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I just read the Tinnitus Hackathon report and thought it was great. When I read the names of attendees at the bottom, I saw Nicolas Gninenko's name, who is the CEO of Neurosoft. Was there any update regarding their clinical trial? Have they hit any roadblocks, or are they still on schedule to...

@Nick47, I believe this has one of the best chances of helping us find relief. Tinnitus is heavily influenced by plasticity, so I think repeated treatments might lead to permanent improvement. In this paper, 40 seconds gave them up to 2 hours of change, so why wouldn’t 30 minutes to 1 hour...

@Alberte, some people feel like this can help tinnitus or, at the very least, keep it from getting worse. The company's CEO also believes it can help with tinnitus. The FDA hasn't approved it, but they gave it the fastest track, so hopefully it will be on the market sooner rather than later.

I saw the video with Jeff Teräväinen. I thought it was amazing, and it's great to see Tinnitus Quest growing. We as a community have always had a hard time getting celebs to talk about tinnitus, but that seems to be changing. I'm sure Tinnitus Quest will only get bigger and bigger with time.

I just emailed the company to ask when they plan to start clinical trials and whether they will be open to people outside China. If anyone is interested, their email address is on their website if you want to ask.

Like the title says, Germany is planning to invest 500 million euros over the next 10 years for CFS. The first thing I want to say is that I am extremely happy for these people. CFS is a terrible condition, and I am glad they are getting the help they need. The second thing I want to say is that...

I’m not sure about this one, since they spelled tinnitus wrong, but it’s still great to see more and more research and attempts to cure this disease.

I just finished watching the whole video, and it was insightful. Dr. Tzounopoulos said that RL81 not only worked, but it seemed to have a lasting effect for weeks and months, which showed that tinnitus and hyperacusis can be corrected. This was in mice, unfortunately, but it was still great to...

This article gives a brief summary of the trial as well as the plan to do a clinical trial with 16 patients this time around.

I just saw an article saying they’re currently looking for funding to run a trial with 16 patients this time. I think that’s great news and a step in the right direction. @delta784, what would you like to know exactly? I feel like @lusiol summed it up pretty well.

Thank you @lusiol. I posted in another thread about an ultrasound helmet that can have the same effect as DBS. I think using something like that to pinpoint where to permanently stimulate in the future will make a big difference. At the moment, it feels like guessing, but at the same time, it...

Was anyone able to find the results online? I looked but couldn’t find anything.

I just read the article about Ben van der Valk and thought it was great. Thank you, Ben, for helping out tremendously. I agree that Tinnitus Quest will do great things.

Hello, I’m really sorry for what you’re going through. From what you’ve told us, it seems that your ears have been able to heal, which is amazing and a wonderful thing in itself. I’m truly happy for you about that. As for the head tinnitus, there is always a chance it will improve or that you...

@Josh59, Ovid Therapeutics started Phase 1 of OV350 IV this year and is expected to release information before the end of this year or early next year.

@Nick47, that’s what’s great about this technology—there are so many different possible outcomes. If we were able to safely identify where to stimulate for each person, it would make actual DBS surgery much more effective. We could know exactly where to place the stimulation because we’d already...

Congratulations on reaching 10k followers on Instagram. You’re doing great!

I’m sorry for what you’re going through. I wish I had some clear advice to give you, but I don’t. The main thing I can suggest is to limit the sounds you hear as much as possible. It seems like you’re already doing that, so the rest might just take time to see if you improve. It can take a...

Dr. Stephen Cheung from the United States has already conducted a small trial of deep brain stimulation and reported some positive results for tinnitus. There are also case reports of people who received DBS for other reasons and experienced a reduction in their tinnitus. I believe there are two...

Ultrasound ‘helmet’ could treat Parkinson’s non-invasively, study shows A new ultrasound device can now penetrate deep into the brain, something that was previously impossible. This device can target regions of the brain that, until now, could only be reached with deep brain stimulation. That...

I appreciate the response, and I want to thank you and Tinnitus Quest for all that you do for us.

I’m sorry if this has already been answered, but are you going to reach out to researchers to offer grants, or is Tinnitus Quest waiting to see who applies?

This was a new interview with the CEO of the company. He seems like a nice guy who genuinely wants to help. He said that results for Phase 2 should be available by next year and that they are already in clinical trials for cochlear implantation. He also mentioned that if they had the funds, he...

Hey Markku, thank you for all that you do for us. It’s greatly appreciated. How have you been? You don’t talk about yourself often. Could you let us know how your tinnitus has been lately? Again, thank you for everything you do.

Is there any way we can reach out to the researchers to find out what their next step is going to be? Are they still in the animal testing phase, and how long might it be before they can begin clinical trials? Maybe Tinnitus Quest could help fund their research further.

Hello @Annina, I’m sorry you are going through all of this. The fact that it has only been two months is actually a good sign. It means there is still a chance for things to improve or for you to get used to it. The best advice I can give is to protect yourself from any sounds that hurt or...

There is a clinical trial by Cochlear for tinnitus that involves ear stimulation. The trial lists having tinnitus in one ear as a requirement, but if you have it in both ears, the worse ear is the one that gets implanted. There is also Dr. Carlson, who is working on an implant for one-sided...

I agree with everything @GregCA had to say. The only thing I can add is the possibility of trying oxygen therapy as well. Some people have reported success, and there is some research to support that. There is also a current clinical trial for one-sided tinnitus using a device that is showing...

Is there any follow-up to this trial? It seems to be one of the most promising treatments available. Are they planning to conduct more animal studies, and what is next in terms of human trials? Having Dan Polley speak about this on a Tinnitus Talk Podcast episode would be great.

This is the kind of research that will eventually lead to a cure.

Eli Lilly strengthens RNA pipeline with $1.3B biobucks hearing loss pact The article mentions that Lilly, one of the largest pharmaceutical companies in the world, has partnered with South Korea’s Rznomics to expand their research on hearing loss. I think this is great news, as funding for...

Tinnitus Drug Pipeline Market: Transforming Treatment Landscape for Millions Worldwide The article discusses the tinnitus drug market and its projected value in the coming years. In 2023, the global market was valued at approximately 2.1 billion dollars. The article does a good job highlighting...

In the Meniere’s Reddit forum, they said that Ebselen has been extended to an open-label phase, which will further test how effective it is. It might take more time than originally expected.

William R., you are a legend. Thank you.

This was a great paper on the role of neuroinflammation in tinnitus. The authors highlighted current medications that can address this, as well as future goals for clinical trials. I hope they continue with this research.

I called the Mayo Clinic, where Dr. Carlson works. I asked about the tinnitus implant trial and whether I could join or learn more about it. The clerk said that the research department informed them the trial had been completed and that they may or may not conduct another one in the future. The...

This looks great, but I have a few questions if anyone knows the answers. My first question is: how is this different from the treatment that was offered in Korea, which some members here tried? The article mentions that the group that didn’t receive the treatment also improved by, I think...

@Fields, hey, if you feel like it is not too bad and you are managing to get through each day, then I would not suggest doing the clinical trial. If you have any questions about the procedure, you can email them. I am sure they will get back to you. They answered me within a day.

I reached out to the researchers about participating in the trials, but you have to live in Belgium or the Netherlands to be eligible, which ruled me out. If any members are from those countries, they mentioned that they are still recruiting, in case you are interested in joining.

Thanks for the reply, @Nick47. I really appreciate it, and I will donate to the campaign. Tinnitus Quest is our best chance at a real treatment.

I tried participating in this clinical trial around March of 2024. When I met the team, they wanted me to do tinnitus masking as part of the trial, but I couldn’t go through with it. The nurse who was there told me the trial would take three years to complete, plus another six months to gather...

I recently emailed Dr. Steven Cheung about the possibility of using deep brain stimulation off label for patients who are willing to try it. He replied that he is currently trying to secure funding for a Phase 2 trial, which, if everything goes as planned, is expected to begin in the fall of...

Ella’s journey with rare condition hyperacusis This is a news article about a 9-year-old girl with hyperacusis and tinnitus who is trying to raise awareness about the condition. In the article, she mentions that her ears sometimes actually bleed. My heart goes out to her and her family...

This is a video featuring the lead researcher of the study. He comes across as a very good person and seems optimistic about the future of this research. In the video, he mentions that one of the next steps is to test whether any existing drugs can address the issue with the efferent nerves...

This is great to see. Hopefully, we can do more of these.

Thank you all for making this possible. This is exactly what our community needed. @Markku and @Hazel, thank you for everything you do.