dolphinskin
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dolphinskin

Member, Female

Dr. P said that PT can be caused by an acoustic trauma but that ENT would have caught it?? I don't really understand... Sep 27, 2022 at 7:45 PM

dolphinskin was last seen:
Sep 29, 2022 at 9:51 AM
    1. dolphinskin
      dolphinskin
      Dr. P said that PT can be caused by an acoustic trauma but that ENT would have caught it?? I don't really understand...
      1. NYCGuy likes this.
      2. Forever hopeful
        Forever hopeful
        Really? Everything I’ve heard or read is that pulsatile tinnitus is usually a vascular issue. I have it on and off and much prior to my acoustic trauma. My ENT suggested a CT or MRI.
        Sep 28, 2022 at 10:36 AM
      3. dolphinskin
        dolphinskin
        @Forever hopeful I never had PT until I had an acoustic trauma. I can't explain it either and don't get it :(
        Sep 29, 2022 at 1:07 AM
    2. dolphinskin
      dolphinskin
      I am thinking I'm one of the unlucky few with untreatable pulsatile tinnitus:(
      1. Wrfortiscue and NYCGuy like this.
      2. View previous comments...
      3. makeyourownluck
        makeyourownluck
        Sep 28, 2022 at 7:57 PM
        Wrfortiscue likes this.
      4. dolphinskin
        dolphinskin
        @Wrfortiscue How does acoustic trauma cause PT?? I never had PT until I got an acoustic trauma from a concert. That's so horrible, I don't know what to think.
        Sep 29, 2022 at 1:08 AM
      5. Wrfortiscue
        Wrfortiscue
        @makeyourownluck i think pulsatile mainly sounds like a whooshing noise. Also when I get fleeting episodes on my pulsatile ear the heartbeat noise stops then resumes when fleeting is done. I think you need an MRA I just got mri with contrast and it was clear
        Sep 29, 2022 at 1:29 AM
    3. dolphinskin
      dolphinskin
      Had my appt with Dr. P. No answers for me. :( He says get a MRA/MRV but I'm guessing it won't show anything. That and blood work.
      1. NYCGuy likes this.
      2. dolphinskin
        dolphinskin
        Slight venous stenosis on right side, which was the side I usually don't have as much PT in. Although knock on wood that's where it's been lately...
        Sep 27, 2022 at 7:44 PM
    4. OptimusPrimed
      OptimusPrimed
      Hey, how are you doing now? I have similar symptoms I know what you are going through
      1. dolphinskin and NYCGuy like this.
      2. dolphinskin
        dolphinskin
        No change sadly
        Sep 14, 2022
    5. dolphinskin
      dolphinskin
      I hope PT can just go away on its own :( 5 months out now and still feeling empty and hopeless
      1. makeyourownluck
        makeyourownluck
        It gets easier. My PT hasn’t changed much but I’ve got used to it. No longer feel the heart wrenching sadness and crippling anxiety that I once did. 5 months is still early days.
        Sep 12, 2022
        dolphinskin, ZFire and Steph1710 like this.
    6. dolphinskin
      dolphinskin
      Idk how to fix my PT. Praying even if I never get dx, that somehow I will heal regardless. Wish I knew what to do. No answers many drs later
    7. dolphinskin
      dolphinskin
      Hyperacusis is improving, but it's a very, very slow road. I am ok with it if it takes years to go, but it's definitely a slow burn.
      1. Jsm_Joestar and CRGC like this.
      2. View previous comments...
      3. dolphinskin
        dolphinskin
        Sep 10, 2022
      4. Jerad
        Jerad
        @dolphinskin its hyperacusis w pain. Do you have loudness h or h with pain ?
        Sep 11, 2022
      5. dolphinskin
        dolphinskin
        @Jerad Yeah but not as bad now 5 months on. Was pretty bad before with stuff like faucets, shower, toilet flushing. Didn't know there was a name for it. No doctor mentioned that. Thank you for letting me know!
        Sep 11, 2022
        Jerad likes this.
    8. dolphinskin
      dolphinskin
      Hope I'll get answers but kind of prepared not to. Every day is a huge struggle. No one gets it. Not sleeping well, wake up every few hrs.
    9. dolphinskin
      dolphinskin
      I sure hope I don't have IIH, but I guess it lines up with my vision and PT symptoms. I'll be happy to get answers either way.
    10. dolphinskin
      dolphinskin
      Getting looked at next month by a neurointerventional radiologist, thanks to @NYCGuy for the recommendation. Feel blessed to have you guys!
      1. Rockman and Steph1710 like this.
      2. Steph1710
        Steph1710
        Sep 10, 2022
    11. dolphinskin
      dolphinskin
      I get big b&w blurs in my vision, esp my peripheral, when moving my head or eyes. Apparently this is part of IIH?? Which also causes PT???
    12. dolphinskin
      dolphinskin
      Man I read about someone elsewhere having the same vision symptoms I do, and they have IIH?? I wonder if that's causing my PT too?? OMG.
      1. Steph1710 likes this.
    13. dolphinskin
      dolphinskin
      I don't have the strength to keep fighting and guessing forever. I wish I could take back everything that happened that horrible day.
      1. Wrfortiscue likes this.
      2. Lurius
        Lurius
        I feel horrible for you. I felt just like this. I still do every now and then. But help might be coming soon. Hold out a bit longer.
        Aug 25, 2022
        dolphinskin likes this.
      3. Marshall
        Marshall
        We have all been there. I'm still there most days but it doesn't affect me like it did.
        Aug 25, 2022
        dolphinskin likes this.
    14. dolphinskin
      dolphinskin
      Maybe it isn't even PT...in sync with heart, but only happened after acoustic trauma?? Maybe happened because of stress alone?? No answers.
      1. View previous comments...
      2. Wrfortiscue
        Wrfortiscue
        Not to hijack but @kingsfan when you bend over do you hear the blood rushing to the ears? You can feel it too
        Aug 27, 2022
        dolphinskin likes this.
      3. kingsfan
        kingsfan
        @Wrfortiscue I hear like a ffff ffff ffff sound with my heartbeat. I used to hear my heartbeat thumping in my ears when I would lie down in bed at night too. I never thought anything of it. Thought it was normal.
        Aug 27, 2022
        dolphinskin and Wrfortiscue like this.
      4. Wrfortiscue
        Wrfortiscue
        I see. I’m hearing the pulsatile right now. It’s my electric squeal lol bZz bZz bZz bZz mainly after it’s been aggravated from sound
        Aug 27, 2022
        dolphinskin likes this.
    15. dolphinskin
      dolphinskin
      I feel so alone in this. I don't even know why I have PT. It's so hard. Is there any hope it'll go away on its own? Drs say it's forever. :(
      1. Marshall
        Marshall
        how loud is it
        Aug 25, 2022
      2. dolphinskin
        dolphinskin
        @Marshall people will be angry with me, but it's honestly not very loud at all. It's extremely disorientating though on top of my vision issues though with post-trauma vision syndrome and poor vision in general.
        Aug 25, 2022
      3. dolphinskin
        dolphinskin
        Like laying down was the only thing that could stop me from feeling like I was on a boat and stop patterns moving as much, but laying down just makes my PT worse aa.
        Aug 25, 2022
    16. dolphinskin
      dolphinskin
      Is there any hope the Susan Shore device will work for PT that changes with neck and jaw movement??
      1. in_LA and NYCGuy like this.
      2. View previous comments...
      3. dolphinskin
        dolphinskin
        @NYCGuy there's nothing drs can do for tmj?? That's horrible. :( I've worn a fitted night guard for years and still have jaw pain (not dx w/tmj btw just bruxism) so I totally get that. Is there jaw surgery possible for you??
        Aug 23, 2022
      4. dolphinskin
        dolphinskin
        Thanks a ton for the rec, I've been looking for a neurointerventional radiologist, and it's especially good if he doesn't need a rec from a Dr. I only have a recent CT scan w/contrast from <2 months before I got PT, I hope that's enough?
        Aug 23, 2022
      5. dolphinskin
        dolphinskin
        Really sussed out about getting MORE imagining when I've had so many MRIs and CT scans within the past 3 years.
        Aug 23, 2022
    17. dolphinskin
      dolphinskin
      Literally got into a big argument. I feel deeply hopeless being told yet again that there's no hope for me. Suicidal.
      1. NYCGuy likes this.
    18. dolphinskin
      dolphinskin
      Just got out of another useless Dr appt with a supposed tinnitus specialist. Said PT is usually not curable. Has never heard of whooshers.
      1. NYCGuy likes this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        I am so unbelievably angry that twat said that to you! Can you stop the sound by pressing on your neck or turning your head? Is your PT in time with your heartbeat?
        Aug 23, 2022
      4. dolphinskin
        dolphinskin
        @Steph1710 no, I can't stop it by pressing or turning my neck or head, although that does make it worse. Are there specific places to push down on? My PT is in time with my heartbeat and came after acoustic trauma from concert.
        Aug 23, 2022
      5. dolphinskin
        dolphinskin
        I wonder if it's an anxiety/possible tmj/iih thing because I think I've read acoustic trauma can't cause PT? But mine is definitely synced with my pulse.
        Aug 23, 2022
    19. dolphinskin
      dolphinskin
      I don't see any success stories of PT spontaneously clearing up or getting better when they don't see a cause for it. I feel so scared.
      1. NYCGuy likes this.
      2. View previous comments...
      3. dolphinskin
        dolphinskin
        Is it the case that they'd see something that would cause PT less than 2 months before I got PT from CT scan with contrast? I've gotten 3 CT scans and 2 MRIs in the past 3 years and don't want more.
        Aug 21, 2022
      4. dolphinskin
        dolphinskin
        Really really sorry for the question bombing I just feel hopeless. So super grateful for everything, what you've told me so far is of way more value than the hours and $$$$ I've lost to drs over this so far
        Aug 21, 2022
      5. Steph1710
        Steph1710
        @dolphinskin will respond. Just a little busy atm and I want to write a thorough reply. I completely understand your frustration. X
        Aug 22, 2022
        NYCGuy likes this.
    20. dolphinskin
      dolphinskin
      I can't believe that this is it, that one mistake can just destroy your entire life like this.
      1. KP26 likes this.
      2. Lurius
        Lurius
        Yup. One forceful valsalva maneuver and my life went down the drain. I used to be pretty big on poetic irony, but I don't think its funny anymore.
        Aug 21, 2022
        NYCGuy and dolphinskin like this.
    21. dolphinskin
      dolphinskin
      I have no idea what specialist to see...have wasted four figures trying to get help for PT...
      1. NYCGuy and Wrfortiscue like this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        @dolphinskin I have IIH and my eye pressure is normal. You don’t have to have pressure behind the eyes to have it.
        Aug 17, 2022
        Wrfortiscue and NYCGuy like this.
      4. Steph1710
        Steph1710
        Are you in the UK? Also, can you PT be stopped by pressing anywhere on your neck or behind your ear - perhaps turning your head to one side? MRI/MRA are pretty crap for PT. You need an angiogram with contrast. It’s the only way they can truly see any abnormalities in the vessels.
        Aug 17, 2022
        Wrfortiscue and NYCGuy like this.
      5. Steph1710
        Steph1710
        Also, IIH is a cause of PT. You need to ask for a lumber puncture so they can measure the pressure. They can’t tell just by checking the back of the eyes. Ask me as many questions as you like. :) Have you checked out the “Whooshers” site?
        Aug 17, 2022
        dolphinskin, Wrfortiscue and NYCGuy like this.
    22. dolphinskin
      dolphinskin
      Are there any stories of PT clearing up on its own out there :(
      1. Marshall
        Marshall
        What's PT
        Aug 17, 2022
        Steph1710 likes this.
      2. Steph1710
        Steph1710
        @Marshall PT is ‘pulsatile tinnitus’. It’s a whole different ball game of it own. A lot of people with “normal” T also have PT - myself included. Hope that clears things up. :)
        Aug 17, 2022
        Marshall and NYCGuy like this.
    23. dolphinskin
      dolphinskin
      I wonder if you can have 4+ months of PT because of anxiety alone...I don't know who to ask or where to go for help...feel hopeless
    24. dolphinskin
      dolphinskin
      Was going to go in for a MRA with contrast, then I saw the horror stories of worse t after and poisoning from the gadolinium...
      1. Wrfortiscue likes this.
      2. NYCGuy
        NYCGuy
        I had MRA/MRV wit no issues at all but for sure is really loud but luckily my Tinnitus was not worse. Mi Tinnitus and PT seems to be cause by neck and TMJ.
        Aug 17, 2022
      3. dolphinskin
        dolphinskin
        @NYCGuy Did the MRA help diagnose your TMJ and neck issues? I really hope it's given you answers for further treatment. :( Thank you a ton for weighing in. Don't like how the contrast appears to permanently hang around your body once it's been injected though...
        Aug 17, 2022
        sakrt likes this.
    25. dolphinskin
      dolphinskin
      "Sorry you have tinnitus, but you need to take more personal responsibility."
      1. NYCGuy and Damocles like this.
      2. Stacken77
        Stacken77
        A pretty condescending remark. What's the context? I'd be very upset.
        Aug 14, 2022
        Leila, sakrt, NYCGuy and 4 others like this.
      3. AfroSnowman
        AfroSnowman
        Shitty comment but our outward reaction to our pain is the only thing we are/can be responsible for. That being said I still fail at that more times than I’d like
        Aug 14, 2022
        Leila, sakrt, BrOKeN_1 and 1 other person like this.
      4. dolphinskin
        dolphinskin
        @Stacken77 context is asking online for ppl not to set off illegal fireworks in my neighborhood for the 4th. Told I was lying about developing temporary T after an asshole neighbor set one off while I was taking the dog out to pee hours before New Years. And if I did develop t it's my own fault. As if I'm not suicidal enough.
        Aug 17, 2022
    26. dolphinskin
      dolphinskin
      I see my heartbeat in my eye, left only, and that's the same side with the worse pt. I get pt in both ears tho, usually alternates.
    27. dolphinskin
      dolphinskin
      I 1-5 minute bouts of ringing t several times a week recently but the pulsatile t is 24/7. Also get whirring sound in rt ear only for years
    28. dolphinskin
      dolphinskin
      I've been getting the typical t ringing on top of the pulsatile t in the same ear. Guess that shows I don't have t but pt for sure
    29. dolphinskin
      dolphinskin
      Determined I more than likely have pulsatile tinnitus. It's month 3. Out over 1k and still no help and no dx. I want to die every day.
    30. dolphinskin
      dolphinskin
      Dear God I hope this spike isn't permanent. I keep thinking about killing myself. This isn't living.
      1. AnthonyMcDonald
        AnthonyMcDonald
        I had a time of about 7 months where I spiked permanently from nothing or from things like crinkling a bag or chewing food through double protection. It got better for me and I don't spike anymore from those things.
        Jul 11, 2022
      2. Charburchar
        Charburchar
        I get similar thoughts when I go through spikes. Give it time, I know it's tough
        Jul 11, 2022
        Damocles, Steph1710 and Cory_ like this.
      3. dolphinskin
        dolphinskin
        @AnthonyMcDonald I'm so glad that stuff doesn't spike you anymore! But man, the sheer amount of stuff that can do you in is insane!
        Jul 11, 2022
        Damocles and AnthonyMcDonald like this.
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  • About

    Gender:
    Female
    Tinnitus Since:
    04/2022
    Cause of Tinnitus:
    Noise-induced from a concert, maybe because of ETD too?