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I have both tinnitus and MEM. I’m supposed to be put on Doxycycline for 10 days for Lyme disease. Sounds like a bad idea, for someone who’s...
Do they help? Which ones are you taking? Sorry if you already told me, I haven’t slept in weeks so my brain isn’t exactly working as it should...
I would love to know the same and which meds people have found helpful!
Yes middle ear myoclonus, a type of tinnitus. <3
I have no idea, if i understood it correctly it has to be done by a neurologist and the ones I've spoken to so far haven't been very helpful. I...
Thank you for your reply! I’m in the same boat, I need something quick or I doubt my body will be able to handle the lack of sleep. =( But doctors...
Oh gosh how I feel for you and relate to you. I’m so sorry. People who get to sleep have no idea how lucky they are. It’s same for me, noise...
Here’s another suicidal one because of MEM. =( I can’t take it and I’m scared. Everyday I live in fear of my own body and my whole life is about...
Oh goodness I’m so sorry. I really wanna try something because I haven’t slept in a week but I certainly don’t want to make it worse. Did your...
I’m so sorry you have those type of spasms too! Are you diagnosed with MEM and has a doctor ever said anything about it being able to cause these...
Hi everyone, I realize this is a very old thread. How are you guys doing today? Any luck? I’ve read all of the posts and I am basically having...
Thank you for that, I will write those down and hopefully I will find some kind of help soon.
No, my regular ringing tinnitus I can mask to some degree, but not the MEM. Sound seems to set it off even more to be honest. It’s absolute HELL....
Yes I have and they said I’m already on the strongest ones (no idea if that’s true). Doctors are quite against medication in my country in...
Yes, I’m on Zolpidem (Ambien) but unfortunately the noise is so loud in my ears I still wake up. Thank you for caring!
No, it’s very random and irregular and wakes me up all night. I haven’t slept in about 2 weeks now. In the past 4 days not at all.
This is so extremely sad and there really needs to be more research done on this awful condition. I’m struggling with suicidal thoughts myself due...
A few months ago I developed MEM, though I’m not sure which muscle is the problem. But I have a pretty much constant flutter inside my ears that...
May I ask whag muscle relaxanrs they gave you Lchops? Did you try them by now and are they helping?
Hi Joe, thanks for your reply! I’m sorry to hear your tinnitus affected you so much, but glad you’ve found some things that seems to be working...
I also recently got MEM and am so hoping it will go away. It’s been crazy for about 2 weeks. I’m already on Diazepam so it’s hard to tell how much...
My name is Emma and I live in Sweden. I’m new here and thought I’d say hi. I’ve had ringing in my ears since 2016 which can be tough at times. But...
