Looking for Dr (ENT) in Allentown, PA....

[Robert_Pa]

Hello.... I am a T&H sufferer for going on 20 + yrs. I am in search of a new PCP who will at least TRY and understand and or refer me to get the help needed. I know there must be someone around the Lehigh Valley Pa. Anyone close by with any info on a good Doc ? Thanks

 

[Danny Boy]

Hello.... I am a T&H sufferer for going on 20 + yrs. I am in search of a new PCP who will at least TRY and understand and or refer me to get the help needed. I know there must be someone around the Lehigh Valley Pa. Anyone close by with any info on a good Doc ? Thanks

Keppra managed to cure mine and Vikings h...I'd get a doctor to give you some of that, then that's one more problem gone.

 

[Pilot]

I think Jefferson University in Philadelphia has a treatment program, I know the University of Maryland School of Medicine in Baltimore has a tinnitus treatment program. Sorry it's not very close.

 

[Geo]

@Danny Boy how did you cure your T

 

[Danny Boy]

@Danny Boy how did you cure your T

Keppra cured my h, not my tinnitus.

 

[sakrt]

Keppra managed to cure mine and Vikings h...I'd get a doctor to give you some of that, then that's one more problem gone.

I read up on Keppra - which is an anti-epileptic drug. http://www.drugs.com/keppra.html
Do you have epilepsy or was used as a "cross-over" for T? I was prescribed "Gabapentin" by a Neuro. (not an ear dr) and found it's really not for T, and actually is ototoxic. I took it for 2 weeks and it gave me ongoing daily headaches till I said "enough and went off them". It did nothing, but actually exacerbated the T. The Dr. wanted the increase to 600 mg. No thank you.
Keppra info. was quite lengthly on it's affect with people who have any type of mental illness or could trigger them. Did you have any these issues - How long you've been on it? What sort of T did you have at the time?
What is Viking h? Sorry with the multiple questions. Trying to find answers myself.

(Just read your new post that it did not cure your "T" but "H". You meant Hyperacusis?)

 

[Geo]

@Danny Boy how bad was your H..would it hurt if you had a conversation with pain or headache?

 

[Danny Boy]

I read up on Keppra - which is an anti-epileptic drug. http://www.drugs.com/keppra.html
Do you have epilepsy or was used as a "cross-over" for T? I was prescribed "Gabapentin" by a Neuro. (not an ear dr) and found it's really not for it and actually can be ototoxic. I took it for 2 weeks and it gave me ongoing daily headaches till I said "enough and went off them". It did nothing, but actually exacerbated the T. The Dr. wanted me to increase to 600 mg. No thank you.
Keppra info. was quite lengthly on it's affect with people who have any type of mental illness or could trigger them. Did you have any these issues - How long you've been on it? What sort of T did you have at the time?
What is Viking h? Sorry with the multiple questions. Trying to find answers myself.

Viking is another member who took keppra. Keppra isn't ototoxic and I haven't had any side effects from it...Viking did, but said it was only an headache. And epilepsy drugs work for tinnitus, as it's the same thing, hyperactive neurons, going crazy.

 

[Danny Boy]

@Danny Boy how bad was your H..would it hurt if you had a conversation with pain or headache?

Well, it was bad enough that I couldn't stand the tv being on and everything was amplified 10x and had very reactive tinnitus. All gone now though.

 

[Geo]

@Danny Boy im from the states is it available here?.. im dying for relief everyday is a struggle for me i wish i was back when it was moderate or mild but now its on a mission to get me...

 

[Danny Boy]

@Danny Boy im from the states is it available here?.. im dying for relief everyday is a struggle for me i wish i was back when it was moderate or mild but now its on a mission to get me...

Yep, should be available there. It's a generic drug so quite cheap to get.

 

[sakrt]

Viking is another member who took keppra. Keppra isn't ototoxic and I haven't had any side effects from it...Viking did, but said it was only an headache. And epilepsy drugs work for tinnitus, as it's the same thing, hyperactive neurons, going crazy.

I think it all depends on the type of T & H one has and how it developed (e.g. noise exposure). In my case, it quite complicated, which I have not yet divulged. I am still under care/evaluation from Specialists and will share some of my experiences later with others if anything informative comes of it or anyone interested -(if I survive it all).

 

[Danny Boy]

I think it all depends on the type of T & H one has and how it was created (e.g. noise exposure). In my case, it quite complicated, which I have not yet divulged. I am still under care/evaluation from Specialists and will share some of my experiences later with others if anything informative comes out of it or anyone interested -(if I survive it all).

Specialists? Well, I'd just go straight to keppra than rather knowing the cause. Listen, keppra is a very safe drug, so don't worry about it...Just think no more hyperacusis.

 

[sakrt]

I did not have this debilitating T & symptoms till AFTER a cochlear implant. I originally saw an Otoneuro. prior to it just for fluctuating pressuring wind-whooshing tinnitus/migraines that was affecting my hearing. I wish daily I could go back to THAT than what I have now. I have NO hearing and 10x worse different form of tinnitus which was F* up by a CI into my inner ear. This cannot be fixed by any medication as it was an invasive procedure. I cannot voice anymore or do any physical activity without debilitating symptoms. I wish it was a simple fix by just using medication, but it's not the case.

 

[Danny Boy]

I did not have this debilitating T & symptoms till AFTER a cochlear implant. I originally saw an Otoneuro. prior to it just for fluctuating pressuring wind-whooshing tinnitus/migraines that was affecting my hearing. I wish daily I could go back to THAT than what I have now. I have NO hearing and 10x worse different form of tinnitus which was F* up by a CI into my inner ear. This cannot be fixed by any medication as it was an invasive procedure. I cannot voice anymore or do any physical activity without debilitating symptoms. I wish it was a simple fix by just using medication, but it's not the case.

I feel so sorry for you, that sounds horrible. I hope that we get closer and closer to making your torture less...If only I was Doctor Charles Large, I'd take requests for experimental treatments for you.

 

[sakrt]

Thanks for your encouragement- it helps a lot that people like yourself listen. I'm not looking for pity - it's just truly horrible. I really miss hearing things - at least it helped masked or helped "ignore" the T at certain times back then. Now I can't even do this. The Dr. (after 3 appts in all) told me to go see a psychiatrist for it instead of assisting further. So, I have been spending my time and money with other Drs. to try fix what I truly have PLUS run the tests this Otoneuro. should have done prior (that I never knew about). Will cont'd w/ updates.

 

[Danny Boy]

Thanks for your encouragement- it helps a lot that people like yourself listen. I'm not looking for pity - it's just truly horrible. I really miss hearing things - at least it helped masked or helped "ignore" the T at certain times back then. Now I can't even do this. The Dr. (after 3 appts in all) told me to go see a psychiatrist for it instead of assisting further. So, I have been spending my time and money with other Drs. to try fix what I truly have PLUS run the tests this Otoneuro. should have done prior (that I never knew about). Will cont'd w/ updates.

For you, I recommend trobalt...It sounds so horrible, that I would recommend it straight away.

 

[sakrt]

Thank you- I will ask the Neuro on this. Apparently called "Retigabine" or "Potiga" here in USA. I am not sure if this will further affect the inner-ear fluids due to unknown cranial issues. But doesn't hurt to ask...or try.

 

[gary]

Danny Boy, FYI in the US keppra is sold/prescribed under the name levetiracetam.

 

[Danny Boy]

Danny Boy, FYI in the US keppra is sold/prescribed under the name levetiracetam.

Yeah, the brand name is Keppra though. Well, if you can get some I'd recommend it.

 

[gary]

Yeah, the brand name is Keppra though. Well, if you can get some I'd recommend it.

I don't have H, but thought I would let you know the name of it here in case someone asks you..

 

[Danny Boy]

I don't have H, but thought I would let you know the name of it here in case someone asks you..

Ok, awesome!

 

[Ricky81]

So H can be cured with Keppra, but there is no cure for T.