Crossing My Fingers

I got T about 2 months ago. I thought my life was over, and I would end up in a mental hospital somewhere. We decided to take it one day at a time, and not think too far into the future.

So we prayed and prayed and finally got some answers.

Was able to get some sleeping meds to help me get to a normal schedule - that was huge.

Then flew to the US (Canada takes forever to see a doc) to see an ENT. Was able to figure out I have conductive hearing loss. Saw another doctor, and got some antidepressants (man was I having crazy irrational thoughts!). After 10 days, those thoughts went away - another huge advancement.

Back in Canada, went to the doctor and convinced him this was quite serious, so he put me on some anti-anxiety medication - another huge shift. Now waiting on getting a CT scan to see if I have otosclerosis.

The meds are keeping me semi functional until they see if surgery can help me. They tell me some of my meds have a short life - meaning they will not work in the long term and can have bad side effects when going off of them. I just hope that I have enough meds to either get me to surgery or 6 months when my brain filters it out (prob about the same time).

For those that are still suffering (like me), i know how you feel. Just take it one day at a time and don't try to think about all the IFs, WHATifs, etc. Stay positive.

Overall, I am mostly functional, and cautiously optimistic . . .for now. The past month has been a month of miracles for us!

 

Hi there. I also have had T for about two months. Really struggling also but mainly with sleep; only getting 3-4 hours a night ; I can barely function I am that tired. Can I please ask what sleep meds have helped you? Thank you

 

Susan,

Sorry to hear you're having difficulties. I was so tired and didn't even know it. I took about 3 Magnesium capsules with some Melatonin the first time (I knew about the problem), and slept for 12 hours - like a rock.

A couple nights after, i could not sleep, so I ended up going to the doctor and got some Zopiclone, which tied me over for 2 weeks.It started 'wearing off' - only giving me 3-4 hours a sleep, after which I took some Magnesium and Melatonin to get 3 more hours of sleep.

After that I got a prescription for Ambien, which had about the same effect as the previous.

The next doctor gave me a more heavy dose of Halcion, which knocks 'me' out for 6 hours, however, once I got medicated for my anxiety (ativan), it was MUCH easier to sleep. W/O it I used to wake up from naps, with twice as much anxiety (so napping was very scary for me).

I used to only get 3-4 hours a night as well, and it was HARD.

I would definitely go see your local doctor and get a prescription ASAP. (Don't bother with over the counter stuff, like diphenhydramine - it's a waste in my opinion). I had to pay out of pocket at first, but it was way worth it. Your life will change drastically after this first step.

 

Hi SussanGee, are you afraid to go to sleep?, or do you go to bed with anxiety about your T. If your answers are yes, i can tell you that, if you start to relax before going bed (or better, the whole day), you will have better and better sleep.

I had a setback at January, couple of weeks (because there is alot of loud noise around christmas, so i got a spike) i got anxious. Those nights were aweful, i wake up in the middle of the night with the T screaming sooo loud. Now, my sound level has not improved that much, but i sleep like a baby 8 hours. When i go to bed, i dont care about the sound, in spite that it as is loudest level because the night is quiter. Just DONT sleep in complete silence. I have understand that silence makes the brain to increase the perception of the sound.

Have a nice day!,

 

H
I've had t about the same time as you although I've only started posting and when I read your post I felt so sorry for you but understood exactly how you feel you really think you cannot survive I know I did but somehow u do be strong