Not Normal Tinnitus?

[Michael R]

Hey guys, I had gotten T about 2 months ago because of what doctors thought was an inner ear infection. The vertigo is long gone but I'm stuck with this very high pitched dog whistle/electrical hissing sound in my right ear. The thing that throws me off is that it doesn't seem to be totally constant. It's like it get louder and quieter and slightly changes to another very high pitch every few seconds. This is making it really hard to just forget about it during the day because I can also hear it slightly when it changes, like it almost buzzes my brain and puts me in alert 24 hours a day. I can also sometimes hear what seems to be a very quiet click sound every so often.
Just wondering if anyone else experienced this type of T because it seems like most are just constant tones. It is extremely annoying and I'm praying some how I can get used to it.
Thanks for any replies, Michael.

 

[SteveSkis92]

Personally, my T changes volume and slightly changes pitch from day to day. There really is no "normal" T, but mine is definitely pretty far off from what I would have imagined before personal experience. My T is very strange in that moving virtually anything changes the pitch and volume of my T. If I move my fingers, toes, tongue, eyes, etc. the T changes.

When you say your T changes and "buzzes" your brain, does it go in sync with your heartbeat? Do you have any hearing loss?

Believe me when I say I totally understand how confusing and frustrating this condition is.....I think one of the truly frustrating things about T is how incredibly personal and unique each case is....

@Michael R

 

[Michael R]

@SteveSkis92 I can't connect anything that makes it change, seems to be totally random. And my brain doesn't buzz to my heartbeat it just buzzes when I get a couple seconds of the louder tone, I guess it just surprises me and makes me go wtf was that lol. That's not constant but happens a couple times through the day. Pretty frustrating when I'm finally finding a couple of minutes not thinking about the T than that happens. Thankfully the shower/faucet and riding in my car with the windows down seems to mask it. That's pretty much it though. And I don't have any hearing loss according to 2 hearing tests I had.

 

[SteveSkis92]

I don't really know what to say about that unfortunately @Michael R , wish I could be of more help....

All I can really say is that healthy diet, exercise, and relaxation exercises are going to be your friend here. Not at all saying I have my T under control, but I do know that exercise and healthy food make me feel better in general, which helps the T.

Hang in there bud! Hope the rest of your day is great!

-Steve

 

[BobDigi]

There's no such thing as normal tinnitus. Some have high pitched, some low pitched, some loud, some quiet; some constant, some reactive, some intermittent, some hissing, some screeching and some people's come and go, some peoples changes every five minutes. My point is. Everyone's is different. But it's all tinnitus.

 

[Mad maggot]

Sounds like T I have had as long as I can remember only it doesn't bother me. The click could be a muscle twitch in the ear or just another part of your T.

 

[Michael R]

@Mad maggot so your T goes up and down slightly in volume every couple of seconds or changes pitch every couple of seconds? Or you have the click?

 

[Mad maggot]

@Mad maggot so your T goes up and down slightly in volume every couple of seconds or changes pitch every couple of seconds? Or you have the click?

I have a kind of tone that goes up and down and a whistle over that plus sometimes a morse code kind of a beep. But none of those bothers me at all.
But I have something else which bothers me which I think isn't tinnitus but because it's a noise in my ear, I'm here. That is a click or a Geiger counter going off which is synchronous with other symptoms. Namely my vision bouncing around making life more difficult.
All my T is in only one ear or perhaps inmy other ear but drowned out by my left ;-)

 

[Michael R]

@Mad maggot Is it really high pitched like an old TV sound? It's the most annoying thing ever and I feel like it's getting worse. It's all I can think about because it's so distracting and intrusive. Can hear it over everything except the shower. Be side myself at the moment.

 

[RicoS]

I have my normal T and I have what I call electric zap that are random 24/7 and cut through everything. I do not know if it is T because I can feel it through my brain or something. I think it is anxiety kicking in..... My T i can pretty much handle these days but the zaps are hard to ignore...... but I just give it time to heal....there is nothing more I can do about it. Do not try to worry that much and give it some time!

 

[Michael R]

@RicoS thanks man. I hope soon both of our brain zaps will stop. Miss my old life so much. I'm 2 months in but feel I'm getting worse not better. Debating on going to an AD because it's getting so rough now. Can't mask can't do a dam thing for it drives me nuts. At this point I think I would consider it severe. And when it gets louder it zaps my brain it sends me to a shock of anxiety. I'm sure you experienced this as well.

 

[Martin69]

@Michael R
Same here. High-pitched T like a dog whistle or old CRT TV in the head. Something around 15 kHz or higher.
Cuts through everything. If I am calm, I "only" hear this tone. If I am stressed or my anxiety goes up, it gets louder and I can hear more tones. It is difficult to handle.

What helps: Not much. Taking a shower twice a day, listening to cricket sounds, try living as normal as possible, sometimes taking a benzo. And praying for a cure or the tone lowering. I can live somehow (with limitations) with the tone, although it is a real life changer.

Many get used to the sound.

You are not alone in this. We are all in this together.

 

[RicoS]

@RicoS thanks man. I hope soon both of our brain zaps will stop. Miss my old life so much. I'm 2 months in but feel I'm getting worse not better. Debating on going to an AD because it's getting so rough now. Can't mask can't do a dam thing for it drives me nuts. At this point I think I would consider it severe. And when it gets louder it zaps my brain it sends me to a shock of anxiety. I'm sure you experienced this as well.

I also got those shots of anxiety...but you need to let it go ... I never thought I could get used to my normal T now I can handle it better. I have this 2 years and 3 months now and it slightly getting better. To be honest if I did not have the electric zaps I would be good to go on with my life as it was before. Sure I want silence but that is not the way it is.
So dealing with T for so long and a lot of panick attacks , anxiety and depression you slowly learn what you can take and what not. Like Martin69 says....live as normal as possible.

You brain is not used to the sound and treats it like an enemy. For most people this will slowly go away or they notice it less loud, but for some it stays because they are to focused on it (like me)....and than you have extreme T that is harder to deal with. My zaps fall in this category of ...harder to deal with because I cannot mask them with anything, but still I learned to keep calm. The more calmer I get ...the less loud it is. Sure it annoys me but I just not let it get to me anymore....because.....well...it just has no use , I can cry , shout or what ever, but it will still be there.

I try to accept it and saying to myself that it is my brain making noise and I try to do other thing right away but not dwell on it anymore....I did that far to long and was the wrong approach.

And BTW I also had H for 1.5 years and that has resolved itself the last couple of months. So who knows...perhaps the zaps will go away by itself also....

Stay strong m8

 

[Michael R]

@RicoS i don't understand how I can get used to a dog whistle that is constantly going up and down all day. But I'm going to stay strong, my family has been great with handling me breaking down and what not. Habituation needs to come quick. Thanks Rico.

 

[RicoS]

@RicoS i don't understand how I can get used to a dog whistle that is constantly going up and down all day. But I'm going to stay strong, my family has been great with handling me breaking down and what not. Habituation needs to come quick. Thanks Rico.

Same as my zaps my friend....is there the whole time can hear it all the time, but I'm still here. I had pulsating T for 5 months which is almost gone now... I had H which is gone now. My normal T is a bit softer than it was 2 years ago...and the zaps I only got 4 months now...and they were worse the first 2 months...so perhaps it will go away also.

But thinking negative will not help you at all.....the more you go into that negative mode the more it sucks your little energy you have left. Don't think I'm all mr Positive or something, but I read a book from Julian Cowan Hill http://www.amazon.com/Tinnitus-Tyra...=1440453483&sr=1-3&keywords=julian+cowan+hill

This made me think another way and I must say it really helped me a lot already. Until there is a pill it's the best thing for me to do.

 

[Michael R]

@RicoS defintely am in negative mode because doctors told me it would be gone by now most likely but seems worse. Read so much stuff on google and here like horror stories. I'm going to try to only read success stories from now on. Going to try to continue living even though I'm annoyed 24/7. Thanks for all your replies I really appreciate it and pray that we all can get relief one day.

 

[Mad maggot]

@Mad maggot Is it really high pitched like an old TV sound? It's the most annoying thing ever and I feel like it's getting worse. It's all I can think about because it's so distracting and intrusive. Can hear it over everything except the shower. Be side myself at the moment.

My Geiger counter noise is high pitched and metallic sounding but I'm lucky because it's not constant so I have seconds or minutes of peace but on good days I get even a few hours peace. If you are struggling to manage this do not be afraid to get help from doctors. Also do you have any T research going on in your country?
What I did recently was email a whole heap of ENT doctors and clinics in my city (googled to find them) and I sent them all (T specialists also) a letter explaining m symptoms and that I had spent thousands trying to find treatment but could not spend any more. So asked if any of them would be interested to see me for free since my symptoms were so bizarre. I got three replies. Two telling me to make appointments and the costs! I'd already explained I've got no more money left to throw at this.... But one was a T specialist and he said he will see me for free if I will be willing to be a research subject. And he has got a team together of eye docs etc to help. I didn't really expect a reply from anyone and I sent a lot of emails. But I only needed the one I got.
Perhaps you could try the same?

 

[Mad maggot]

I have my normal T and I have what I call electric zap that are random 24/7 and cut through everything. I do not know if it is T because I can feel it through my brain or something. I think it is anxiety kicking in..... My T i can pretty much handle these days but the zaps are hard to ignore...... but I just give it time to heal....there is nothing more I can do about it. Do not try to worry that much and give it some time!

Sounds familiar! Like your brain vibrates or it jumps suddenly! Drives you nuts.

 

[Mad maggot]

@RicoS i don't understand how I can get used to a dog whistle that is constantly going up and down all day. But I'm going to stay strong, my family has been great with handling me breaking down and what not. Habituation needs to come quick. Thanks Rico.

I understand what you are saying. It's hard to imagine how you can live with it and get used to it. But please read my story and see what I'm living with. And no it's not a competition about who has the worst T or who is suffering the most! That's not what I mean. Just read my story of what I'm living with. It takes a lot of my concentration each day to balance and walk and navigate my world as though nothing were wrong because my vision is lying to me. So I often forget stuff or don't take things in properly. But...
I'm used to it! I'm doing everything I used to do. I'm enjoying my life. In the beginning I used to pray not to wake up in the morning. I'd prefer not to have this rubbish which is why I'm looking for answers, but if I have to accept this will never go away - ok.
I'm just saying this because I want you to know everyone feels like you do in the beginnings and most people eventually either lose the T or just adjust to it as impossible as it sounds right now.

 

[Michael R]

@Mad maggot thank you. That is truly inspiring that you can still be able to go on with those bizarre symptoms. Glad to hear you don't have MS. MS runs in my family so I am going to a nuerologist in a couple weeks to have some stuff checked out. My eyes kind of jump around when I get the loud zaps, and I would get small episodes of vertigo since I was a adolescent that would only last for a couple of seconds though. Doctors told me I have an anxiety disorder which may be true lol but the vertigo was really real because it would happen at times when I felt relaxed and happy. Those would occur every couple of months.

 

[Mad maggot]

@Mad maggot thank you. That is truly inspiring that you can still be able to go on with those bizarre symptoms. Glad to hear you don't have MS. MS runs in my family so I am going to a nuerologist in a couple weeks to have some stuff checked out. My eyes kind of jump around when I get the loud zaps, and I would get small episodes of vertigo since I was a adolescent that would only last for a couple of seconds though. Doctors told me I have an anxiety disorder which may be true lol but the vertigo was really real because it would happen at times when I felt relaxed and happy. Those would occur every couple of months.

Oh! Sounds similar to me. Very similar. I still sometimes wonder if this could be MS and not shown up on my scans. I have other things unrelated to my ears... But if it is MS I doubt I would take any of the medications anyway so... Don't like the sound of them and the side effects. I do not believe any of your symptoms were anxiety for one moment! I was told the same thing and told I was stressed. I have no stress and nothing to be anxious about but the vertigo and T etc! That's just a fob off when they don't have an answer. I have an easy life with no stress! To me your problems sound very real, not anxiety. I hope you get some results soon. If it does turn out to be MS I have friends with MS who live a great life and unless they told you, you'd never know. So I hope it's not MS but if it is it will be ok.

 

[Michael R]

@Mad maggot how long have you been dealing with symptoms? I had a brain Mri which came back ok just some white spot but doctors say that it's fine. I'm not too worried right now about MS at this point. Just the fluctuating T and brain zaps are what are at the front of my mind right now, very hard to live life like before 2 months ago. My aunt is 52 and has MS and is in great health. She even ran the Chicago marathon a couple of times a couple of years ago. Although she does have to inject medicine in her leg every other day her illness doesn't seem to phase her. Hopefully we can find some answers soon.

 

[NiNyu]

@Michael R, there are no horror stories about T, only facts and fantasies. But only you can choose to live in a fairy tale or face reality.
The question is, can you hear your T over a running faucet or not. If not, chances are your T might be *mild*, and many people with *mild* T get used to it in no time. Until it gets worse and reality kicks in.
About the click sound every so often, I'd say I have that one too though it sounds mechanical coming from the inner ear and not the brain. And no it's definitely not the ossicles cos I can control them, and they do sound a lil differently.

 

[Michael R]

@NiNyu i can't really hear it over the faucet at baseline but it goes up in volume or pitch every couple of seconds so it's like I can feel it almost shocks me. Unsettling feeling.

 

[Danny Boy]

@NiNyu i can't really hear it over the faucet at baseline but it goes up in volume or pitch every couple of seconds so it's like I can feel it almost shocks me. Unsettling feeling.

Try this-

http://www.generalfuzz.net/acrn/

 

[Michael R]

@Danny Boy what does that do?

 

[Danny Boy]

@Danny Boy what does that do?

It's basically free Acoustic Coordinated Reset Neuromodulation

 

[Michael R]

@Danny Boy thanks, have you had any success with it?

 

[Danny Boy]

@Danny Boy thanks, have you had any success with it?

It can help mask tinnitus.

 

[Mad maggot]

@Mad maggot how long have you been dealing with symptoms? I had a brain Mri which came back ok just some white spot but doctors say that it's fine. I'm not too worried right now about MS at this point. Just the fluctuating T and brain zaps are what are at the front of my mind right now, very hard to live life like before 2 months ago. My aunt is 52 and has MS and is in great health. She even ran the Chicago marathon a couple of times a couple of years ago. Although she does have to inject medicine in her leg every other day her illness doesn't seem to phase her. Hopefully we can find some answers soon.

Seven years. I had three years before that when I was fine and before that eight months of weird stuff.