Lenire — Bimodal Stimulation Treatment by Neuromod

I hope you a speedy recovery. But please don’t feel forced to do this for us. If you do want to risk this from happening again or getting worse nobody here would blame you.

 

@OverSoft

Totally agree with you. I don't have the balls to test Lenire at this moment. Too many mixed results. I will also remain very interested in the device and of course still seek a reduction of tinnitus. But for me it's not worth the risks. Staying sane is also worth something.

 

I would like to know the mechanisms for that. In my understanding the only way for that to happen is by an inflammation which should resolve in less than a month.

I think it depends on the case. I have a very severe form of tinnitus myself and don't know if I'd trade it with the case of trigeminal neuralgia I know first hand. It's a nasty condition. Just the contact of a gentle breeze against your face can make you feel the worst of the pains of the worst of the toothaches. Same goes for talking, smiling, eating and drinking so... it's a difficult choice.

 

@AliceW

I was very curious of your experience with Lenire since you seemed open in your earlier posts. Very unfortunate to read about your situation. I hope you get well soon and find the relief you are looking for.

 

Trigeminal neuralgia is 100% worse than tinnitus...

After my 6 days of Lenire, It felt like my tinnitus was less intrusive... I think Lenire can provide good results for my tinnitus... so frustrating to have my device in front of me without being able to use it for the moment.

 

I see. Please keep us posted. Hopefully you can make a speedy recovery... Wishing you all the best.

 

Send it this way. I'll give it good use...

Prompt recovery to you. You'll be fine in no time. The person I know who suffers from it is back on track at his 100% thanks to meds. Hugs.

 

What do you consider a calm day? No tinnitus at all or the tinnitus is so low that it doesn't bother you?

 

@pinklights98 how are you faring? I was really upset to hear that Lenire didn’t help you and made it worse. I’m thinking of you and wishing you well. You don’t deserve the hell you’ve experienced with tinnitus

 

I'm praying for you @AliceW. Wishing you a speedy recovery from this new affliction and your tinnitus.

 

I have to be in a quiet room to hear it. At 6 weeks sometimes even minimal noise (like a bathroom boiler humming behind a closed door) could mask it. I'd rate it at 2/10.

Except when it is god damned spiking, like right now. It's nearly 3AM and I can't sleep (just flew home from Ireland). This second Lenire stimulus was a real bitch. I'm back on the first one, starting tomorrow, I can't wait for it to work its magic again...

 

Hi @El BUZZ
I have to point out to you that your summary of my post is extremely ‘skewed.’
Dear Allan is very fresh in our minds.
His situation was a complex mix of several significant factors, I agree.
One of those factors was undoubtedly Lenire.
You say “tremendous bad taste, and sensationalism.”
What a peculiar response that is.
I am not a newspaper reporter, I have no axe to grind, I am not selling tabloids.

And then you say “to pretend that Lenire is the cause of it all is way to awkward.”
I ‘pretend’ nothing - as I simply cannot know - any more than you can.
Your choice of the word ‘awkward’ is very strange - and of itself - awkward.
It is irrelevant in this context my friend.

My tinnitus is very severe.
Hell on earth.
I live with it.
Somehow I cope with it.
I care very deeply for those who suffer as I do.
I am extremely aware of the possibility that my choices could? make things worse.

To everybody on this forum I preach caution.
That is both the least, and the most that I can do.
It is in my nature to care, and therefore my duty to express my personal concerns.
I am just one opinion.
Nobody has to listen to me - I am just one of many voices, am I not.
I care for everybody here.

There is ‘Hell.’
And then there is ‘Sheer Hell!’

Finally - Curtis Fuller was good,
but not the very best IMHO.
Best wishes
Dave x
Jazzer

 

But there are drugs to get some relief from trigeminal neuralgia. Am I wrong?

 

Antiepileptic (Gabapantin)... very strong med with a lot of side effects. And does not help everyone. I don't want to take it at all. My neuralgia is new. I want to cure myself by natural way (Auricular therapy, acupuncture, Chinese herbs...)

Besides all this, I have not followed the latest feedback on Lenire. Have some people had good results?

 

I know my poor English can lead to misunderstandings. Sorry about that.

I feel deeply sorry for you having to manage to cope with this form of tinnitus. I am also in that struggling side of all this. Very severe case. Fluctuations aplenty but very bad days most of the time.

I still think Lenire could benefit us but yes, I see your point of not putting any more noise into the mix.

Time will tell.

Roswell Rudd, JJ Johnson and Wycliffe Gordon are beasts if you ask me.

Yes. There are.

 

Wise decision

 

I can't wait!

Lenire works for some.
It is the only way out at the moment.
Yes it's expensive, yes it could be a risk.
I'm ready to take the risk. I have nothing to lose. All or nothing.
This condition has destroyed my life. I have a THI of 65.
It took my life, and raped it from behind.

Just a pity that they don't tell who is going to profit the most. They must have the data.

 

@AliceW

Dear Alice, I'm so sorry for your condition! I hope it will improve soon, I want to send you some energy and hope.

And thanks a lot for sharing your story, it is important to know about your experience.

Whatever caused it, the cold (a virus), Lenire, or the combination of both, is not known yet.

The more information from the Lenire users in real life, the better.

 

Thank you all.

Neuromod says that I am the only one to have symptoms of trigeminal neuralgia of the 2,000 people who have used Lenire to date.

The medical chief doesn't understand why I have this. I don't know what happened to me. Surely a bad combination of circumstances between my infection or returning from Dublin and perhaps the associated stimulation from Lenire. The body sometimes reacts in a weird way... I will find out if the MRI shows something next Monday and if not I think it was the virus combined with the stimulation from Lenire which caused a bad reaction on the nerve... My doctor thought otherwise, that I have overreacted to electrical stimuli because some people are more sensitive than others.

 

Does anyone have an idea of approximately how many people have tried Lenire since it came out? Wondering if that number is in the hundreds, thousands,..?

BTW, a quick update; I was able to change my appointment to March 3rd from late April.

 

2000 people.

 

I am sure you will recover soon Alice, you are a warrior. When we talked together a few weeks ago, you proved how combative you are.

Keep faith and hope!

 

Could be TMJ Disorder. Might be worth looking into it if you haven't already.

 

My mother had severe neuralgia which was cured by Endep 10mg. After much running around an oral surgeon was her only saviour.

She was so desperate for relief that not trying medication was not an option for her.

Hope you find relief too!

 

Considering mixed bag results plus possible worsening with new sounds, I think unless you are desperate nobody should rush to try Lenire!

I would consider myself desperate but I know it can get even worse, so no thank you!

And believe me I was prepared to move to Ireland for 4-5 months to try it.

 

It seems 20% have benefited from Lenire and 80% have worsened?

 

Lol no.

 

Lol, what?

 

Is this really what the critics believe?

 

‘You are right to be cautious.’