Episode 2: A World Without Tinnitus — David Stockdale (British Tinnitus Association)

I listened to the whole thing the day it was posted. I understand that they donate to research. But I am asking more specifically, like what research did they donate to that is actually working on a cure?

 

Thank you for all of the feedback!

Thanks to @Hazel for answering the questions as they've arisen, doing a better job then I would - thank you.

This is a personal opinion rather than a claim I'd say - aware other have different opinions. We're building links with a few of these companies and gaining a better understanding of how we can work together and their future direction.

Started this here; https://www.tinnitus.org.uk/tinnitus-treatments

Not such a big issue in the UK as it is in the US (having visited a Walgreens whilst in Baltimore!). There isn't a quick answer to this but what meets the requirement to be 'clinically proven' is a low threshold to cross in my opinon. As @Hazel also states there's a lot of different ways to get something to market with different regulatory barriers.

Still assessing how best to support and drive 'curative' research and look at how we can support it in different ways too (not just money), building and facilitating partnerships, lobbying and supporting those in the area - offering input from different perspectives. Supplying some of the tools needed to make the case to larger funders. @Hazel put it well.

 

Just an FYI. Attached is a page from an ATA brochure I picked up at a support group meeting last week. At the bottom it talks about "Experimental Therapies - Hope for the Future". I believe this information can also be found on their website. Seems like the therapies mentioned have been used in clinical trials and no one talks about them very much, so they seem a bit out of date. Not sure what harm it would cause to include that hearing regeneration is in early research phases and whether it will alleviate tinnitus is still an unanswered question. Whether or not ATA or BTA would assert themselves into a discussion with Frequency Therapeutics or other researchers about answering the question sooner rather than later is a separate issue altogether. -TC

 

Hi British Tinnitus Association, we loved the podcast. But I emailed you guys a long time ago regarding not having had tinnitus since my late teens. However, then I got a Tetanus booster and 3 days later my tinnitus returned, but again eventually faded away.

Now 2 years later I got a Shingles vaccine & the tinnitus is worse again because of the toxins in vaccines!

You need to warn people.

Sincerely, Barrett

 

I just wanted to say (having seen Markku's post above) that if anyone out there is thinking of volunteering in any way to assist Tinnitus Talk but isn't sure if they have anything useful to offer, just go for it!

I'm so pleased I have been involved with the Podcast transcriptions as I feel as though I am doing something useful. It's nice to have something to offer and, just reiterating what was stated during the Podcast by David, Hazel and Markku I find it actually helps me to be involved in a positive way. This forum has been a fantastic support for me for the last six years as I'm sure it has for many other people. So, just felt like I wanted to pass that on.

I'm actually building up to maybe even adding an Avatar of some sort ... must be about time!

 

Excellent podcast! Thank you so much!

 

Excellent podcast, thanks! Some great info (especially in Episode 1.)

You should explain the acronyms when using them. What's TRT? Surely not Testosterone Replacement is it?

...and the BTA advice is - see your GP! Oh dear, we all know how that turns out. <sad face>

Although I will definitely look into helping their funding after what I heard from David.

Thanks.

 

TRT = Tinnitus Retraining Therapy

Well we have to say that @Paul Ramsay it is important that everyone with tinnitus gets it checked out. We speak to a lot of people who haven't yet done so. We're trying to change the attitude of GP's to tinnitus but that is a long journey.

Thanks