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Never been a concert goer ever in my fucking life and the one time I go my life is ruined and everyone blames me for it yeah fuck me
Gotta love victim blaming. Been told yet again my t is my fault. My is it legal for concerts to be so loud? Why aren't there laws?
Idk how my problem could even show up there when this only manifested right after a concert. I guess my PT has to be noise or stress induced...
@makeyourownluck likewise I am beyond broke now from spending literally thousands on this stupid BS with nothing to show for it. I can't take the...
@makeyourownluck tbh because I'm terrified. I've had 6 CT scans and 1 MRI in less than 3 years and I'm scared of getting normal t over my PT from...
Every day just solidifies my future plans for suicide, I just can't fucking take this shit anymore
I had no idea about the CTA. Guess I'm fucked since I've had 6 in my lifetime, head and neck, with them finding nothing. 4 of those in less than 3...
@Wrfortiscue How does acoustic trauma cause PT?? I never had PT until I got an acoustic trauma from a concert. That's so horrible, I don't know...
@Forever hopeful I never had PT until I had an acoustic trauma. I can't explain it either and don't get it :(
Dr. P said that PT can be caused by an acoustic trauma but that ENT would have caught it?? I don't really understand...
Slight venous stenosis on right side, which was the side I usually don't have as much PT in. Although knock on wood that's where it's been lately...
I am thinking I'm one of the unlucky few with untreatable pulsatile tinnitus:(
Had my appt with Dr. P. No answers for me. :( He says get a MRA/MRV but I'm guessing it won't show anything. That and blood work.
Not who you're asking, but I use good quality external USB speakers and microphone for my computer and it works great.
No change sadly
I hope PT can just go away on its own :( 5 months out now and still feeling empty and hopeless
@Jerad Yeah but not as bad now 5 months on. Was pretty bad before with stuff like faucets, shower, toilet flushing. Didn't know there was a name...
@Jerad What's nox?
Idk how to fix my PT. Praying even if I never get dx, that somehow I will heal regardless. Wish I knew what to do. No answers many drs later
Hyperacusis is improving, but it's a very, very slow road. I am ok with it if it takes years to go, but it's definitely a slow burn.
Hope I'll get answers but kind of prepared not to. Every day is a huge struggle. No one gets it. Not sleeping well, wake up every few hrs.
I sure hope I don't have IIH, but I guess it lines up with my vision and PT symptoms. I'll be happy to get answers either way.
Getting looked at next month by a neurointerventional radiologist, thanks to @NYCGuy for the recommendation. Feel blessed to have you guys!
@Steph1710 aaa no, I'll post it again, it works for me when I press the play button...
I get big b&w blurs in my vision, esp my peripheral, when moving my head or eyes. Apparently this is part of IIH?? Which also causes PT???
Man I read about someone elsewhere having the same vision symptoms I do, and they have IIH?? I wonder if that's causing my PT too?? OMG.
An ENT listened with a stethoscope and couldn't hear it, so maybe it isn't PT??
Thanks for the link! The closest I could get it to what I hear is this. The sound is different, but the pattern is correct (it just shifts...
Like laying down was the only thing that could stop me from feeling like I was on a boat and stop patterns moving as much, but laying down just...
@Marshall people will be angry with me, but it's honestly not very loud at all. It's extremely disorientating though on top of my vision issues...
@kingsfan What does whooshing sound like exactly? I went onto the whooshers site, but none of the sound files sound like what I have. Mine reminds...
@Wrfortiscue I'm starting to think a good portion of people with PT don't have structural issues either. I didn't realize that noise could cause...
I don't have the strength to keep fighting and guessing forever. I wish I could take back everything that happened that horrible day.
Maybe it isn't even PT...in sync with heart, but only happened after acoustic trauma?? Maybe happened because of stress alone?? No answers.
I feel so alone in this. I don't even know why I have PT. It's so hard. Is there any hope it'll go away on its own? Drs say it's forever. :(
Really sussed out about getting MORE imagining when I've had so many MRIs and CT scans within the past 3 years.
Thanks a ton for the rec, I've been looking for a neurointerventional radiologist, and it's especially good if he doesn't need a rec from a Dr. I...
@NYCGuy there's nothing drs can do for tmj?? That's horrible. :( I've worn a fitted night guard for years and still have jaw pain (not dx w/tmj...
I wonder if it's an anxiety/possible tmj/iih thing because I think I've read acoustic trauma can't cause PT? But mine is definitely synced with my...
@Steph1710 no, I can't stop it by pressing or turning my neck or head, although that does make it worse. Are there specific places to push down...
What's a good brand to use? I saw reviews that current Mack's ones are far less quality than they used to be, so I wasn't sure. I've never put in...
I have really horrible anxiety, but that keeps you from getting better. I've been trying gentle vagal exercises to calm down my nervous system....
Hey there. Nobody ever warns you about this stuff with t. Have you had a look at success stories? There are people who go back to 100% normal...
Said whooshers is full of shit, in so many words. I think she's the one full of shit.
Is there any hope the Susan Shore device will work for PT that changes with neck and jaw movement??
Literally got into a big argument. I feel deeply hopeless being told yet again that there's no hope for me. Suicidal.
Just got out of another useless Dr appt with a supposed tinnitus specialist. Said PT is usually not curable. Has never heard of whooshers.
Really really sorry for the question bombing I just feel hopeless. So super grateful for everything, what you've told me so far is of way more...
Is it the case that they'd see something that would cause PT less than 2 months before I got PT from CT scan with contrast? I've gotten 3 CT scans...
I have a question too. I had to have a CT scan with contrast less than 2 months before I gained 24/7 PT bc I lost central vision in one eye while...
I've looked at the whooshers site but don't understand it at all. I saw there are sound files but none of the sounds sound like what I have....
I also had a hearing loss and gained hyperacusis afterward the concert. So I don't know what I have. It follows my pulse though. I live in the US...
@Steph1710 really sorry, I didn't get notified of them. Neuro-optometrist and RS told me I couldn't have IIH bc my eye pressure was normal. Have...
I don't see any success stories of PT spontaneously clearing up or getting better when they don't see a cause for it. I feel so scared.
I can't believe that this is it, that one mistake can just destroy your entire life like this.
@NYCGuy Did the MRA help diagnose your TMJ and neck issues? I really hope it's given you answers for further treatment. :( Thank you a ton for...
Also I got a CT scan with contrast less than two months before I got PT for vision going black. They said it was normal. I wonder if that is as...
I kind of suspect IIH but the eye Dr took my pressure measurements and said it's normal. I have history of concussion and whiplash injury so idk....
@Wrfortiscue thank you, I really really appreciate it. I saw that MRAs can cause tinnitus though, and that the contrast used is very dangerous. I...
I have no idea what specialist to see...have wasted four figures trying to get help for PT...