Early Meniere's Disease

Discussion in 'Support' started by Nic1982, Jul 26, 2015.

tinnitus forum
    1. Nic1982

      Nic1982 Member

      Tinnitus Since:
      28/5/15
      Would anyone be willing to post their experience at the start of menieres please?

      My T started 8 weeks ago with ear pressure, subsided after a week & the had on/off dizziness for 5 days. Still had ear pressure but T & dizziness had eased until 2-3 weeks ago. T come back & now I'm feeling dizzy again :-(

      In particular did you notice your hearing loss? My hearing test was normal but if was after symptoms had subsided, but I've never noticed a drop in hearing?
       
      • Agree Agree x 1
    2. Mad maggot
      Breezy

      Mad maggot Member

      Location:
      New zealand
      Tinnitus Since:
      12/2008
      Cause of Tinnitus:
      Unknown
      It was suggested to me in the beginning by my GP and an ENT that my symptoms were possibly menierres. I researched and found that like many other diagnosis it's just a name for a bunch of symptoms and doesn't mean much. It's just a problem doctors come across and have no idea what it is but people have this bunch of symptoms so they tell you, you have mennieres and there's nothing to be done.
      Now if you believe mennieres exists please don't get your knickers in a knot with me. I've had other qualified doctors tell me just what I've told you. So even doctors do not agree on meniers and whether it is a diagnosis of a specific cause or a name for a bunch of symptoms that can be caused by many different things. If people choose to accept the mennieres diagnosis that is totally up to them and their own research.
      I'm just telling you not to accept this immediately. Research and make up your own mind and then decide what you think is best.
       
      • Like Like x 1
    3. PaulBe

      PaulBe Member Benefactor

      Location:
      Cairns
      Tinnitus Since:
      11/2013
      Cause of Tinnitus:
      Probably sound, though never proven
      Funnily, naming a cluster of symptoms as a specific disease seems to often hinder its proper study. I did see a paper implicating Middle Ear Myoclonus in Menierre's particular cluster of symptoms. The same paper also described visible inflammatory changes of the inner ear tissue when the tympanic membrane was pulled back and the fibreoptic was passed through. Sounds like a still misunderstood disease process in search of interested study rather than a convenient "I don't have to do anything and still get paid" diagnosis.
       
      • Like Like x 1
    4. Quentino
      Tired

      Quentino Member

      Location:
      France
      Tinnitus Since:
      05/2014
      Cause of Tinnitus:
      Decrease of Hearing i presume.
      What do you mean?
       
    5. linearb
      Psychedelic

      linearb Member Hall of Fame

      Location:
      East Coast USA
      Tinnitus Since:
      1998
      I believe the suggestion that it is not the fault of specific medical practicioners that some complex and ill-defined conditions still lack a complete understanding and the sort of bulletproof, full diagnostic criteria which come from a complete understanding.

      Put differently, if you had gone to an anatomical expert with these symptoms in the middle ages, they might have prescribed leeches to drain the demons living in your ear. We're in a much more sophisticated world now with SPECT scans and functional MRIs, but still have much the same problem.
       
      • Like Like x 1
    6. PaulBe

      PaulBe Member Benefactor

      Location:
      Cairns
      Tinnitus Since:
      11/2013
      Cause of Tinnitus:
      Probably sound, though never proven
      Linearb said it better than I could.
       
    7. Teri
      Artistic

      Teri Member Benefactor

      Tinnitus Since:
      4/2014
      My experience:

      onset: fluid in ear...ear pressure...left ear only
      fluctuating hearing loss (most profound in left ear)...mild loss in right ear that additionally fluctuates
      loud T
      dizziness
      headaches (not new symptom but continued)

      diagnosis: endolymphatic hydrops/meneires (used interchangeably)

      a year later.....

      mild ear pressure
      mild/lower T (in both ears now...but MUCH more noticeable in left) head noise--T still reacts to noise
      milder dizziness
      continued headaches


      Never was given an MRI but a CAT scan (not sure why)
      Taking a diuretic daily
      lowered salt intake
      no alcohol
      less caffine
       
    8. PaulBe

      PaulBe Member Benefactor

      Location:
      Cairns
      Tinnitus Since:
      11/2013
      Cause of Tinnitus:
      Probably sound, though never proven
      Does any of that make any difference?
       
    9. Teri
      Artistic

      Teri Member Benefactor

      Tinnitus Since:
      4/2014
      @PaulBe
      I have not had any severe symptoms for over a year....so....perhaps.
       
    10. Nucleo

      Nucleo Member Benefactor

      Tinnitus Since:
      02/2011
      Eh. I came across an article that mentioned drinking lots of water might be the best treatment for Menieres.

      http://www.ncbi.nlm.nih.gov/pubmed/16885753

      It was from 2006 and it doesn't seem there was any follow up study.
       
    11. SueR
      Disappointed

      SueR Member Benefactor

      Location:
      Boston, MA
      Tinnitus Since:
      07/2012
      Cause of Tinnitus:
      ear infection
      Drinking a lot of water would counter the sodium, I'd think. So same as lowering sodium intake ?
       
    12. Nucleo

      Nucleo Member Benefactor

      Tinnitus Since:
      02/2011
      That's the idea behind prescribing diuretics.
       
      • Agree Agree x 1

Share This Page

Loading...
If you have ringing ears then you've come to the right place. We are a friendly tinnitus support board, dedicated to helping you discuss and understand what tinnitus treatments may work for you.