS
      So happy for you that you’ve come such a long way over 2 years and are here to share your improvement. You are one strong woman <3 At your worst, did you have multiple tones? And did you have any sound sensitivty/reactivity?
      1. SarahMLFlemmer, stacey and PennyCat like this.
      2. View previous comments...
      3. Ondine
        Ondine
        @ErikaS But it usually goes away in a few hours, 24h max, and isn't a severe pain. The severe ear pain I experience comes at night, but I've experienced it for years and years before my onset. Something to do with teeth clenching and tension all around the jaw/neck area...
        Aug 31, 2023
        4Grace likes this.
      4. Ondine
        Ondine
        @ErikaS You're so kind to call me strong, I wish I could believe in these words... Most of the time, I just feel like a broken human being. Lifelong depression and anxiety didn't do well with tinnitus trauma. But thank you so much... Anyone surviving this nightmare day after day and still finding the courage to go on is strong. You are too, and I admire you so much for it.
        Aug 31, 2023
        4Grace likes this.
      5. 4Grace
        4Grace
        Must be a great feeling to have had tinnitus go away 95 percent! What a dream. Although I am careful I don’t think I am anywhere near careful enough with noise exposure. I stay away from loud events and have declined many an invite but the place where I stay daily masks my T and I cannot for the life of me put on ear plugs for all the hours that I should
        Sep 29, 2023
    9. Lurius
      Lurius
      Ondine, I hope you are allright. I think about you sometimes. I hope you can get much better in the future.
      1. Ondine likes this.
      2. View previous comments...
      3. stacey
        stacey
        That’s good to know , thanks for explaining how glad you were still able to go out a bit and at least get stuff done.
        Aug 31, 2023
      4. Utdmad89
        Utdmad89
        @Lurius I'm also autistic. Was it visaul snow the reason you found out about gaba dysfunction?
        Sep 8, 2023
      5. Strawberryblonde
        Strawberryblonde
        @Ondine fantastic to hear you are doing better in regards to the tinnitus. Having silence again is wonderful, enjoy and cherish it. I'm jealous lol :)
        Sep 8, 2023
        Utdmad89 likes this.
    10. Ondine
      Ondine
      Everytime I feel confident enough to come and share my progress and healing with you, I get a random spike the next day. Beyond frustrating.
      1. SarahMLFlemmer
        Aug 16, 2023
    11. WCJohn
      WCJohn
      Hi, @Ondine . Re: your concerns about beer. For what's worth, I drink beer regularly. 1 - 3 beers, no change. Tipsy, still good. Drunk, bad idea! Start small if you are dying for a beer. Try just 4 ounces. We need all of the little pleasures we can get. I hope you get another few days of quiet soon! Cheers!
      1. Ondine and Strawberryblonde like this.
      2. Ondine
        Ondine
        Hi ! Thank you for your kind message, I've actually tried a sip of beer a few days ago with no side effects whatsoever, it felt great to enjoy the family reunion a bit more :)

        How are you doing these days ?
        Aug 15, 2023
        WCJohn likes this.
      3. WCJohn
        WCJohn
        Nice to hear you enjoyed your family reunion. Family is so important. As for me, I have been up and down this past week. Sometimes the noise is less intrusive, but it's not constant. Thank you for asking!
        Aug 16, 2023
    12. SarahMLFlemmer
      SarahMLFlemmer
      How's it going over there?
      1. Ondine likes this.
      2. View previous comments...
      3. Ondine
        Ondine
        @SarahMLFlemmer I have already had those "spikes" during the last year and everytime they got better within days, I hope this one will fade as well... My neck, shoulders and jaw felt very stiff lately, it might be a reason why. I've been icing my left ear and protecting it with a foam ear plug while it lasts.
        Aug 15, 2023
        SarahMLFlemmer likes this.
      4. Ondine
        Ondine
        Aug 15, 2023
      5. SarahMLFlemmer
        SarahMLFlemmer
        @Ondine I've been up and down, up and down. ❤️
        Aug 18, 2023
    13. Ondine
      Ondine
      I might have to go back to my old job in high school, but I'm terrified of all the noise. I wish I could find a way to work from home.
    14. Ondine
      Ondine
      Dying to drink a beer but far too scared of potential consequences to even dare.
      1. Ryan Scott likes this.
      2. Lorca
        Lorca
        Hi Ondine, I don’t find any correlation. If anything it helps alleviate the stress of this condition.
        Jun 19, 2023
        Ondine likes this.
      3. Strawberryblonde
        Strawberryblonde
        If it has any effect itll be a temporary one. I drink quite frequently now, ciders beers etc and i find it makes me sleep quicker, then again it always has i just notice that more now.
        Jun 19, 2023
        Ondine likes this.
    15. Ondine
      Ondine
      How I wish I could blast my ears to Cradle of Filth again.
      1. Leila and Sammy0225 like this.
      2. Joshua Macleod
        Joshua Macleod
        Honestly, extreme metal genres sound shit at 30dB lmao
        Jun 2, 2023
      3. Sammy0225
        Sammy0225
        Yesss!! I love filth. wish I could blast it to
        Jun 3, 2023
        Ondine likes this.
      4. Joshua Macleod
        Joshua Macleod
        Actually forgot to say, CoF are from my home town!
        Sep 9, 2023
    16. Ondine
      Ondine
      A friend developed pulsatile T. Her doctor said "it's all in your head" and sent her home. There's no end to my hatred for those criminals.
      1. makeyourownluck
        makeyourownluck
        like, literally in her head.
        May 31, 2023
        ZFire and Ondine like this.
      2. Ryan Scott
        Ryan Scott
        Or my personal favorite tinnitus is not that bad you are over reacting.
        May 31, 2023
        Ondine likes this.
      3. Lurius
        Lurius
        Maybe we should bring back the pillory for those guys.
        May 31, 2023
        Ondine likes this.
    17. Ondine
      Ondine
      This vibrating head thing is starting to really affect my sleep. It's also vibrating anytime now, not just when I'm lying down..
      1. sakrt and Strawberryblonde like this.
      2. Jsm_Joestar
        Jsm_Joestar
        How did your meeting with the physical therapist go?
        Mar 8, 2023
        Strawberryblonde likes this.
      3. Strawberryblonde
        Strawberryblonde
        Is it a light or more aggressive vibration?
        Mar 9, 2023
    18. Ondine
      Ondine
      Sending all my support and so much love to everyone. It's not much of a comfort, but you are all the bravest people I've ever met.
      1. Lurius
        Lurius
        La bravoure commence par la peur, puis l'échec, puis l'incertitude, puis on se redresse petit à petit. Tu es sur ce chemin maintenant et j'ai confiance en toi, jeune baguette :)
        Mar 5, 2023
        Ondine and brixenbrixen like this.
      2. Tom Okay
        Tom Okay
        Thanks, I need a little support today!
        Mar 7, 2023
        Ondine likes this.
      3. SarahMLFlemmer
        SarahMLFlemmer
        Right there with you! <3
        Mar 10, 2023
    19. Ondine
      Ondine
      I'm starting to wonder if TMJ could be one the main culprits for all this, I'm meeting with a physical therapist specializing in TMJ tuesday
      1. NYCGuy and Strawberryblonde like this.
      2. Sironketchup
        Sironketchup
        Me too I think getting the teeth corrected could fix it.
        Mar 5, 2023
        Strawberryblonde likes this.
    20. Ondine
      Ondine
      T has been virtually silent for the last 6 days. Jaw pain is becoming more present however, radiating at times in the teeth, temple, ear..
    21. Ondine
      Ondine
      I've been having a lot of jaw and dental pain, and several episodes of ear pain and fleeting tinnitus for the last two days..
      1. NYCGuy, Moni97 and Sammy0225 like this.
      2. View previous comments...
      3. Ondine
        Ondine
        @Strawberryblonde My dentist and physical therapist both acknowledged I had a lot of tensions in the jaw, but never diagnosed as TMJ
        Feb 20, 2023
        NYCGuy and Sammy0225 like this.
      4. Ondine
        Ondine
        @Strawberryblonde I never had jaw pain or problems prior to tinnitus, but since the onset 2 years ago I've been experiencing them regularly
        Feb 20, 2023
        NYCGuy, CRGC and Sammy0225 like this.
      5. Strawberryblonde
        Strawberryblonde
        Maybe you could try some jaw massages if you have not done already. It could help loosen any knots/tension if any :) and an alternating hot/cold compress to see if it helps too :)
        Anxiety causes subconscious jaw tightness, it does with me.
        Feb 20, 2023
        Ondine and NYCGuy like this.
    22. Ondine
      Ondine
      I stopped improving, but I'm deeply and forever grateful for all the improvements so far. I hope there's more to come...
      1. SarahMLFlemmer
        SarahMLFlemmer
        What improvements has your T made?
        Mar 10, 2023
    23. Ondine
      Ondine
      Didn't see any friends since 3 years because of Covid then tinnitus, as train tunnels hurt my ears. Had to quit a job I loved.
    24. Ondine
      Ondine
      2 years. Lost faith, trust and respect in doctors and medicine. Lost any sense of safety. T makes me feel like a prey chased by a monster.
      1. sakrt, Samy, Strawberryblonde and 5 others like this.
      2. Guywithapug
        Guywithapug
        So sorry to hear this, hopefully things will turn around in time and get better. Hugs! :)
        Feb 17, 2023
        Damocles likes this.
    25. Ondine
      Ondine
      for a few seconds, several times in a row, then stops ? It's happening more and more frequently, longer each time & only when I lie down..
      1. Samy likes this.
      2. ErikaS
        ErikaS
        Are you on any meds, @Ondine ? I had to decreased my Remeron because it was giving me inner ear and head vibration feeling at night when laying down. Once I went down to the tiniest dose (3.75mg) it seems to have gone away.
        Feb 16, 2023
      3. Ondine
        Ondine
        @ErikaS No, I'm not on any meds and only taking B12 supplements, but I've been taking them forever and doubt they could have such a side effect on the long term..? Thank you for your answer, I'm glad you could get rid of the vibration !
        Feb 16, 2023
    26. Ondine
      Ondine
      Does anyone experience a strange, inner vibration sensation in your head ? Like your entire face is softly vibrating from the inside (1/2)
    27. Ondine
      Ondine
      Cried myself to sleep last night, the vibrating, humming T in my right ear is getting stronger again..
      1. NYCGuy, TheCapybara and Sammy0225 like this.
      2. View previous comments...
      3. Ondine
        Ondine
        @Strawberryblonde None that I can think of, spikes and changes are always so random... My neck and shoulders have been very stiff these last few days, and I've been having more nightmares bringing their own anxiety, but no change in diet, noise exposure or daily routine... Thank you for your concern <3 I see you had a loud multitonal day, are you feeling any better since ?
        Feb 7, 2023
      4. Ondine
        Ondine
        @Sammy0225 Thank you for your constant support and kindness <3 I'm sorry I'm taking such a long time to reply whenever you answer my status, I tend to lose track of time, carefully reply in my thoughts and then forget to do it for real... I hope you're well, I was so glad to read you could enjoy a meal with friends !
        Feb 7, 2023
        Sammy0225 and Strawberryblonde like this.
      5. Strawberryblonde
        Strawberryblonde
        That stiffness could well be the cause of the hum you have been dealing with, have a relaxing bath in some epsom salts (magnesium) and I always find a hot waterbottle helps somewhat when my back plays up :) @Ondine My loud days depend on how my mood is, I suffer with chronic anxiety which in itself is a daily battle the T certainly doesn't help.
        Feb 7, 2023
    28. Ondine
      Ondine
      Lifelong depression, ADHD, eating disorders, eco-anxiety, tinnitus. I'm tired of it all..
      1. Guywithapug, Sammy0225, tpj and 2 others like this.
      2. Sammy0225
        Sammy0225
        I'm so sorry you are to go through all these issues @Ondine my heart and prayers are with you, please stay strong we are rooting for you always
        Jan 28, 2023
        Ondine, Ken219 and Strawberryblonde like this.
    29. Sammy0225
      Sammy0225
      How are you doing friend?
      1. Ondine and NYCGuy like this.
      2. View previous comments...
      3. Ondine
        Ondine
        How are you doing ? Thanks again for asking <3
        Jan 9, 2023
        NYCGuy and Sammy0225 like this.
      4. Sammy0225
        Sammy0225
        @Ondine your welcome (^.^) and same last week all tones came back! (Wine glass, hiss and eee) also humming that so strange that we both experienced this! Lol and you are right it’s definitely stressful, but you are super strong and not letting this get the best of you! (.)….
        Jan 12, 2023
        NYCGuy likes this.
      5. Sammy0225
        Sammy0225
        (.)… sorry to hear about the outing but u did the right thing of plugging up. If it wasn’t for the sensitivity I feel we could narrow through life more easily. As for me I’m taking it day by day. Last week got me nervous cause the humming and wine glass came back but it eventually faded away again, and your definitely welcome I’m always here to talk or vent to ^.^ {:
        Jan 12, 2023
        NYCGuy likes this.
    30. Ondine
      Ondine
      Ended the Christmas afternoon with 15 guests alone in a room with earplugs, noise became more & more unbearable as the hours passed.
      1. NYCGuy, Sammy0225 and seppl like this.
  • Loading...
  • Loading...
  • About

    Gender:
    Female
    Birthday:
    March 25
    Location:
    France
    Tinnitus Since:
    February 2021
    Cause of Tinnitus:
    Headphones, TMJ disorder, anxiety, undiagnosed COVID..