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Hi @AnxiousJon, I take either Magnesium L-Threonate or Glycinate, and I do notice the intensity lessens. Fibre is an odd one, lol. I think my anxiety over the past 18 months has made things worse, as I became hyper-aware of my nervous system sounds. I first need to get that under control, so I...

Hi @AnxiousJon, I also now have 24/7 myoclonus, along with hyperacusis and sound reactivity. It is strange how the ears seem to sync with rhythms. I have tried everything: dry needling, intraoral osteopathy, and acupuncture. I think Clonazepam may have created an echoing new sound and a whistle...

Hi @RattleKat, My story is similar to yours. Although my regular tinnitus morphed into palate sounds and what I call rattlesnake noises on both sides of my face. I also have a tucking sensation in my head, especially when I’m stressed or concentrating on things. I used a similar product called...

Hi @SueX, Thanks for your reply. My MEM, ear spasms, rattlesnake sounds, vibrating head, and super-fast steam trains running through it are out of control. I have some hearing loss, but in my opinion, it is not bad enough for hearing aids. The hearing aids did seem to settle the hyperacusis...

Hi @DimLeb, I am not exactly sure what triggered my MEM spasms. They are now ridiculously fast and feel like sparks being blown out of my ears, with a whistling ear and Bell’s thrown in. The only way I can stop it is by putting on very slow rhythmic delta wave music or something similar...

I have similar symptoms. It is very stressful. At present, I am seeing an Octogonal Atlas chiropractor. They use a different type of X-ray that shows misalignment of the C1 vertebra. Mine was about 90 percent out, which the X-ray clearly showed. Other chiropractors often do not know what to...

How are you now, @Skybird? Has the massage helped? I’ve now realized that my severe symptoms are due to Clonazepam withdrawal. It’s hell.

Hi @SueX, Just wondering how your hearing is going. Have they managed to stop the pulsatile sound? I have similar issues. There is a right-sided neurovascular conflict seen at the trigeminal root entry zone, caused by the ipsilateral superior cerebellar artery. And, like you, there is...

I have this as well. Originally, I had tinnitus for eight years. Then clicking started in my head and ears. Now I have a constant pulsating sound, 24 hours a day, that syncs with my heartbeat. If I walk quickly, the sound speeds up. It resembles a metallic refrigerator hum. Strangely, it also...

How are you, Deb? I really feel for you. I have similar symptoms—now 24/7 middle ear myoclonus spasms that ring with a metallic sound, especially when I talk or eat. It also pulsates with my heartbeat, but sometimes it goes off like a machine gun. The beat can even follow my thoughts and...

I’m the same. I pray for all of us here.

I hope you’re doing okay. I hope you’re recovering. I’m 17 months into chronic, constant middle ear myoclonus and pulsating tinnitus, along with ear distortion, high-pitched screeching, and a Geiger counter–like ticking. Phenergan (Promethazine) is the only thing that helps me sleep. I’m...

Hello, How are your symptoms? Are you still free from them? I also have a mild deviation. I’m seeing a neurologist today. My pulsatile tinnitus and middle ear myoclonus have become chronic. The only medication that gives me relief is Phenergan, which I actually discovered by accident. I...

Thanks for sharing your experience. It’s definitely something worth pursuing, but with caution.

I have read both positive and negative reviews. It crosses the blood–brain barrier and carries anything it comes into contact with to the brain. While it may help with some conditions, many alternative health practitioners still seem undecided. The protocol appears rather vague, and I am not...

I purchased DMSO, but after doing some research, I decided not to use it.

Thank you, @MindOverMatter. I just read the latest correspondence from my neurologist to my GP. He wants me to trial another drug, cyclobenzaprine, and if there is no improvement, he will arrange a high-definition MRI with gadolinium. I’m actually starting to hope that this looped nerve is the...

Hi @Justwaitinchilin, I hope you are still doing well. I’m all cried out, now dealing with 24/7 tapping Morse code in my head. My neurologist is about to order a more extensive MRI. Apparently, I have a compressed nerve, inferior anterior, in conflict with a vein… something like that. I’m...

Thanks, @EDDTEKK. I have an appointment with my neurologist on Wednesday, January 8, 2025. I don’t think I’ve had an ABR test before. The ENT I saw conducted additional hearing tests and noted no eardrum movement during the spasms. I’m not sure who to contact to arrange an ABR test, but I’ll...

The device offers five levels of filtered classical music, which are said to “open up” and restore the inner ear muscles by exercising them with precise frequencies. The first level, called Gentle Massage, is the starting point. I followed the program and initially thought I was seeing positive...

I’m so happy for you! I also have a looped nerve, and my symptoms are getting worse. I experience massive spasms that can last for days, sometimes sounding like a distorted speaker and even radiating into my upper teeth. I tried taking Carbamazepine for three weeks, but it provided no relief...

Hi @Slaw, Unfortunately, the Carbamazepine didn't help. It made me tired, itchy, and a bit depressed. I'm still waiting for the Cyclobenzaprine shipment from Canada (I'm in Australia). In the meantime, I'm considering revisiting my sound therapy tool based on the Alfred Tomatis method. I have...

Hi Martap, Good to hear you’re coping better. I have good and bad days. Fortunately, I’m not in pain like those who have trigeminal neuralgia. I started on Tegretol (carbamazepine) on November 28. I’m currently taking 100 mg twice a day for the first week, then increasing to 200 mg twice a...

Yes, mine started as a hissing sound in one ear and stayed that way for a while. Now, it vibrates, clicks, and moves from my ears to above them, and sometimes I feel it in my teeth like an electric sensation. It often starts when I move my head or stand up, usually evening out but returning...

Thanks, @EDDTEKK. I have purchased the Carbamazepine but have not started taking it yet. I am waiting for the Cyclobenzaprine (muscle relaxant) to arrive from Canada. Today, both my ear and the area above my ears are spasming badly. Strangely, it stopped yesterday after a swim in the ocean. I...

I saw a neurologist yesterday. He thought my MRI was consistent with typewriter tinnitus. He basically asked me which drug I’d like to try: Carbamazepine or Cyclobenzaprine. Carbamazepine is specifically for typewriter tinnitus, but he explained that many people experience negative reactions to...

I am seeing an interventional neurologist on November 12, 2024. My symptoms are getting worse with loud, rapid clicking in my left ear and a rhythmic sound in my right ear that matches my heartbeat. I hope to get some answers because I am not coping well at all.

Yes, like Morse code—sometimes super fast. On good days, after waking up and moving around, it morphs into a fridge-like humming noise. Then, as the day goes on, the constant tapping usually starts again.

Hi, Cheryl here. I think I’ve developed what’s called Typewriter Tinnitus after having regular tinnitus in my left ear for six years. About seven months ago, I started experiencing rattlesnake-like sensations in my ears and upper jaw, mostly when I was out and talking in loud environments, but...

Sorry to hear it didn’t work out. My tinnitus changed to a Morse code pattern about six months ago. I’ve been taking Endep at night, and usually, as soon as I wake up, the “machine gun” noise starts, even after a peaceful night’s sleep. 😴 If I’m lucky, it eventually shifts to a humming sound in...

my name is Cheryl. After having regular T in left ear for about 8 years, I now seem to have Typwriter/Morse code nouces in both ears.

Hi My name is Cheryl.

Hi @martap! Your tinnitus sounds similar to mine. I often hear Morse code-like sounds, especially when I wake up, and sometimes they last all day. Occasionally, if I'm lucky, it morphs into a continuous loud hum, which is easier to deal with. An MRI revealed that I have the typical arterial...