Looking for Dr (ENT) in Allentown, PA....

Discussion in 'Introduce Yourself' started by Robert_Pa, Apr 5, 2015.

tinnitus forum
    1. Robert_Pa

      Robert_Pa Member

      Location:
      Allentown,PA
      Tinnitus Since:
      10/1993
      Cause of Tinnitus:
      unsure-head trauma ?
      Hello.... I am a T&H sufferer for going on 20 + yrs. I am in search of a new PCP who will at least TRY and understand and or refer me to get the help needed. I know there must be someone around the Lehigh Valley Pa. Anyone close by with any info on a good Doc ? Thanks
       
    2. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Keppra managed to cure mine and Vikings h...I'd get a doctor to give you some of that, then that's one more problem gone.
       
    3. Pilot
      Mellow

      Pilot Member Benefactor

      Location:
      Baltimore, MD
      Tinnitus Since:
      December, 2014
      Cause of Tinnitus:
      Unknown
      I think Jefferson University in Philadelphia has a treatment program, I know the University of Maryland School of Medicine in Baltimore has a tinnitus treatment program. Sorry it's not very close.
       
    4. Geo

      Geo Member Benefactor

      Location:
      California
      Tinnitus Since:
      11/2012
    5. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Keppra cured my h, not my tinnitus.
       
    6. kasart
      No Mood

      kasart Member

      Tinnitus Since:
      02/2010
      Cause of Tinnitus:
      Unspecified
      I read up on Keppra - which is an anti-epileptic drug. http://www.drugs.com/keppra.html
      Do you have epilepsy or was used as a "cross-over" for T? I was prescribed "Gabapentin" by a Neuro. (not an ear dr) and found it's really not for T, and actually is ototoxic. I took it for 2 weeks and it gave me ongoing daily headaches till I said "enough and went off them". It did nothing, but actually exacerbated the T. The Dr. wanted the increase to 600 mg. No thank you.
      Keppra info. was quite lengthly on it's affect with people who have any type of mental illness or could trigger them. Did you have any these issues - How long you've been on it? What sort of T did you have at the time?
      What is Viking h? :unsure: Sorry with the multiple questions. Trying to find answers myself.

      (Just read your new post that it did not cure your "T" but "H". You meant Hyperacusis?)
       
      • Useful Useful x 1
    7. Geo

      Geo Member Benefactor

      Location:
      California
      Tinnitus Since:
      11/2012
      @Danny Boy how bad was your H..would it hurt if you had a conversation with pain or headache?
       
    8. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Viking is another member who took keppra. Keppra isn't ototoxic and I haven't had any side effects from it...Viking did, but said it was only an headache. And epilepsy drugs work for tinnitus, as it's the same thing, hyperactive neurons, going crazy.
       
    9. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Well, it was bad enough that I couldn't stand the tv being on and everything was amplified 10x and had very reactive tinnitus. All gone now though.
       
    10. Geo

      Geo Member Benefactor

      Location:
      California
      Tinnitus Since:
      11/2012
      @Danny Boy im from the states is it available here?.. im dying for relief everyday is a struggle for me i wish i was back when it was moderate or mild but now its on a mission to get me...
       
    11. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Yep, should be available there. It's a generic drug so quite cheap to get.
       
    12. kasart
      No Mood

      kasart Member

      Tinnitus Since:
      02/2010
      Cause of Tinnitus:
      Unspecified
      I think it all depends on the type of T & H one has and how it developed (e.g. noise exposure). In my case, it quite complicated, which I have not yet divulged. I am still under care/evaluation from Specialists and will share some of my experiences later with others if anything informative comes of it or anyone interested -(if I survive it all).
       
    13. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Specialists? Well, I'd just go straight to keppra than rather knowing the cause. Listen, keppra is a very safe drug, so don't worry about it...Just think no more hyperacusis.
       
    14. kasart
      No Mood

      kasart Member

      Tinnitus Since:
      02/2010
      Cause of Tinnitus:
      Unspecified
      I did not have this debilitating T & symptoms till AFTER a cochlear implant. I originally saw an Otoneuro. prior to it just for fluctuating pressuring wind-whooshing tinnitus/migraines that was affecting my hearing. I wish daily I could go back to THAT than what I have now. I have NO hearing and 10x worse different form of tinnitus which was F* up by a CI into my inner ear. This cannot be fixed by any medication as it was an invasive procedure. I cannot voice anymore or do any physical activity without debilitating symptoms. I wish it was a simple fix by just using medication, but it's not the case.
       
    15. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      I feel so sorry for you, that sounds horrible. I hope that we get closer and closer to making your torture less...If only I was Doctor Charles Large, I'd take requests for experimental treatments for you.
       
      • Hug Hug x 1
    16. kasart
      No Mood

      kasart Member

      Tinnitus Since:
      02/2010
      Cause of Tinnitus:
      Unspecified
      Thanks for your encouragement- it helps a lot that people like yourself listen. I'm not looking for pity - it's just truly horrible. I really miss hearing things - at least it helped masked or helped "ignore" the T at certain times back then. Now I can't even do this. The Dr. (after 3 appts in all) told me to go see a psychiatrist for it instead of assisting further. So, I have been spending my time and money with other Drs. to try fix what I truly have PLUS run the tests this Otoneuro. should have done prior (that I never knew about). Will cont'd w/ updates.
       
    17. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      For you, I recommend trobalt...It sounds so horrible, that I would recommend it straight away.
       
      • Helpful Helpful x 1
    18. kasart
      No Mood

      kasart Member

      Tinnitus Since:
      02/2010
      Cause of Tinnitus:
      Unspecified
      Thank you- I will ask the Neuro on this. Apparently called "Retigabine" or "Potiga" here in USA. I am not sure if this will further affect the inner-ear fluids due to unknown cranial issues. But doesn't hurt to ask...or try.
       
    19. gary
      Transparent

      gary Member Benefactor

      Location:
      Macomb, MI. USA
      Tinnitus Since:
      07/2012
      Cause of Tinnitus:
      Who Knows
      Danny Boy, FYI in the US keppra is sold/prescribed under the name levetiracetam.
       
    20. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Yeah, the brand name is Keppra though. Well, if you can get some I'd recommend it.
       
    21. gary
      Transparent

      gary Member Benefactor

      Location:
      Macomb, MI. USA
      Tinnitus Since:
      07/2012
      Cause of Tinnitus:
      Who Knows
      I don't have H, but thought I would let you know the name of it here in case someone asks you..
       
    22. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Ok, awesome!
       
    23. Ricky81
      Worried

      Ricky81 Member Benefactor

      Tinnitus Since:
      July 14, 2014
      Cause of Tinnitus:
      Assault/Contusion/Ear Infection
      So H can be cured with Keppra, but there is no cure for T.
       

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