Headaches

I realize some of you have/had headaches with H. Would you mind describing them to me?

My symptoms got worse after my Audiology appt. Not sure if that's why, but the next day I began having headaches with sounds too, but constant as well..It's daily since March 7th. Of course my tolerance feels lower now as well..maybe due to headache?

This H stuff is really ruining my life.

 

I would describe mine as a weird sensation of vacuum inside my head. Like my head is about to implode..

Have you gotten any better?

 

Yea.my headaches didn't last. I believe they were tension. The drug flexeril helped.

 

I have headaches everyday, I wake up with one. It does not seem to me related to sound at all. They come and go all day until I fall asleep at night. Does anyone else have this problem ?

 

My T and H are horrible as soon as i hear something that my ears consider loud like a cough or a slammed door even a light switch..my T goes haywire and i get a bad headache with crazy tones..like my head starts feeling really heavy

 

I got a headache back in December ... and it never went away. It changes in intensity - it's been as low as a 3 out of 10 and as bad as a 8/10, but it's been there ever since. At about the same time, my tinnitus took a horrific turn for the worse and spiked with more volume, more sounds and lots of movement in my head. It's much more reactive to sound now too.

The neurologist is calling the headaches New Daily Persistent Headache. Here's some info. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3444222/

There's more than one type of chronic headache, though, like migraines, tension headaches and so on. If you have chronic headaches, see you doctor and ask for a referral to a good specialist.

Good luck.

 

@Street Spirit

It's been a tough day, I was ok last night, I even slept well I didn't even need to use my maskers, but when I woke up this morning, I was a mess, my tinnitus was through the roof, I have no idea why ? I wasn't near any sounds so I have no idea what in the world set it off. It's 8:30 and my eras are still ringing off of the wall. This hyperacusis, What a crazy thing to have to deal with. I really hope that my tinnitus lets up before bed time I doubt that I will be able to sleep like this even with all of my maskers going and my strong sleeping medications.

Anyway, How are you ? I haven'tv hear from you today, I hope that your doing better then me today.


Let me know ?


Louie

 

It is crazy..life changing crazy..hopefully for you, temporary!! Have you tried flexeril yet? My best suggestion...otherwise amitriptyline..I think sttessful days leads to night time.clenching/ grinding and worsened T..sometimes it just is worse. I can't say for sure why, just a guess..otherwise delayed reaction. .who knows huh?!

Bad day for me.
tired..need sleep.

Hope you're sleeping.

Lynn

 

@Street Spirit

yeah it is a crazy no doubt about that, some times I feel like I'm in two different words, I have decided that tommroow I'm going to get out of my house, I haven't been out for a few days. I just sat down and had a glass of whine that always chills me out. I'm sorry that your day is not going well. I truly understand how you feel.

Oh. I Liked your hat in the picture of you on my FB,,,very sassy It really loos good on you.


Well, let's hope that we both get a good night sleep in tonight and that tomroow is a better day for both of us. Thats what we need.


Take care and Thank You for writing back


Louie

 

Wow, reading this post makes me realize that my tinnitus is not anywhere near as bad as some - I feel for you guys. I have a constant hissing and the odd popping noise now and again, but nothing as chronic as permanent headaches!

I do get infrequent migraines, but don't think that they are related to my aural issues.

 

Shit that sounds just like the sensation I get in my head when I get disturbed by noise or when I get stressed out at all lately since I have a very low stress tolerance after years of hypeacusis and when it gets really bad I also get painful headaches following it that can last for hours, days or months even.

 

Thanks for pointing that out lol

Yea dude it sucks!!!

 

Yea I jump at everything now..Ive been blasted 3 times in one week by air horns.

Seriously, I basically want to escape society...though even some birds are bloody ear peircing loud!

 

Me and you together babe.
I will shoot the birds down with my zombie crossbow, and bring fish for you from the lake.

 

Seriously it's too bad that we live so far from one another because the reason I started to search for other people with hyperacusis is because I seriously need to get away from society, and I was thinking what if a group of H sufferers gater together and create a small "village" deep in a forest somewhere with a muteral understanding of what is acceptable to do and what is not so that it will be a quiet sanctuary away from all noisy people out in the real world.

 

Ok Daryl.

OMG I was wondering how I could kill the birds but thought " shit, a gun is too loud" haha Brilliant Dan! and as if I didn't think of that...Need TWD back on.

 

Sounds good! A quiet and peaceful commune!

Anyone own some land? That would be the starting point.

 

A village deep in a forest..hmmm...I'm suddenly getting an Ewok vibe...our little homes in trees...awesome!

 

Uninhabitant islands are free, Lord of The Flies.

 

OK..But no elected leaders! (except me ) I wouldn't become jealous or behave like a savage..I may search for some mushrooms though and occasionally wander through the forest deeply reflecting life/ the island and what it all truly means like Simon...poor guy.

 

Why not just let yourself go totally "primative"? Just think, you wouldn't have to shave your legs anymore...

 

haha Jim..I'd say I'm wild, but I don't know about that hehe

 

Yes I think that's the only way to live a stress free life for someone as sensitive as me. I don't own any land unfortunately but I really think it would be doable if you just find the right people. Either "we" could rent some land that already has some old hunting lodges or try to buy it together.

 

Unfortunately I don't think that any islands are free and there has to be fresh water there and preferably electricity so we can store food and such (well I guess you can store food like they did in the old days but that would be a pretty big discomfort and probably dangerous if you don't know how to do it properly.)

 

Yeah there are free ones, didnt you watch Castaway? Guy survived for 5 years on his own.

 

I suffer with migraines which I feel affect my tinnitus or perhaps are the cause. I've wondered if my migraines have caused permanent nerve damage which does happen. Anyway I thought I'd mention what used to work for me was a drug called mersyndol. I'm in New Zealand so it could be called other things elsewhere. It would knock me out for a while and I'd sleep for a couple hours. Sometimes if you can break the headache pattern you've got into the headaches will go. At least for a few weeks anyway until the next one. If you still get headaches and need pain relief maybe mersyndol might work for you.

 

Ok so you do have migraine. The woman who has only one bad ear affected also has migraines and hers got better as well with a drug. PM me if you want to know which one

 

and thank you for sharing

Neuro wants me on nortriptyline and topamax..