New to Tinnitus, What to Do?

Discussion in 'Support' started by Michael Leigh, Dec 21, 2015.

tinnitus forum
    1. Michael Leigh

      Michael Leigh Member Benefactor

      Location:
      Brighton, UK
      Tinnitus Since:
      April /1996
      New to tinnitus what to do?

      The onset of loud intrusive tinnitus can be very traumatic for most people. I use the words loud and intrusive, because tinnitus comes in many forms and intensities. When it is mild, moderate or occasionally heard in quiet surroundings it is usually not too bothersome and a person can go about their daily affairs quite happily and unperturbed by this anomaly. This type of tinnitus usually comes on gradually and in some cases it’s associated with hearing loss, as we get older and the usual treatment is the wearing of hearing aid/s.

      Tinnitus can be caused by other things: an underlining medical problem, build up of ear wax (cerumen). Jaw problems. Some medications and even irregular blood flow through the body causing Pulsatile tinnitus. There are a plethora of other conditions that can be responsible. However, the most common cause is exposure to loud noise or music that has been played at high levels causing some damage to the cochlear in the inner ear.

      This type of tinnitus can be loud, intrusive and very debilitating. Often leaving a person at a loss and not knowing which way to turn to escape the nightmare that has suddenly come upon them. Your Dr has probably told you, it’s tinnitus and nothing can be done, you’ll just have to learn to live with it. I remember those words as if it were yesterday resonating through my mind and thinking, live with this for the rest of my life, impossible. So I fully understand how difficult it can be for someone new to this condition to take this in and believe it to be factual.

      If you are having difficulty sleeping you might have been advised to try a night time sedation or an ant-depressant to help cope with the stress and anxiety that often accompanies tinnitus. These medications can be helpful especially in the early stages and they don’t have to be taken long term, so it’s something to consider. They can act as a safety net so you don’t become too down.

      A referral to ENT will usually be recommended. In the mean time try to keep occupied with something you like doing, as it helps to distract the brain from focusing on the tinnitus. Avoiding quiet rooms during the day by playing low level non intrusive music such as classical in the background can be helpful.

      At night a sound machine placed by the bedside playing nature sounds or listening to favourite mp3 tracks or Cds are good. Keeping the volume just below the tinnitus is ideal and set to play throughout the night until morning. It takes time to get used to sound therapy so please stay with it. Whilst in a deep sleep it supplies the brain and auditory system with sound enrichment. Over time the tinnitus is pushed further into the background helping to make its perception less noticeable during waking hours.

      In the early stages of tinnitus, if one chooses not to use sound enrichment sleeping can sometimes be difficult and there’s also the chance of the tinnitus becoming more intrusive as sleeping in a quiet room can allow the brain to increase it’s own background activity. In doing so it will also increase the tinnitus making it more intrusive during waking hours.

      There is a tendency for newbies to try and cure their tinnitus which is quite understandable. There are many remedies, treatments and concoctions out there. Some affordable others quite expensive. I am not adverse to trying to help myself but want to say, there are charlatans and con artists eager to relieve someone in distress of their money so please be careful. Even tried and tested treatments I wouldn’t recommend a person try until they have been seen at ENT. Often a person after been seen at ENT is advised to wait a while.

      The reason being. Many people habituate to tinnitus within six months sometimes a little longer and it has been known to go away. The ear is a very delicate organ and many Drs prefer to wait before investigating further and then suggesting a treatment. If other problems are experienced such as: pain in the ears, deafness, dizziness or balance problems this is of more concern and a person will usually been seen quicker.

      It is best to have a word with your GP if you’re feeling stressed or depressed in any way, as previously mentioned there are treatments available. Leaving things alone until ENT advise you of the next step is the best thing to do in my opinion. Don’t try to fix anything or throw large sums of money at treatments that you have no way of knowing whether you’ll get any relief.

      It is not advisable to listen to audio through headphones even at low volume and keep away from loud sounds. By all means go out but anywhere that plays loud music then wear noise reducing earplugs.
      Take things slowly and one day at a time. Read some of the positivity threads and ask other members for advice. Many people eventually habituate to their tinnitus and go on to lead a happy and fulfilling life even though it may take a little time.

      Michael
       
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    2. dboy
      Jaded

      dboy Member Benefactor

      Location:
      UK
      Tinnitus Since:
      1/2007 & 8/2013
      It is sometimes advised to also use certain supplements, eg. magnesium, zinc, B12, NAC, vit E. I believe some studies have suggested that deficiencies of some of these may possibly be implicated in tinnitus onset, or that they may have a mild protective effect. I bombarded my system with these for a while without noticeable effect. I guess whether you want to try comes down to how much you believe in supplements.

      Sometimes it does seem to be helpful to get a short high-dose course of Prednisone/Prednisolone. There is a short time window when this might be effective (reports vary on exactly how long), but talk to your doctor ASAP to pursue this route.

      Excellent idea for a thread @Michael Leigh. (y)
       
    3. Natalie Roberts
      Depressed

      Natalie Roberts Member Benefactor

      Location:
      USA
      Tinnitus Since:
      10/2015
      Cause of Tinnitus:
      Pregnancy or mild hearing loss.. Who knows.
      I've also heard low iron can cause Tinnitus.. :)
       
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    4. Michael Leigh

      Michael Leigh Member Benefactor

      Location:
      Brighton, UK
      Tinnitus Since:
      April /1996
      I have heard that too Natalie. Tinnitus is a complex condition and we are all different. What might affect one person might not affect another.
       
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    5. glynis-harbron
      Feminine

      glynis-harbron Member Benefactor Hall of Fame Ambassador Team Awareness Team Research

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      I have heard it too.
      due to the lack of Red blood cells carrying oxygen around the body.....
      Animia can cause tinnitus.......lots of love glynis
       
    6. Shades of grey
      Curious

      Shades of grey Member

      Tinnitus Since:
      Unsure
      Cause of Tinnitus:
      Unknown
      Due to my allergies I am an involuntary Vegan. I have to control my diet carefully as I cannot take vitamin supplements.
      Could my t be telling me when my iron is low?
       
    7. glynis-harbron
      Feminine

      glynis-harbron Member Benefactor Hall of Fame Ambassador Team Awareness Team Research

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      If you feel tired and rundown and your motions are pale you could need iron.
      A simple blood test can tell you so I would see your doctor...lots of love glynis
       
    8. Darbiter

      Darbiter Member

      Tinnitus Since:
      09/2015
      Know that it WILL get better with time. I think of noise like I used to think of silence, which SOUNDS scary, but it's not. Life is very much the same as it was before
       

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