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Persistent Middle Ear Rattling After Stapedius and Tensor Tympani Removal

AnxiousJon

Member
Author
Dec 19, 2015
326
Oregon
Tinnitus Since
09/2015
Cause of Tinnitus
Anxiety, Insomnia, and a Fan at Night
I had my stapedius and tensor tympani muscles removed, but something else is still pulling on my Eustachian tube, causing the middle ear bones to rattle. There is also significant muscle tension in the area, which alters sound intensity as the surrounding muscles shift to counter it. The rhythm of the rattling changes in response to external sounds. My eardrum also has a constant, low rumble.

If the tensor veli palatini is the cause, are there any surgeons who would consider removing it? I understand this would be a drastic procedure with serious consequences.
 
Do not remove the tensor veli palatini. Use Botox instead. It would have a similar effect, but it wouldn't be permanent. I'm not sure if removing the tensor veli palatini is even possible, but it would be a terrible idea. Swallowing would become difficult, your voice would sound awful, and your Eustachian tubes would stop opening properly.

How do you know your ear bones are rattling?
 
How do I know? Because I can hear them and feel the shaking of the tube in sync with the hissing and rattling, which changes when I hear various rhythmic sounds.
 
How do I know? Because I can hear them and feel the shaking of the tube in sync with the hissing and rattling, which changes when I hear various rhythmic sounds.
Hi @AnxiousJon, I also now have 24/7 myoclonus, along with hyperacusis and sound reactivity. It is strange how the ears seem to sync with rhythms. I have tried everything: dry needling, intraoral osteopathy, and acupuncture. I think Clonazepam may have created an echoing new sound and a whistle. At present I am on Carbamazepine. I got up to 600 mg but felt nauseous and sleepy, so I stopped. I had to go back on it to get some relief and am now trying to manage with 100 mg in the morning and at night, but I still often end up in tears.

Currently, I am undergoing C1 Atlas correction with an Atlas Orthogonal practitioner. There are no results yet, though the X-ray did show a significant misalignment. I will continue until the adjustment holds, which apparently can take several sessions.

I sometimes feel vibrations at the top of my upper molars, and I wonder if this is the Eustachian tube vibrating. I also experience a distorted speaker-like sound and a rattlesnake sensation.

Take care. I feel your pain and pray you find some relief. It is a horrible condition.

Chez
 
Hi @AnxiousJon, I also now have 24/7 myoclonus, along with hyperacusis and sound reactivity. It is strange how the ears seem to sync with rhythms. I have tried everything: dry needling, intraoral osteopathy, and acupuncture. I think Clonazepam may have created an echoing new sound and a whistle. At present I am on Carbamazepine. I got up to 600 mg but felt nauseous and sleepy, so I stopped. I had to go back on it to get some relief and am now trying to manage with 100 mg in the morning and at night, but I still often end up in tears.

Currently, I am undergoing C1 Atlas correction with an Atlas Orthogonal practitioner. There are no results yet, though the X-ray did show a significant misalignment. I will continue until the adjustment holds, which apparently can take several sessions.

I sometimes feel vibrations at the top of my upper molars, and I wonder if this is the Eustachian tube vibrating. I also experience a distorted speaker-like sound and a rattlesnake sensation.

Take care. I feel your pain and pray you find some relief. It is a horrible condition.

Chez
The only things that have helped are fiber and Magnesium Oxide. If I do not take them, the surrounding muscles do not assist in the way they otherwise do, and the tinnitus becomes very loud.

I know it sounds strange, but that is how it works with my condition.

I have an upcoming neurology appointment, and I plan to ask if they can place a surface electrode up my nose to measure my TVP muscle electrical activity while sounds are played. I came across a research paper where TVP measurements were taken transnasally.
 
The only things that have helped are fiber and Magnesium Oxide. If I do not take them, the surrounding muscles do not assist in the way they otherwise do, and the tinnitus becomes very loud.

I know it sounds strange, but that is how it works with my condition.

I have an upcoming neurology appointment, and I plan to ask if they can place a surface electrode up my nose to measure my TVP muscle electrical activity while sounds are played. I came across a research paper where TVP measurements were taken transnasally.Hi
Hi @AnxiousJon,

I take either Magnesium L-Threonate or Glycinate, and I do notice the intensity lessens. Fibre is an odd one, lol.

I think my anxiety over the past 18 months has made things worse, as I became hyper-aware of my nervous system sounds. I first need to get that under control, so I am also having EMDR treatment. I had it a few years back when I experienced brain fog after long COVID, and I snapped back to myself within a day. I don't fully understand how it works, but after yesterday's session, I felt something shift in my nervous state. The ear spasms settled somewhat into the general hiss with vibration in the roof of my mouth.

I still believe that my Atlas could be contributing to some of these sensations. The EMDR practitioner prescribed NAC 600 mg after dinner, Glutathione after breakfast, and Magnesium L-Theanine before bed.

More disturbing lately is the echoing ringing that speeds up with my emotions. It sounds like a helicopter about to take off, with whistles and splutters. The upper cervical chiropractor has seen this before in cases where the Atlas is subluxated. I had a water-skiing accident a few years ago and tore the hamstring off the bone. It looks like my body has been compensating ever since, as one side still gives me pain.

I'm just trying everything.

Chezten
 

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