How Do You Cope?

Discussion in 'Support' started by Leah, Sep 10, 2013.

tinnitus forum
    1. Leah

      Leah Member Benefactor

      Location:
      Chardon, Ohio USA
      Tinnitus Since:
      2007
      Went to ER last night. Had pain in my head was not sure what was going on. gee would a brain tumor be easier to cure?
      Did a scan, was ok. Did find I have a urinary infection.hmm
      Woke up and now I also have problems with my both ears making sounds and the fullness.
      Never had attack this long, this bad. At my wits end. hubby just doesn't get it, says get a grip. He says everyone hears noises, not like this they don't..
      I need some relief:(
       
      • Hug Hug x 1
      • Optimistic Optimistic x 1
    2. Lord of the Ring
      Cheeky

      Lord of the Ring Member

      Location:
      Belgium
      Tinnitus Since:
      03/2013
      What you need is TRT
       
      • Like Like x 1
    3. Danny
      Fine

      Danny Member Benefactor

      Location:
      Near Toronto Canada
      Tinnitus Since:
      2012
      What you need is an understanding husband.
       
      • Like Like x 3
    4. daedalus

      daedalus Member

      Location:
      Brussels
      Tinnitus Since:
      04/2007
      And maybe understanding real life friends. We sympathise of course. Especially since we have had the same problem with people misunderstanding us but we cannot replace real life friends.
       
    5. Lord of the Ring
      Cheeky

      Lord of the Ring Member

      Location:
      Belgium
      Tinnitus Since:
      03/2013
      That too. Very much.
       
    6. Leah

      Leah Member Benefactor

      Location:
      Chardon, Ohio USA
      Tinnitus Since:
      2007
      Thanks you are so right!
       
    7. Sherri786
      Dreaming

      Sherri786 Member Benefactor

      Location:
      Canada
      Tinnitus Since:
      03/2013
      Sorry to hear that Leah, hope you feel better soon. Well I and few other sufferers here have learnt to cope somewhat with Magnesium supplements and camomile tea ( night blend) to sleep with, besides trying to figure out which food makes our T spikes, mine spikes with salt, white sugar, apples, corn on the cob, am trying to go gluten abd wheat free too just to see if that will help, long walks help me too. And yes I agree husbands mostly understand what we are going through nor do real life friends ! im alive today thanks to this forum and some very very nice and helpful people on this forum, specially karen. Hope one day we all will find some peace and quiet :(
       
    8. Sherri786
      Dreaming

      Sherri786 Member Benefactor

      Location:
      Canada
      Tinnitus Since:
      03/2013
      * I mean husbands do not understand nor real life friends !
       
    9. Shuffle
      Gloomy

      Shuffle Member Benefactor

      Location:
      UK
      Tinnitus Since:
      12/2012
      Cause of Tinnitus:
      Heavy Metal & Machinery
      I have one friend who also has it, but he says he has always had it for as long as he can remember, and it's never bothered him as he's never heard anything else. He can't see why it irritates me so much. Mag suppliments initially helped mine but it's since spiked again. I had a spike a couple of months back after a wedding disco, which went down. Then it spiked again due to a sinus infection and I can't shift it this time :(. Been a month now. I just can't get it out of my head.
       
    10. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Shuffle, I think it's all the about the intensity of the tinnitus each of us is suffering. The people who are not bothered by it probably don't have spikes like we do, nor the intensity we've experienced. It's pretty hard to get it out of your head when it is at a high level!

      I've actually had tinnitus for over 25 years, but before 2010, mine was not bothersome, and I could sleep and function normally. Ever since I took an ototoxic drug, however, it's been much worse. Mine has calmed down since 2010, but it's still at a much higher level than before. Oh, how I wish I could return to the good old days of moderate tinnitus!
       
      • Like Like x 4
    11. jazz
      No Mood

      jazz Member Benefactor

      Location:
      US
      Tinnitus Since:
      8/2012
      Cause of Tinnitus:
      eardrum rupture from virus; barotrauma from ETD
      @Karen is right, it's all about the intensity. I'm amazed when I read how loudness doesn't matter; it's all your reaction to the loudness. Well, I strongly disagree and so does nearly everyone on this board. Loudness determines if your tinnitus is in the background or front and center. When people first get tinnitus, of course, loudness may be less important. That's because a new, unwanted sound in your head is quite upsetting to people--regardless of its loudness. But, once you've had tinnitus for a while and understand it, then it's a question of adjusting to the noise. If your noise is low, your adjustment will be much easier than if it's loud. I've yet to habituate, but when I'm quiet I feel totally normal. When I'm spiking, I'm able to function, but my mood and performance are compromised.

      That said, your tinnitus may still quiet down. Some people have setbacks that last for a few months before things return to normal. It is important to get enough sleep and, if you're depressed or anxious, you should seek medical treatment. Both antidepressants and anxiolytics (anti-anxiety medicines like Klonpin) do help many people. Just read the posts from people on TT! You need to find something that will give you relief. And, in time, your noise should go back to baseline.

      And please always carry ear plugs, like the ones by Etymonic, with you in case you get in a loud situation. Weddings, movies, sirens--all these can damage your hearing. Everyone with tinnitus becomes vulnerable to additonal noise damage.

      Here's a link the Etymonic ear plugs. They are great and don't distort as much as the foam plugs. Please note they come in two sizes. The blue is for smaller ears and the white is for larger ones:

      http://www.amazon.com/dp/B0015WNZ9K/?tag=tinntalk-20
       
      • Like Like x 2
    12. Shuffle
      Gloomy

      Shuffle Member Benefactor

      Location:
      UK
      Tinnitus Since:
      12/2012
      Cause of Tinnitus:
      Heavy Metal & Machinery
      @jazz Thanks for the positive thoughts, I need them at the minute! I'm still hopeful this will go down back to where it was. Doc says I have no wax now, and ENT Can't find anything. I'm on my own now, like all of us. I used to have this at a level where I could cope with it happily, but it's loud at the moment. (Originally got T after a rock concert, had syringing due to wax, T went completely apart from a very feint ring in the opposite ear to the noise induced T, went on like that for 7 months, then see the 2 spikes I posted about above!)

      I love those plugs, I have a set on my car keys. Trouble was at the wedding I was getting a Taxi! D'oh. :(
       
      • Like Like x 1
    13. Eric
      Balanced

      Eric Member

      Location:
      Montreal
      Tinnitus Since:
      03/2012
      If you want your husband to understand,go to the ATA website and find a T recording similar to yours (mine is screeching) Download it to your ipod or Ipad. Adjust it to a level similar to what you perceive. For my case it is usually between 3/4 to full blast Ipad level of the screetching sound. Have them spend a couple of hours with your sound. It might make a difference. I have had that screeching sound continuously for the last year and a half. None of my loved ones lasted more than one minute, and I barely ever complained. But now, when I ask them to tone down to relieve my ears, they are more understanding.

      http://www.ata.org/sounds-of-tinnitus
       
    14. James
      No Mood

      James Member Benefactor

      Location:
      California
      Tinnitus Since:
      Pulsing 03/2013
      All of the above nailed that one, the husband thing, ooohhh that's no good.

      My latest coping one-day thing is a good nights sleep and stress management.
      ( not that I'm any good at either of those two).
       
    15. Leah

      Leah Member Benefactor

      Location:
      Chardon, Ohio USA
      Tinnitus Since:
      2007
      Karen, thanks for the link for earplugs, look forward to using them instead of the foam.
      Eric many thanks to you also, will educate my family and friends, maybe even a doc or two.
       
    16. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      @James,

      How is your pulsating? Is yours still about the same? Mine is maybe just a little bit softer these days. How are you doing?
       
    17. Leah

      Leah Member Benefactor

      Location:
      Chardon, Ohio USA
      Tinnitus Since:
      2007
      oh no, re-reading Karen's post about ototoxic drugs.. looked them up and am taking a couple now:(
       
    18. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, @Leah,

      Which drugs are you taking right now? If they are necessary, it's probably best to see your doctor before you would discontinue any medicines that you need. Maybe the doctor can suggest a substitute medication for you, that is not ototoxic (?)
       
    19. Leah

      Leah Member Benefactor

      Location:
      Chardon, Ohio USA
      Tinnitus Since:
      2007
      Yes, I need to that, thanks for your posting about the drugs I did not know.
      I feel like I have to educate these docs I am seeing. Making arrangements for acupuncture and
      finding a T management clinic in my area. I need to find the people who know about this.
      I have said this many times, so glad I found this forum.
       
    20. nanner
      Barefooter

      nanner Member

      Tinnitus Since:
      forever
      Sorry Leah! When your hubby is old and gray and crapping his pants and needs your help...tell him to get a grip.
       
      • Funny Funny x 1
    21. Philip Cardone

      Philip Cardone Member

      Tinnitus Since:
      1990
      Hey Leah tell your hubby to get a grip for not caring about a problem that can drive you nuts and keep you awake at night
       
    22. Georgia
      Thinking

      Georgia Member

      Tinnitus Since:
      11/2008
      Cause of Tinnitus:
      Unknown
      Hi leah,

      Firstly get your husband on a website like this because he clearly doesn't understand what T is. And T sufferers go through the hell of a lot! He needs to understand so then he can support you and not tell you to get a grip! If someone told me to get a grip. Well..... I'd tell them to... Never mind!

      I find that natural sounds eg running water, and rain pitter patter. Are very soothing and effective.

      Try herbal teas i don't know why but I feel so at peace. Hearing aids are good at masking tinnitus.
      I've heard about acupressure but go see your doctor who takes care of all your hearing first just to be safe.
      I've been to a lesson of meditation and I barley notcied my T.

      So don't worry there are a lot of things that make life easier with T.

      :)
       
    23. linearb
      Psychedelic

      linearb Member Hall of Fame

      Location:
      East Coast USA
      Tinnitus Since:
      1998
      We're all different, for sure -- but for me, loudness generally follows distress, and not the other way around. Meaning that when I am bothered by tinnitus enough to become anxious about it, my limbic system activates, I get thrown into fight-or-flight mode, and that literally makes the sound relatively louder (because that's exactly what fight-or-flight is supposed to do: crank up the gain on your senses to make them more acute and keep you alive in times of danger).

      The first year or so that I had the T I have now, I would never have believed what I just wrote... I would have said, "NO! It's SO LOUD! That's what causes the distress!" But, I've watched the "loudness" come and go enough times in direct relation to my relative stress levels, that I have come to view my T as a very accurate -- if annoying -- measure of how stressed out I am.

      When I was really locked into fight-or-flight mode for months straight, it was just a constant blur of hellish days that seemed to crawl by slowly with a loud scream in my ears, and it went on long enough that I simply did not believe that the anxiety had anything to do with the perception of the noise, but it absolutely does. When I'm happy and relaxed I can go hours without thinking about my T, even in relatively quiet environments. (I actually have recently switched to sleeping without a fan, despite having needed one for sleep for decades prior to the onset of my T a decade ago.)

      There are several large-sample-size studies which assessed loudness and distress in a large number of people, and found no correlation between loudness and distress, so that's where that idea comes from. However, it's not like those studies were repeated dozens of times over decades, so it's hard to say how much of a tautology this is.
       

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